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      Unterstützungsbedürfnisse pflegender Angehöriger von Menschen mit Demenz : Ein integratives Review mit Bezug zum KOMMA-Ansatz Translated title: Support needs of caregivers of people with dementia: An integrative literature review

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          Abstract

          Zusammenfassung. Hintergrund: Pflegende Angehörige haben einen hohen Stellenwert bei der häuslichen Versorgung von Menschen mit Demenz (MmD). Die Pflege und damit verbundenen Belastungen können sich negativ auf deren Gesundheit auswirken. KOMMA ist ein Ansatz zur Unterstützung von Angehörigen in der häuslichen Palliativversorgung, der für diese Personengruppe genutzt werden könnte. Ziel: Ziel war es, in der Literatur Unterstützungsbedürfnisse von Angehörigen von Menschen mit Demenz zu identifizieren und sie mit jenen, die Grundlage für die Entwicklung des KOMMA-Ansatzes waren, zu vergleichen. Methode: Es wurde ein integratives Review durchgeführt. Die Literaturrecherche erfolgte im Februar und März 2021 in den Datenbanken MEDLINE, CINAHL und PsycInfo. Relevante Studien wurden identifiziert, anhand von Ein- und Ausschlusskriterien selektiert und bewertet. Die Daten wurden mit einem inhaltsanalytischen Verfahren mithilfe von MAXQDA in Kategorien zugeordnet. Ergebnisse: Es wurden 23 Studien inkludiert, die in einer Zeitschrift mit Peer-Review-Verfahren veröffentlicht worden sind. Pflegende Angehörige zeigen im Vergleich zum KOMMA-Ansatz abweichende Unterstützungsbedürfnisse in den Bereichen (in-)formelle Hilfe, Zugang zu Wissen, Umgang mit physischem und psychischem Gesundheitszustand, Aufrechterhaltung der Beziehung, (vorübergehende) Abgabe der Betreuungsrolle und soziale Integration. Schlussfolgerung: Der KOMMA-Ansatz zur Erfassung von Unterstützungsbedürfnissen kann für diese Angehörigengruppe in der vorliegenden Form nicht übernommen werden. Angesichts der Fülle identifizierter Unterstützungsbedürfnisse erscheint die Entwicklung eines personenzentrierten und bedürfnisorientierten Assessments aber als wichtig.

          Support needs of caregivers of people with dementia: An integrative literature review

          Abstract. Background: Family caregivers are of great importance in the home care for people with dementia. The care and related stress can have a negative impact on their health. The CSNAT (German: KOMMA) is an approach to support family caregivers in palliative home care that could be used for this group of people. Aim: The aim was to identify support needs for caregivers of people with dementia in the literature and compare these with those that formed the basis for the development of the KOMMA approach. Method: We performed an integrative review. Literature research was conducted in February and March 2021 in the MEDLINE, CINAHL and PsycInfo databases. Relevant studies were identified and assessed using inclusion and exclusion criteria. Using MAXQDA, the data were assigned to categories with a content analytic procedure. Results: 23 studies were included that had been published with peer review procedure. Compared to the KOMMA approach, family caregivers show divergent support needs in the areas of (in)formal assistance, access to knowledge, managing physical and mental health conditions, maintaining the relationship, (temporarily) relinquishing the caregiving role and social integration. Conclusion: The KOMMA tool for identifying support needs cannot be directly adopted for this group of caregivers in its present form. However, given the richness of identified support needs, the development of a person-centered and needs-oriented assessment seems important.

