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      Efectividad de los programas psicoeducativos dirigidos a cuidadores principales de familiares con enfermedad de Alzheimer Translated title: Effectiveness of psychoeducational programs aimed at main caregivers of relatives with Alzheimer’s disease

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          Abstract

          Resumen: Objetivos: El presente estudio se plantea describir la efectividad de los programas psicoeducativos en la disminución de la sobrecarga y la sintomatología derivada de la misma en cuidadores principales de familiares con enfermedad de Alzheimer. Metodología: Se ha llevado a cabo un proceso de revisión bibliográfica en diferentes bases de datos electrónicas nacionales (IME, CUIDEN) e internacionales (CINAHL, COCHRANE y MEDLINE), que se ha completado con una búsqueda manual en editoriales electrónicas, guías de práctica clínica y motores de búsqueda y con una búsqueda secundaria de artículos. Se han admitido publicaciones realizadas entre enero de 2000 y febrero de 2014. Resultados: La bibliografía consultada ofrece resultados poco claros. Aunque existe un número importante de estudios en los que las intervenciones psicoeducativas han mostrado resultados positivos, en muchos de los casos no se obtienen los efectos esperados. Conclusiones: Se considera necesario profundizar en el desarrollo de nuevos programas psicoeducativos, superando las limitaciones metodológicas encontradas.

          Translated abstract

          Abstract: Objectives: The present study considers describing the effectiveness of psychoeducational programs in the reduction of the overburden and the symptomatology derived from it in primary caregivers of relatives with Alzheimer’s disease. Methodology: A bibliographic review process has been carried out in different national (IME, CUIDEN) and international (CINAHL, COCHRANE and MEDLINE) electronic databases, completing it with a manual search in electronic editorials, clinical practice guides and search engines, and with a secondary search of articles. Publications published between January 2000 and February 2014 have been accepted. Results: The consulted literature offers unclear results; although there are a number of studies in which psychoeducational interventions have shown positive results, in many cases the expected effects are not obtained. Conclusions: It is considered necessary to delve into the development of new psychoeducational programs, overcoming the methodological limitations that have been encountered.

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          Effectiveness of a psychoeducational intervention program in the reduction of caregiver burden in Alzheimer's disease patients' caregivers.

          Caregivers of patients with Alzheimer's disease (AD) experience physical and psychological stress due to the caring experience. This study evaluated the benefits of a Psychoeducational Intervention Program (PIP) on caregiver burden in southern Europe. A multicentre, prospective, randomised study was conducted. One hundred and fifteen caregivers of patients with clinical diagnosis of AD (DSM-IV-TR criteria, mini-mental score = 10-26) and functional impairment (Lawton and Brody Scale and Katz Index) were recruited. Caregivers were randomised to receive either PIP (IG: intervention group, n = 60) or standard care (CG: control group, n = 55). PIP consisted of eight individual sessions over 4 months for teaching strategies for confronting problems of AD patient care. Caregivers' stress, quality of life and perceived health were measured using validated scales (Zarit, SF-36, GHQ-28, respectively) at baseline and after 4 and 10-months follow-up. Mean change in caregiver burden (Zarit baseline-Zarit final scores) was statistically significant (p = 0.0083) showing an improvement in the IG (-8.09 points) and a worsening in the CG (2.08 points). The IG showed significant improvements in all the well-being perception areas measured by the SF-36 and a significantly lower score in the GHQ-28 (p = 0.0004). 97.7% of caregivers and 88.6% of therapists considered PIP 'useful/very useful' at 4 months (the end of PIP) whereas at 10 months the estimates were 93.2% and 86.3%, respectively. Psychosocial training of caregivers can minimise caregiver distress and help them to develop problem-solving strategies. A PIP improves quality of life and the perceived health of caregivers of patients with AD. (c) 2008 John Wiley & Sons, Ltd.
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            Do patients diagnosed with Alzheimer's disease benefit from a psycho-educational programme for family caregivers? A randomised controlled study.

