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      College Students with Inflammatory Bowel Disease: A Qualitative Study of Challenges Associated with College Transition and Self-Care

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          Abstract

          Introduction: The social impact of inflammatory bowel disease (IBD) on student transition to college is significant, yet poorly understood.

          Methods: Two 90-min focus groups (FGs) were conducted with eight student-patients with IBD. Reflective journals were used to corroborate, elaborate, or challenge emergent FG findings.

          Results: Six themes emerged: (1) transitioning to college, (2) interacting with physicians, (3) affecting social life, (4) managing the disease by yourself and through support, (5) coping strategies, and (6) facing disease challenges. These themes remained relevant in the reflective writings. Analysis of serial journal entries showed that students' social life and engagement in coursework was affected 66% and 54% of the time, respectively.

          Conclusion: Our findings offer guidance for improving students' college success, quality of care, and enhancing physician–patient interactions. Students with IBD have a disability that may not be obvious or visible. They require specific support to help them transition and succeed in college.

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          The prevalence and geographic distribution of Crohn's disease and ulcerative colitis in the United States.

          Michael D. Kappelman, Sheryl L. Rifas-Shiman, Ken Kleinman … (2007)
          Previous US studies of inflammatory bowel disease (IBD) prevalence have sampled small, geographically restricted populations and may not be generalizable to the entire nation. This study sought to determine the prevalence of Crohn's disease (CD) and ulcerative colitis (UC) in a large national sample and to compare the prevalence across geographic regions and other sociodemographic characteristics. We analyzed the health insurance claims for 9 million Americans, pooled from 87 health plans in 33 states, and identified cases of CD and UC using diagnosis codes. Prevalence was determined by dividing the number of cases by the number of persons enrolled for 2 years. Logistic regression was used to compare prevalence estimates by geographic region, age, sex, and insurance type (Medicaid vs commercial). The prevalence of CD and UC in children younger than 20 years was 43 (95% confidence interval [CI], 40-45) and 28 (95% CI, 26-30) per 100,000, respectively. In adults, the prevalence of CD and UC was 201 (95% CI, 197-204) and 238 (95% CI, 234-241), respectively. The prevalence of both conditions was lower in the South, compared with the Northeast, Midwest, and West. IBD appears to be more common in commercially insured individuals, compared with those insured by Medicaid. This estimation of the prevalence of IBD in the US should help quantify the overall burden of disease and inform the planning of appropriate clinical services.
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            Illness perceptions in IBD influence psychological status, sexual health and satisfaction, body image and relational functioning: A preliminary exploration using Structural Equation Modeling.

            S Knowles, Gregory Gass, F Macrae (2013)
            This study aimed to characterize the relationships between illness perceptions, body image and self-consciousness, sexual health (sexual problems and sexual satisfaction), anxiety and depression, and marital and family functioning in patients with IBD.
            Article 0 comments Cited 32 times – based on 0 reviews     Review now
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              Body image dissatisfaction: clinical features, and psychosocial disability in inflammatory bowel disease.

              Edel McDermott, Georgina Mullen, Jenny Moloney … (2015)
              Body image refers to a person's sense of their physical appearance and body function. A negative body image self-evaluation may result in psychosocial dysfunction. Crohn's disease and ulcerative colitis are associated with disabling features, and body image dissatisfaction is a concern for many patients with inflammatory bowel disease (IBD). However, no study has assessed body image and its comorbidities in patients with IBD using validated instruments. Our aim was to explore body image dissatisfaction in patients with IBD and assess its relationship with biological and psychosocial variables.
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                Author and article information

                Journal
                Journal ID (nlm-ta): Health Equity
                Journal ID (iso-abbrev): Health Equity
                Journal ID (publisher-id): heq
                Title: Health Equity
                Publisher: Mary Ann Liebert, Inc., publishers (140 Huguenot Street, 3rd FloorNew Rochelle, NY 10801USA )
                ISSN (Electronic): 2473-1242
                Publication date (Electronic): May 2020
                Publication date Collection: 2020
                Publication date PMC-release: May 2020
                Volume: 4
                Issue: 1
                Pages: 190-197
                Affiliations
                [ 1 ]Division of Gastroenterology, Department of Medicine, College of Medicine, University of Florida, Gainesville, Florida, USA.
                [ 2 ]Division of General Medicine, Department of Medicine, College of Medicine, University of Florida, Gainesville, Florida, USA.
                [ 3 ]Educational Development and Evaluation, CTSI, University of Florida, Gainesville, Florida, USA.
                Author notes
                [*] [ * ]Address correspondence to: Ellen M. Zimmermann, MD, Division of Gastroenterology, Department of Medicine, College of Medicine, University of Florida, 1329 SW 16th Street, Suite 5251, Gainesville, FL 32608, USA ezimmer2@ 123456ufl.edu
                Article
                Publisher ID: 10.1089/heq.2019.0053
                DOI: 10.1089/heq.2019.0053
                PMC ID: 7241053
                PubMed ID: 32440616
                SO-VID: caee7f2f-c243-4802-9ef0-9d57ca0bb836
                Copyright © © Naueen A. Chaudhry et al. 2020 Published by Mary Ann Liebert, Inc.
                License:

                This Open Access article is distributed under the terms of the Creative Commons License ( http://creativecommons.org/licenses/by/4.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

                History
                Date accepted : Accepted April 22, 2020
                Page count
                Figures: 1, Tables: 3, References: 16, Pages: 8
                Categories
                Subject: Original Article

                Keywords: college students,college transition,focus group,inflammatory bowel disease
                Data availability:
                Keywords: college students, college transition, focus group, inflammatory bowel disease

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