13
views
0
recommends
+1 Recommend
0 collections
    0
    shares
      • Record: found
      • Abstract: found
      • Article: found
      Is Open Access

      PARTICIPATION AND QUALITY OF LIFE IN PERSONS LIVING WITH SPINAL CORD INJURY IN NORWAY

      research-article

      Read this article at

      Bookmark
          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          Objectives

          To describe the association between sociodemographic and spinal cord injury characteristics, of people living with spinal cord injury, and participation and quality of life, and to study the association between participation and quality of life in this group of people.

          Design

          Persons registered in the Norwegian Spinal Cord Injury Registry after post-acute rehabilitation between 2011 and 2017 were invited to participate in a survey in 2019 when they were in a community setting.

          Subjects

          A total of 339 people living with spinal cord injury.

          Methods

          The Frequency scale and Restrictions scale of the Utrecht Scale for Evaluation of Rehabilitation-Participation were used to measure participation. Quality of life was measured as life satisfaction with the World Health Organization Quality of life assessment (WHOQoL-5) and mental health was measured using the Mental Health subscale (MHI-5).

          Results

          Overall, sociodemographic characteristics were more prominently associated with quality of life and participation than were spinal cord injury characteristics. Currently working as main activity and having a family income in the highest quartile were associated with higher scores on all 4 measures of participation and quality of life. There was a strong gradient between higher level of participation (frequency and restrictions) and better quality of life.

          Conclusion

          Participation was strongly associated with life satisfaction and mental health in people living with spinal cord injury. This indicates that participation issues should be given greater priority during post-acute rehabilitation, follow-up and subsequent care efforts provided in the community.

          LAY ABSTRACT

          Having paid work, leisure-time activities and good relationships with other people is important for one’s quality of life. For people living with spinal cord injury, it may be more difficult to participate in such activities than it is for people without health problems. A survey on participation problems was carried out among Norwegians living with spinal cord injury. Sociodemographic factors, such as family income and education, were found to have a greater impact on quality of life and participation, than the severity of the injury itself. Participation was strongly associated with life satisfaction and mental health. This indicates that participation issues should be given greater priority.

          Related collections

          Most cited references38

          • Record: found
          • Abstract: found
          • Article: not found

          The World Health Organization Quality of Life assessment (WHOQOL): position paper from the World Health Organization.

          This paper describes the World Health Organization's project to develop a quality of life instrument (the WHOQOL). It outlines the reasons that the project was undertaken, the thinking that underlies the project, the method that has been followed in its development and the current status of the project. The WHOQOL assesses individuals' perception of their position in life in the context of the culture and value systems in which they live and in relation to their goals, expectations, standards and concerns. It has been developed collaboratively in several culturally diverse centres over four years. Piloting of the WHOQOL on some 4500 respondents in 15 cultural settings has been completed. On the basis of this data the revised WHOQOL Field Trial Form has been finalized, and field testing is currently in progress. The WHOQOL produces a multi-dimensional profile of scores across six domains and 24 sub-domains of quality of life.
            Bookmark
            • Record: found
            • Abstract: not found
            • Article: not found

            International standards for neurological classification of spinal cord injury (revised 2011).

              Bookmark
              • Record: found
              • Abstract: found
              • Article: not found

              Psychosocial issues in spinal cord injury: a review.

              Review. To review literature on subjective well-being (SWB; mental health and life satisfaction) and on psychological and social support factors associated with these outcomes in people with spinal cord injury (SCI), in order to identify gaps in scientific knowledge and recommend research priorities. Non applicable. Narrative review of the SCI literature on life satisfaction and mental health (depression, anxiety, post-traumatic stress syndrome) outcomes in people with SCI. Further, reviews were performed of the SCI literature on psychological and social support variables associated with SWB and on psychosocial interventions aimed to improve SWB. People with SCI experience, on average, higher levels of distress and lower levels of life satisfaction compared with the general population. Individual differences, however, are large, and most people with SCI adapt well to their condition. A set of psychological and social support factors is strongly related to SWB. Intervention studies on cognitive behavioural therapy or coping effectiveness training to improve SWB show promising results, but suffer from methodological weaknesses (for example, lack of randomization and small sample size). There is a need for cohort studies with sufficient sample size, which include people early after onset of SCI in order to enhance our understanding of the course of mental health and well-being after SCI. Cohort studies could also identify which people are at risk for long-term impairment of SWB. Finally, intervention studies on psychosocial interventions are needed to identify which interventions may improve SWB of people with SCI.
                Bookmark

                Author and article information

                Journal
                J Rehabil Med
                JRM
                Journal of Rehabilitation Medicine
                Foundation for Rehabilitation Information
                1650-1977
                1651-2081
                29 June 2021
                2021
                : 53
                : 7
                : 2813
                Affiliations
                [1 ]Clinic of Physical Medicine and Rehabilitation, Department of Spinal Cord Injuries
                [2 ]Department of Medical Quality Registries, St Olavs Hospital, Trondheim University Hospital
                [3 ]Department of Public Health and Nursing, Norwegian University of Science and Technology, Trondheim, Norway
                [4 ]Center of Excellence for Rehabilitation Medicine, Brain Centre Rudolf Magnus, University Medical Centre Utrecht, University Utrecht and De Hoogstraat Rehabilitation, Utrecht
                [5 ]University of Groningen, University Medical Centre Groningen, Centre for Rehabilitation, Groningen, The Netherlands
                [6 ]Department for Spinal Cord Injuries, Copenhagen University Hospital, Rigshospitalet, and Institute for Clinical Medicine, University of Copenhagen, Denmark
                [7 ]User Representative, Skogn
                [8 ]User Representative, Kongsvinger, Norway
                Author notes
                Correspondence address: Annette Halvorsen, Clinic of Physical Medicine and Rehabilitation, Department of Spinal Cord Injuries, St Olavs hospital, Trondheim University Hospital, Trondheim, Norway. E-mail: Annette.Halvorsen@ 123456stolav.no
                Article
                JRM-53-7-2813
                10.2340/16501977-2858
                8638721
                34232321
                e34b2d0a-a52e-4578-9f27-ceb122dc5a83
                © 2021 Journal of Rehabilitation Medicine

                This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

                History
                : 21 June 2021
                Categories
                Original Report

                spinal cord injuries,participation,quality of life,norway

                Comments

                Comment on this article

                scite_
                0
                0
                0
                0
                Smart Citations
                0
                0
                0
                0
                Citing PublicationsSupportingMentioningContrasting
                View Citations

                See how this article has been cited at scite.ai

                scite shows how a scientific paper has been cited by providing the context of the citation, a classification describing whether it supports, mentions, or contrasts the cited claim, and a label indicating in which section the citation was made.

                Similar content166

                Cited by8

                Most referenced authors603