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          The PRISMA 2020 statement: an updated guideline for reporting systematic reviews

          The Preferred Reporting Items for Systematic reviews and Meta-Analyses (PRISMA) statement, published in 2009, was designed to help systematic reviewers transparently report why the review was done, what the authors did, and what they found. Over the past decade, advances in systematic review methodology and terminology have necessitated an update to the guideline. The PRISMA 2020 statement replaces the 2009 statement and includes new reporting guidance that reflects advances in methods to identify, select, appraise, and synthesise studies. The structure and presentation of the items have been modified to facilitate implementation. In this article, we present the PRISMA 2020 27-item checklist, an expanded checklist that details reporting recommendations for each item, the PRISMA 2020 abstract checklist, and the revised flow diagrams for original and updated reviews.
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            The integrative review: updated methodology.

            The aim of this paper is to distinguish the integrative review method from other review methods and to propose methodological strategies specific to the integrative review method to enhance the rigour of the process. Recent evidence-based practice initiatives have increased the need for and the production of all types of reviews of the literature (integrative reviews, systematic reviews, meta-analyses, and qualitative reviews). The integrative review method is the only approach that allows for the combination of diverse methodologies (for example, experimental and non-experimental research), and has the potential to play a greater role in evidence-based practice for nursing. With respect to the integrative review method, strategies to enhance data collection and extraction have been developed; however, methods of analysis, synthesis, and conclusion drawing remain poorly formulated. A modified framework for research reviews is presented to address issues specific to the integrative review method. Issues related to specifying the review purpose, searching the literature, evaluating data from primary sources, analysing data, and presenting the results are discussed. Data analysis methods of qualitative research are proposed as strategies that enhance the rigour of combining diverse methodologies as well as empirical and theoretical sources in an integrative review. An updated integrative review method has the potential to allow for diverse primary research methods to become a greater part of evidence-based practice initiatives.
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              Why caregivers of people with dementia and memory loss don't use services.

              To develop a typography of the characteristics of caregivers of community dwelling people with dementia or memory loss who do not use services and empirically investigate the reasons for service non-use. The findings of a literature review were used to develop a typography of caregivers' non-use of services. This typography was applied to a sample of community-based caregivers. One in three caregivers were using no services and one in four only one service. Despite considerable proportions reporting low levels of life satisfaction and high levels of overload and resentment the main reasons caregivers gave for not using services were that they did not consider they needed the services. Other reasons for service non-use included care recipient reluctance to use services, lack of knowledge of services or being in the process of applying for services. Service availability or affordability were not identified as major impediments to service use. Presence of a physical disability and contact with a social worker were associated with service use. Caregivers of people with dementia incur significant strain and have substantial need for a variety of services. Nevertheless many caregivers were not using support services, mainly because of perceived lack of need or lack of awareness. Better public promotion of services, destigmatising dementia and encouraging referrals from health professionals could help overcome the barriers to service use. Copyright (c) 2005 John Wiley & Sons, Ltd
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                Author and article information

                Contributors
                Journal
                pfl
                Pflege
                Hogrefe AG, Bern
                1012-5302
                1664-283X
                23. November 2022
                Affiliations
                [ 1 ]Departement für Pflegewissenschaft und Gerontologie, UMIT TIROL – Privatuniversität für Gesundheitswissenschaften und -technologie, Hall in Tirol, Österreich
                Author notes
                Julia Sonntag, MScN, Alterspsychiatrie, ZfP Südwürttemberg, Weingartshoferstraße 2 , 88214 Ravensburg , Deutschland ju-sonntag@ 123456web.de
                Author information
                https://orcid.org/0000-0002-3703-7128
                Article
                pfl_a000920_-1_1
                10.1024/1012-5302/a000920
                e450e46f-38c1-494c-a0f8-b648b7cc45c2
                Copyright @ 2022
                History
                : 9. September 2022
                : 18. September 2022
                Funding
                Förderung: Das Projekt wurde vom Tiroler Wissenschaftsfonds gefördert.
                Categories
                Originalarbeit

                Nursing,Psychology,Health & Social care,Clinical Psychology & Psychiatry
                dementia,integrative review,home care,caregivers,needs,integratives Review,häusliche Versorgung,Demenz,pflegende Angehörige,Bedürfnisse

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