            The Aide dans la Maladie d'Alzheimer (AIDMA) study was conducted to determine whether a psycho-educational programme (PEP) for primary caregivers in addition to standard anti-dementia drugs for patients improves caregivers' psychological condition and patients' activities of daily life. Multicentre randomised controlled intervention trial. One hundred and sixty-seven dyads 'patient-caregiver' were recruited from 15 French memory clinics and randomised in two parallel groups. The intervention group was offered the PEP in 12 group sessions for 3 months. The control group had usual care. Patients in both groups with mild to moderate Alzheimer's disease (AD) were diagnosed and treated with pharmacotherapy. Patients' primary efficacy variable was functional status assessed with the Disability Assessment Scale for Dementia (DAD) scale. Alzheimer Disease Assessment Scale (ADAS-Cog) and Neuropsychiatric Inventory (NPI) were secondary criteria. Caregivers' first outcome measure was depressive symptoms assessed with the Montgomery and Asberg Depression Rating Scale (MADRS) scale. Zarit scale, Sense of Competence Questionnaire (SCQ) and Visual Analogue Scales (VAS) were secondary criteria. Assessment was done at baseline, 3 months (M3, end of intervention) and 6 months (M6). Patients' stabilisation was observed in both groups. In caregivers, significant improvement in disease understanding at M3 (p = 0.007) and M6 (p = 0.0001) and in ability to cope with care-recipients' disease at M6 (0.02) was evidenced. The PEP had no additional impact on patients but carers developed more effective disease understanding and ability of coping. Results support the idea that the PEP although improving caregivers' condition is not sufficient to improve patients' activities in daily life which requires additional individually tailored interventions provided by professionals. Copyright © 2010 John Wiley & Sons, Ltd.
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              Necesidades de aprendizaje del cuidador principal para el tratamiento del anciano con demencia tipo Alzheimer

              El cuidado de la persona con demencia es un proceso difícil que requiere de progresivas obligaciones, resultado de la dependencia de una persona enferma, representada básicamente por la figura del cuidador. Sujetos que asumen su responsabilidad, a pesar de sus insuficientes juicios. Identificar necesidades de conocimientos, limitaciones, e incapacidades para la ejecución de obligadas técnicas, así como su disposición para aprenderlas, conformaron objetivos de la investigación, a través de un estudio descriptivo prospectivo en el periodo de Septiembre del 2007 a Febrero del 2008, en áreas del policlínico "Carlos Manuel Portuondo", Marianao. Eligiéndose una población de 25 Cuidadores Principales, los que son indagados, con cuestionario diagnostico de conocimiento, recogiéndose como aspectos significativos: limitaciones para la ejecución de determinadas practicas de importancia, desconocimiento sobre la enfermedad y su manejo en sus distintos momentos. Aprobando su disposición para capacitarse, reconociendo al profesional de enfermería como primer enlace revelador en el cuidado de su familiar.
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                Author and article information

                Contributors
                Role: ND
                Role: ND
                Journal
                geroko
                Gerokomos
                Gerokomos
                Sociedad Española de Enfermería Geriátrica y gerontológica (Barcelona, Barcelona, Spain )
                1134-928X
                2018
                : 29
                : 1
                : 22-28
                Affiliations
                [1] Vitoria-Gasteiz Álava orgnameHospital Universitario de Álava España
                Article
                S1134-928X2018000100022
                67221783-cb0d-49a6-bc6b-1a8b0e274e0f

                This work is licensed under a Creative Commons Attribution-NonCommercial-ShareAlike 4.0 International License.

                History
                : 22 March 2017
                : 18 May 2017
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 29, Pages: 7
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                SciELO Spain


                nursing care,Alzheimer disease,cuidadores,estrés psicológico,educación del paciente como tópico,atención de enfermería,Enfermedad de Alzheimer,caregivers,stress, psychological,patient education as topic

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