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      End-stage care for children after heart transplant

      brief-report

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          Abstract

          Heart transplant is performed annually in over 600 children worldwide to treat life-limiting cardiac disease. Conversations regarding waitlist mortality, post-transplant morbidity and mortality, and goals of care are commonplace pre-transplant. However, there is a void of information and resources for providers and families when end-stage disease recurs in the long-term transplant recipient. The purpose of this review is to discuss the care of the pediatric heart transplant recipient with chronic cardiac dysfunction occurring years after a successful transplant. This includes a need for transplant providers to have education and training related both to palliative care and medical ethics to improve shared decision making with patients and families.

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          Most cited references17

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          2022 AHA/ACC/HFSA Guideline for the Management of Heart Failure: A Report of the American College of Cardiology/American Heart Association Joint Committee on Clinical Practice Guidelines

          The “2022 AHA/ACC/HFSA Guideline for the Management of Heart Failure” replaces the “2013 ACCF/AHA Guideline for the Management of Heart Failure” and the “2017 ACC/AHA/HFSA Focused Update of the 2013 ACCF/AHA Guideline for the Management of Heart Failure.” The 2022 guideline is intended to provide patient-centric recommendations for clinicians to prevent, diagnose, and manage patients with heart failure. A comprehensive literature search was conducted from May 2020 to December 2020, encompassing studies, reviews, and other evidence conducted on human subjects that were published in English from MEDLINE (PubMed), EMBASE, the Cochrane Collaboration, the Agency for Healthcare Research and Quality, and other relevant databases. Additional relevant clinical trials and research studies, published through September 2021, were also considered. This guideline was harmonized with other American Heart Association/American College of Cardiology guidelines published through December 2021. Heart failure remains a leading cause of morbidity and mortality globally. The 2022 heart failure guideline provides recommendations based on contemporary evidence for the treatment of these patients. The recommendations present an evidence-based approach to managing patients with heart failure, with the intent to improve quality of care and align with patients’ interests. Many recommendations from the earlier heart failure guidelines have been updated with new evidence, and new recommendations have been created when supported by published data. Value statements are provided for certain treatments with high-quality published economic analyses.
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            The 2016 International Society for Heart Lung Transplantation listing criteria for heart transplantation: A 10-year update

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              Burnout and posttraumatic stress in paediatric critical care personnel: Prediction from resilience and coping styles

              Our aims were (1) to explore the prevalence of burnout syndrome (BOS) and posttraumatic stress disorder (PTSD) in a sample of Spanish staff working in the paediatric intensive care unit (PICU) and compare these rates with a sample of general paediatric staff and (2) to explore how resilience, coping strategies, and professional and demographic variables influence BOS and PTSD.
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                Author and article information

                Contributors
                Journal
                Front Transplant
                Front Transplant
                Front. Transplant.
                Frontiers in Transplantation
                Frontiers Media S.A.
                2813-2440
                27 June 2023
                2023
                : 2
                : 1221166
                Affiliations
                Department of Pediatrics, Children’s Hospital Colorado, University of Colorado , Aurora, CO, United States
                Author notes

                Edited by: Estela Azeka, University of São Paulo, Brazil

                Reviewed by: Theresa Gelzinis, University of Pittsburgh, United States

                [* ] Correspondence: Melanie D. Everitt melanie.everitt@ 123456childrenscolorado.org
                Article
                10.3389/frtra.2023.1221166
                11235272
                38993880
                de55387d-c610-4ae7-bde5-d3aaebacc314
                © 2023 Everitt.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

                History
                : 11 May 2023
                : 12 June 2023
                Page count
                Figures: 2, Tables: 0, Equations: 0, References: 18, Pages: 0, Words: 0
                Categories
                Transplantation
                Perspective
                Custom metadata
                Thoracic Transplantation

                heart tranplantation,pediatic,chronic graft dysfunction,retransplant,chronic kidney disease

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