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      A protocol for co-creating research project lay summaries with stakeholders: guideline development for Canada’s AGE-WELL network

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          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          Background

          Funding bodies increasingly require researchers to write lay summaries to communicate projects’ real-world relevance to the public in an accessible way. However, research proposals and findings are generally not easily readable or understandable by non-specialist readers. Many researchers find writing lay summaries difficult because they typically write for fellow subject specialists or academics rather than the general public or a non-specialist audience. The primary objective of our project is to develop guidelines for researchers in Canada’s AGE-WELL Network of Centres of Excellence, and ultimately various other disciplines, sectors, and institutions, to co-create lay summaries of research projects with stakeholders. To begin, we produced a protocol for co-creating a lay summary based on workshops we organized and facilitated for an AGE-WELL researcher. This paper presents the lay summary co-creation protocol that AGE-WELL researchers will be invited to use.

          Methods

          Eligible participants in this project will be 24 AgeTech project researchers who are funded by the AGE-WELL network in its Core Research Program 2020. If they agree to participate in this project, we will invite them to use our protocol to co-produce a lay summary of their respective projects with stakeholders. The protocol comprises six steps: Investigate principles of writing a good lay summary, identify the target readership, identify stakeholders to collaborate with, recruit the identified stakeholders to work on a lay summary, prepare for workshop sessions, and execute the sessions. To help participants through the process, we will provide them with a guide to developing an accessible, readable research lay summary, help them make decisions, and host, and facilitate if needed, their lay summary co-creation workshops.

          Discussion

          Public-facing research outputs, including lay summaries, are increasingly important knowledge translation strategies to promote the impact of research on real-world issues. To produce lay summaries that include information that will interest a non-specialist readership and that are written in accessible language, stakeholder engagement is key. Furthermore, both researchers and stakeholders benefit by participating in the co-creation process. We hope the protocol helps researchers collaborate with stakeholders effectively to co-produce lay summaries that meet the needs of both the public and project funders.

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          Most cited references12

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          Evaluation of interdisciplinary and transdisciplinary research: a literature review.

          Interdisciplinarity has become a widespread mantra for research, accompanied by a growing body of publications. Evaluation, however, remains one of the least-understood aspects. This review of interdisciplinary and transdisciplinary research evaluation categorizes lessons from the emergent international literature on the topic reviewed in 2007. It defines parallels between research performance and evaluation, presents seven generic principles for evaluation, and reflects in the conclusion on changing connotations of the underlying concepts of discipline, peer, and measurement. Interdisciplinary and transdisciplinary research performance and evaluation are both generative processes of harvesting, capitalizing, and leveraging multiple expertise. Individual standards must be calibrated, and tensions among different disciplinary, professional, and interdisciplinary approaches carefully managed in balancing acts that require negotiation and compromise. Readiness levels are strengthened by antecedent conditions that are flexible enough to allow multiple pathways of integration and collaboration. In both cases, as well, new epistemic communities must be constructed and new cultures of evidence produced. The multidisciplinary-interdisciplinary-transdisciplinary research environment spans a wide range of contexts. Yet seven generic principles provide a coherent framework for thinking about evaluation: (1) variability of goals; (2) variability of criteria and indicators; (3) leveraging of integration; (4) interaction of social and cognitive factors in collaboration; (5) management, leadership, and coaching; (6) iteration in a comprehensive and transparent system; and (7) effectiveness and impact.
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            Dementia-friendly communities: challenges and strategies for achieving stakeholder involvement.

            Dementia-friendly communities (DFCs) are a UK policy initiative that aims to enable people with dementia to feel supported and included within their local community. Current approaches to DFC creation rely on stakeholder involvement, often requiring volunteer assistance. There is though a lack of evidence that examines the reality of achieving this. This paper critically assesses the challenges and strategies for achieving stakeholder involvement in DFCs. The evidence base is drawn from an inter-agency project funded by the National Health Service in the South of England where seven DFCs were developed by steering group partners and four part-time project workers (PWs). Data from the independent evaluation undertaken in the first year (2013-2014) of the project were analysed: 14 semi-structured interviews and a focus group examined PWs' experiences; while progress and key milestones are determined from monthly progress forms, good news stories, locality steering group minutes and press releases. Analysis was undertaken using a directed content analysis method, whereby data content for each locality was matched to the analytical framework that was drawn from Alzheimer's Society guidance. Challenges to achieving stakeholder involvement were identified as: establishing networks and including people representative of the local community; involving people affected by dementia; and gaining commitment from organisations. Strategies for achieving stakeholder involvement were recognised as: a sustainable approach; spreading the word; and sharing of ideas. By highlighting these challenges and the approaches that have been used within communities to overcome them, these findings form the foundation for the creation of DFC initiatives that will become embedded within communities. Stakeholder involvement is unpredictable and changeable; therefore, reliance on this approach questions the long-term sustainability of DFCs, and must be considered in future policies designed to enhance quality of life for people affected by dementia.
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              Lay summaries of open access journal articles: engaging with the general public on medical research

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                Author and article information

                Contributors
                mineko_wada@sfu.ca
                Journal
                Res Involv Engagem
                Res Involv Engagem
                Research Involvement and Engagement
                BioMed Central (London )
                2056-7529
                8 May 2020
                8 May 2020
                2020
                : 6
                : 22
                Affiliations
                [1 ]GRID grid.61971.38, ISNI 0000 0004 1936 7494, Science and Technology for Aging Research (STAR) Institute, , Simon Fraser University, ; #2800 – 515 West Hastings St., Vancouver, BC V6B 5K3 Canada
                [2 ]GRID grid.8241.f, ISNI 0000 0004 0397 2876, School of Nursing and Health Sciences, , University of Dundee, ; 11 Airlie Place, Dundee, Scotland DD1 4HJ UK
                [3 ]411 Seniors Centre Society, #7th Floor – 333 Terminal Avenue, Vancouver, BC V6A 4C1 Canada
                [4 ]GRID grid.61971.38, ISNI 0000 0004 1936 7494, Department of Gerontology, , Simon Fraser University, ; #2800 – 515 West Hastings St., Vancouver, BC V6B 5K3 Canada
                [5 ]GRID grid.4991.5, ISNI 0000 0004 1936 8948, Oxford Institute of Population Ageing, , University of Oxford, ; 66 Banbury Road, Oxford, OX2 6PR UK
                Article
                197
                10.1186/s40900-020-00197-3
                7210667
                32419955
                78005afc-b9db-459c-a998-67f932966372
                © The Author(s) 2020

                Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver ( http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.

                History
                : 26 December 2019
                : 16 April 2020
                Funding
                Funded by: FundRef http://dx.doi.org/10.13039/100011047, AGE-WELL;
                Award ID: N/A
                Award Recipient :
                Categories
                Protocol
                Custom metadata
                © The Author(s) 2020

                guidelines,lay summary,co-creation,collaborative team research,stakeholder involvement

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