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      Individual-level changes in religious/spiritual beliefs and behaviors over three decades in the parental generation of the ALSPAC cohort, UK

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          Abstract

          Longitudinal data on religious/spiritual beliefs and behaviors (RSBB) are essential for understanding both how religion shapes our lives and the factors determining religiosity. Despite this importance, there are few longitudinal studies with detailed and repeated RSBB data. Using data spanning nearly 30 years from the parental generation of the Avon Longitudinal Study of Parents and Children (ALSPAC) based in the Southwest of England, we describe individual-level changes in various aspects of self-reported RSBB (religious belief, affiliation, and attendance, among others) measured on four occasions (pregnancy, plus 5, 9, and 28 years post-partum; approx. 3600 mothers and 1200 partners have data at all four time-points). Although RSBBs were generally consistent over time, a shift towards non-religiosity was observed; exceptions included Roman Catholic affiliation, which was remarkably stable over three decades, and religious attendance, which increased from pregnancy to 5 years, before declining at 28 years. Most changes in RSBB were minor, e.g., between “yes” and “not sure” regarding religious belief, rather than between “yes” and “no.” We also provide a simple illustrative example of how these longitudinal data can be analyzed. In addition to describing these longitudinal patterns, this paper will help inform future research using ALSPAC’s longitudinal RSBB data.

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          Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.

          Research electronic data capture (REDCap) is a novel workflow methodology and software solution designed for rapid development and deployment of electronic data capture tools to support clinical and translational research. We present: (1) a brief description of the REDCap metadata-driven software toolset; (2) detail concerning the capture and use of study-related metadata from scientific research teams; (3) measures of impact for REDCap; (4) details concerning a consortium network of domestic and international institutions collaborating on the project; and (5) strengths and limitations of the REDCap system. REDCap is currently supporting 286 translational research projects in a growing collaborative network including 27 active partner institutions.
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            Cohort Profile: The ‘Children of the 90s’—the index offspring of the Avon Longitudinal Study of Parents and Children

            The Avon Longitudinal Study of Parents and Children (ALSPAC) is a transgenerational prospective observational study investigating influences on health and development across the life course. It considers multiple genetic, epigenetic, biological, psychological, social and other environmental exposures in relation to a similarly diverse range of health, social and developmental outcomes. Recruitment sought to enrol pregnant women in the Bristol area of the UK during 1990–92; this was extended to include additional children eligible using the original enrolment definition up to the age of 18 years. The children from 14 541 pregnancies were recruited in 1990–92, increasing to 15 247 pregnancies by the age of 18 years. This cohort profile describes the index children of these pregnancies. Follow-up includes 59 questionnaires (4 weeks–18 years of age) and 9 clinical assessment visits (7–17 years of age). The resource comprises a wide range of phenotypic and environmental measures in addition to biological samples, genetic (DNA on 11 343 children, genome-wide data on 8365 children, complete genome sequencing on 2000 children) and epigenetic (methylation sampling on 1000 children) information and linkage to health and administrative records. Data access is described in this article and is currently set up as a supported access resource. To date, over 700 peer-reviewed articles have been published using ALSPAC data.
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              Cohort Profile: The Avon Longitudinal Study of Parents and Children: ALSPAC mothers cohort

              Summary The Avon Longitudinal Study of Children and Parents (ALSPAC) was established to understand how genetic and environmental characteristics influence health and development in parents and children. All pregnant women resident in a defined area in the South West of England, with an expected date of delivery between 1st April 1991 and 31st December 1992, were eligible and 13 761 women (contributing 13 867 pregnancies) were recruited. These women have been followed over the last 19–22 years and have completed up to 20 questionnaires, have had detailed data abstracted from their medical records and have information on any cancer diagnoses and deaths through record linkage. A follow-up assessment was completed 17–18 years postnatal at which anthropometry, blood pressure, fat, lean and bone mass and carotid intima media thickness were assessed, and a fasting blood sample taken. The second follow-up clinic, which additionally measures cognitive function, physical capability, physical activity (with accelerometer) and wrist bone architecture, is underway and two further assessments with similar measurements will take place over the next 5 years. There is a detailed biobank that includes DNA, with genome-wide data available on >10 000, stored serum and plasma taken repeatedly since pregnancy and other samples; a wide range of data on completed biospecimen assays are available. Details of how to access these data are provided in this cohort profile.
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                Author and article information

                Journal
                101572496
                Religion Brain Behav
                Religion Brain Behav
                Religion, brain & behavior
                2153-599X
                2153-5981
                16 July 2024
                2 October 2023
                6 January 2023
                22 July 2024
                : 13
                : 4
                : 379-398
                Affiliations
                [a ]Centre for Academic Child Health, Population Health Sciences, Bristol Medical School, University of Bristol ( https://ror.org/0524sp257) , Bristol, UK
                [b ]MRC Integrative Epidemiology Unit ( https://ror.org/030qtrs05) , University of Bristol ( https://ror.org/0524sp257) , Bristol, UK
                [c ]Population Health Sciences, Bristol Medical School, University of Bristol ( https://ror.org/0524sp257) , Bristol, UK
                Author notes
                CONTACT Daniel Major-Smith dan.smith@ 123456bristol.ac.uk
                Author information
                http://orcid.org/0000-0001-6467-2023
                http://orcid.org/0000-0003-0463-4062
                http://orcid.org/0000-0002-9935-732X
                http://orcid.org/0000-0002-0432-0357
                http://orcid.org/0000-0002-9965-9133
                http://orcid.org/0000-0003-2826-3307
                http://orcid.org/0000-0002-0602-1983
                Article
                EMS197537
                10.1080/2153599X.2022.2156584
                7616281
                39040912
                6a57e3a7-455f-45ce-b648-3d51b9a4f138

                This work is licensed under a BY 4.0 International license.

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                alspac,religion,longitudinal,cohort study,descriptive
                alspac, religion, longitudinal, cohort study, descriptive

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