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      When citizen science meets radon building diagnosis: Synthesis of a French pilot project developed in the framework of the European RadoNorm research project

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          Abstract

          As part of the European RadoNorm research project, citizen science pilot projects focusing on the management of radon risk in houses have been implemented in four countries. This article describes the methodological basis, the development and the results of the French pilot project. Building on an initial review of existing literature, the pilot project aims to frame a ‘participatory approach’ aligned with the standards and recognized practices of citizen science. Particular attention was given to the management of data and the inclusion of ethical considerations.

          The focal point of the project was the process of radon building diagnosis which is supposed to be carried out whenever (high) radon concentrations are measured and should be prerequisite to mitigation works. As experience shows, however, this diagnosis is hardly implemented in France. To help remedy this situation, the pilot project recruited citizens already aware about radon from Pays Vesoul Val-de-Saône (East of France) to test an existing online self-evaluation guide for radon diagnosis, report on their operational experience and meet with radon/building experts. This enabled citizens to contribute to improvements in form and content to the guide and to ensure that it would be better fit for purpose. Comparison of the guide with experts’ practices offered additional perspectives on what building diagnosis should entail.

          The pilot project produced rich and high-quality data that will nurture the evolution of the guide. The project demonstrated both the viability and the utility of applying the citizen science approach to radon post-measurement phases, with measurable benefits in bridging knowledge gaps and in encouraging behavioural changes. The results of using a citizen science approach in the field of radon management and research are encouraging, and they far outweigh the challenges involved in the implementation.

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          Most cited references46

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          Citizen Science and Volunteered Geographic Information: Overview and Typology of Participation

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            Radon in homes and risk of lung cancer: collaborative analysis of individual data from 13 European case-control studies.

            To determine the risk of lung cancer associated with exposure at home to the radioactive disintegration products of naturally occurring radon gas. Collaborative analysis of individual data from 13 case-control studies of residential radon and lung cancer. Nine European countries. 7148 cases of lung cancer and 14,208 controls. Relative risks of lung cancer and radon gas concentrations in homes inhabited during the previous 5-34 years measured in becquerels (radon disintegrations per second) per cubic metre (Bq/m3) of household air. The mean measured radon concentration in homes of people in the control group was 97 Bq/m3, with 11% measuring > 200 and 4% measuring > 400 Bq/m3. For cases of lung cancer the mean concentration was 104 Bq/m3. The risk of lung cancer increased by 8.4% (95% confidence interval 3.0% to 15.8%) per 100 Bq/m3 increase in measured radon (P = 0.0007). This corresponds to an increase of 16% (5% to 31%) per 100 Bq/m3 increase in usual radon--that is, after correction for the dilution caused by random uncertainties in measuring radon concentrations. The dose-response relation seemed to be linear with no threshold and remained significant (P = 0.04) in analyses limited to individuals from homes with measured radon < 200 Bq/m3. The proportionate excess risk did not differ significantly with study, age, sex, or smoking. In the absence of other causes of death, the absolute risks of lung cancer by age 75 years at usual radon concentrations of 0, 100, and 400 Bq/m3 would be about 0.4%, 0.5%, and 0.7%, respectively, for lifelong non-smokers, and about 25 times greater (10%, 12%, and 16%) for cigarette smokers. Collectively, though not separately, these studies show appreciable hazards from residential radon, particularly for smokers and recent ex-smokers, and indicate that it is responsible for about 2% of all deaths from cancer in Europe.
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              The patient-as-partner approach in health care: a conceptual framework for a necessary transition.

              The prevalence of chronic diseases today calls for new ways of working with patients to manage their care. Although patient-centered approaches have contributed to significant advances in care and to treatments that more fully respect patients' preferences, values, and personal experiences, the reality is that health care professionals still hold a monopoly on the role of healer. Patients live with their conditions every day and are experts when it comes to their own experiences of illness; this expertise should be welcomed, valued, and fostered by other members of the care team. The patient-as-partner approach embodies the ideal of making the patient a bona fide member of the health care team, a true partner in his or her care. Since 2010, the University of Montreal, through the Direction of Collaboration and Patient Partnership, has embraced this approach. Patients are not only active members of their own health care team but also are involved in research and provide valuable training to health sciences students. Including patients as full partners in the health care team entails a significant shift in both the medical practice and medical education cultures. In this perspective, the authors describe this innovative approach to patient care, including the conceptual framework used in its development and the main achievements of patient partners in education, health care, and research.
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                Author and article information

                Contributors
                Role: ConceptualizationRole: Data CurationRole: MethodologyRole: Writing – Original Draft Preparation
                Role: ConceptualizationRole: InvestigationRole: Writing – Review & Editing
                Role: ResourcesRole: Writing – Review & Editing
                Role: InvestigationRole: ResourcesRole: Writing – Review & Editing
                Role: Project AdministrationRole: SupervisionRole: Writing – Review & Editing
                Journal
                Open Res Eur
                Open Res Eur
                Open Research Europe
                F1000 Research Limited (London, UK )
                2732-5121
                8 August 2023
                2023
                : 3
                : 106
                Affiliations
                [1 ]Nuclear Protection Evaluation Centre (CEPN), Fontenay-aux-Roses, 92260, France
                [2 ]Centre for Studies and Expertise on Risks, the Environment, Mobility and Urban Planning (Cerema), Autun, 71400, France
                [3 ]Transform Institute, Romand Centre for Indoor Air Quality and Radon (croqAIR); School of Engineering and Architecture of Fribourg (HEIA-FR), HES-SO University of Applied Sciences and Arts of Western Switzerland, Fribourg, 1700, Switzerland
                [4 ]Pays Vesoul Val-de-Saône, Vesoul, 70007, France
                [1 ]Robson DNA Science Centre, Department of Biochemistry and Molecular Biology, Charbonneau Cancer Institute, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
                [1 ]Federal Agency for Nuclear Control, Brussels, Belgium
                [1 ]Robson DNA Science Centre, Department of Biochemistry and Molecular Biology, Charbonneau Cancer Institute, Cumming School of Medicine, University of Calgary, Calgary, Alberta, Canada
                92260, Nuclear Protection Evaluation Centre (CEPN), Fontenay-aux-Roses, Île de France, France
                [1 ]Federal Agency for Nuclear Control, Brussels, Belgium
                92260, Nuclear Protection Evaluation Centre (CEPN), Fontenay-aux-Roses, Île de France, France
                Author notes

                No competing interests were disclosed.

                Competing interests: No competing interests were disclosed.

                Competing interests: No competing interests were disclosed.

                Competing interests: No competing interests were disclosed.

                Competing interests: No competing interests were disclosed.

                Competing interests: No competing interests were disclosed.

                Competing interests: No competing interests were disclosed.

                Author information
                https://orcid.org/0000-0003-0727-500X
                https://orcid.org/0000-0003-4699-0196
                https://orcid.org/0000-0002-4446-1613
                Article
                10.12688/openreseurope.15968.2
                10511845
                37744279
                a12129b3-81ff-4ec2-8aa9-5c2a5f1c1c8b
                Copyright: © 2023 Andresz S et al.

                This is an open access article distributed under the terms of the Creative Commons Attribution Licence, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

                History
                : 28 July 2023
                Funding
                Funded by: Horizon 2020 Framework Programme
                Award ID: 900009
                This project has received funding from the Euratom research and training programme 2019-2020 under grant agreement No 900009.
                Categories
                Research Article
                Articles

                radon at home,radonorm,citizen science,radiation protection,radon diagnosis,ethics

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