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      A Hierarchy of Power: The Place of Patient and Public Involvement in Healthcare Service Development

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          Abstract

          Amidst statutory and non-statutory calls for effective patient and public involvement (PPI), questions continue to be raised about the impact of PPI in healthcare services. Stakeholders, policy makers, researchers, and members of the public ask in what ways and at what level PPI makes a difference. Patient experience is widely seen as an important and valuable resource to the development of healthcare services, yet there remain legitimacy issues concerning different forms of knowledge that members of the public and professionals bring to the table, and related power struggles. This paper draws on data from a qualitative study of PPI in a clinical commissioning group (CCG) in the UK. The study looked at some of the activities in which there was PPI; this involved researchers conducting observations of meetings, and interviews with staff and lay members who engaged in CCG PPI activities. This paper explores power imbalances when it comes to influencing the work of the CCG mainly between professionals and members of public, but also between different CCG staff members and between different groups of members of public. The authors conclude that a hierarchy of power exists, with some professionals and public and lay members afforded more scope for influencing healthcare service development than others—an approach which is reflected in the ways and extent to which different forms and holders of knowledge are viewed, managed, and utilized.

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          The Constitution of Society : Outline of the Theory of Structuration

          Anthony Giddens has been in the forefront of developments in social theory for the past decade. In "The Constitution of Society" he outlines the distinctive position he has evolved during that period and offers a full statement of a major new perspective in social thought, a synthesis and elaboration of ideas touched on in previous works but described here for the first time in an integrated and comprehensive form. A particular feature is Giddens's concern to connect abstract problems of theory to an interpretation of the nature of empirical method in the social sciences. In presenting his own ideas, Giddens mounts a critical attack on some of the more orthodox sociological views. "The Constitution of Society" is an invaluable reference book for all those concerned with the basic issues in contemporary social theory.
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            Mapping the impact of patient and public involvement on health and social care research: a systematic review.

            There is an increasing international interest in patient and public involvement (PPI) in research, yet relatively little robust evidence exists about its impact on health and social care research. To identify the impact of patient and public involvement on health and social care research. A systematic search of electronic databases and health libraries was undertaken from 1995 to 2009. Data were extracted and quality assessed utilizing the guidelines of the NHS Centre for Reviews and Dissemination 2009 and the Critical Appraisal Skills Programme (CASP). Grey literature was assessed using the Dixon-Woods et al. (2005) checklist. All study types that reported the impact PPI had on the health and/or social care research study. A total of 66 studies reporting the impact of PPI on health and social care research were included. The positive impacts identified enhanced the quality and appropriateness of research. Impacts were reported for all stages of research, including the development of user-focused research objectives, development of user-relevant research questions, development of user-friendly information, questionnaires and interview schedules, more appropriate recruitment strategies for studies, consumer-focused interpretation of data and enhanced implementation and dissemination of study results. Some challenging impacts were also identified. This study provides the first international evidence of PPI impact that has emerged at all key stages of the research process. However, much of the evidence base concerning impact remains weak and needs significant enhancement in the next decade. © 2012 John Wiley & Sons Ltd.
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              Qualitative research in health care. Analysing qualitative data.

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                Author and article information

                Contributors
                Journal
                Front Sociol
                Front Sociol
                Front. Sociol.
                Frontiers in Sociology
                Frontiers Media S.A.
                2297-7775
                08 May 2019
                2019
                : 4
                : 38
                Affiliations
                Centre for Health and Social Care Research, Kingston University & St. George's University , London, United Kingdom
                Author notes

                Edited by: Tiago Correia, Instituto Universitario de Lisboa (ISCTE), Portugal

                Reviewed by: Doreen Tembo, University of Southampton, United Kingdom; Andy James Gibson, University of the West of England, United Kingdom; Ewen Speed, University of Essex, United Kingdom

                *Correspondence: Alison O'Shea a.oshea@ 123456sgul.kingston.ac.uk

                This article was submitted to Medical Sociology, a section of the journal Frontiers in Sociology

                Article
                10.3389/fsoc.2019.00038
                8022776
                33869361
                412071d8-4302-4ce0-b234-a6bf4d675440
                Copyright © 2019 O'Shea, Boaz and Chambers.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

                History
                : 16 October 2018
                : 11 April 2019
                Page count
                Figures: 1, Tables: 2, Equations: 0, References: 43, Pages: 12, Words: 10283
                Funding
                Funded by: Kingston University 10.13039/100010049
                Categories
                Sociology
                Original Research

                patient and public involvement,healthcare,power,hierarchy,influence,lay members,public members,professionals

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