“No one should be alone in old age he thought, But it is unavoidable.”
—The Old Man and the Sea, Ernest Hemingway
Older persons are more likely to live alone and tend to be less socially engaged.
There has also been a decline in religious involvement. This has been perceived to
result in a “loneliness epidemic.” Declared as a global epidemic by former U.S. Surgeon
General Vivek Murthy (1), loneliness and social isolation are reported to occur in
approximately one-third or more of older adults with 5% of those often or always feeling
lonely (2, 3). Recent U.S.-based research suggests the range is 17% - 57% of persons
experience loneliness, a figure that increases for those who have mental and physical
health concerns, particularly those with heart disease, depression, anxiety, and dementia
(4). Loneliness and social isolation have been shown to significantly impact older
adults, both physically and emotionally. Areas of the older adult’s life that can
be negatively affected when the individual is experiencing loneliness and/or social
isolation are listed in Table 1. The long-term (greater than four years) effects of
loneliness and social isolation can be even more devastating, including; Increased
blood pressure, depression, weight gain, smoking alcohol/drug use, and alone time
(5) and decreased physical activity, cognition, heart health, and sleep, stroke and
coronary heart disease, in particular (6).
Table 1
Negative Effects Associated with Loneliness
• Quality-of-life (7)
• Cognition (28, 29)
• Subjective health (30)
• Stress and depression (31)
• Decreased quality of sleep (32)
• Disability (33, 34)
• Cardiovascular disease (6)
• Increased use of health care services (29, 35–37)
• Increased mortality (29, 38, 39)
• Institutionalization (29)
Predictors and risk factors of loneliness and social isolation are numerous, but some
may be modifiable. These factors are listed in Table 2 (7–13).
Table 2
Risk Factors for Loneliness
• Living in rural area—being left behind when other migrate
• Poor functional status, particularly in IADLs and cognitive impairment
• Widowhood
• Being female—may be due to increased expressiveness and value on relationships
• Lower income and education—those at higher levels may have more resources/networks
• Urinary incontinence
• Subjective causes—illness, deaths, lack of friends, losses, etc.
• *Depression
• *Living alone
• *Poorly understood by others
• *Wisdom
*Stronger predictors than health, functional status or widowhood
Management of loneliness requires both medical and social interventions. Persons with
decreased hearing including those who hear poorly in noisy groups need to be evaluated
for hearing amplifiers or hearing aids. Persons with visual disturbances need to be
provided with appropriate vision aids. Persons with dual sensory impairment are at
particular risk for loneliness (14). Depression can play a major role in loneliness
and needs to be treated either with group behavioral therapy especially when minor
depression (dysphoria) and medications or electroconvulsive therapy when major depression
(15). Cognitive impairment needs to be assessed and where possible reversible causes
need to be treated (16). Persons with moderate dementia should be offered Cognitive
Stimulation Therapy (17, 18), an evidence-based, non-pharmacologic individual or group
intervention.
Developing compassionate social communities are a key approach to dealing with loneliness.
Persons who are isolated need to be recognized and attempts made to provide them with
social interaction. In this case, transportation represents a major component as well
as mobilizing youth and other community volunteers to become friendly visitors (via
phone or in-person visits). A variety of group therapies such as laughter therapy,
reminiscence therapy, horticulture therapy, exercise and dancing can all reduction
loneliness (19).
Emotional loneliness requires a different approach. Emotional loneliness is typified
by Albert Einstein, who said, “It is strange to be known so universally and yet to
be so lonely.” It is clear that for a number of reasons, there are persons in the
community who have difficulty making friends. They need coaching in behaviors that
will help them make friends and to alter their expectations of friends. These people
can suffer loneliness in the presence of multiple social contacts (20). It is important
to recognize the role of maladaptive social cognition in loneliness as it needs a
different therapeutic approach.
Developed by scholars and practitioners at the Central Union for the Welfare of the
Aged at Helsinki University in the early 2000s, Circle of Friends© is built on a model
of group rehabilitation with the aim being alleviation and prevention of loneliness
in older adults (21). The group of approximately eight older adults who have self-identified
as being lonely or socially isolated meet 12 times over three months with a facilitator
for the purpose of making new friends, feeling less lonely, sharing feelings of loneliness
with others: experiencing meaningful things together; and transitioning into a self-supportive
group who continues to meet after the initial three months (22). Each session includes
three components: 1) Art and inspiring activities with discussion; 2) group exercise
and health-themed discussion; and 3) therapeutic writing with sharing and reflecting
on issues related to loneliness (23). Evidence for the effectiveness of Circle of
Friends© has been reported by the founders of the intervention to suggest that the
intervention is well suited for delivery with older adult populations living in the
community, adult day centers, and residential facilities. Outcomes for participants
encompass physical and emotional health and health care utilization. Specifically,
in a two-year post-intervention study, 97% of participants were still living, reported
improved subjective health with decreased health care costs and hospitalizations,
only 2.5% had dropped out, and 6 of 15 groups were still meeting (24). Similarly,
a later study reports 95% of participants no longer feel lonely, 45–85% made new friends,
40% of the groups continued meetings, and feeling of being needed and psychological
well-being improved (25, 26).
Through the Geriatric Workforce Enhancement Program (GWEP), Circle of friends© is
being introduced in the St. Louis, Missouri area. As the first Circle of Friends©
groups to launch outside of Finland, two organizations have integrated the intervention
into programming for older adults. Both funded through the St. Louis Senior Fund,
Circle of Friends© is being offered at the Association for Aging and Developmental
Disabilities and through a collaborative partnership between CHIPS (Community Health
in Partnership) and the St. Louis Public Housing authority. Both Groups received training
during Summer 2019 and launched multiple groups in the fall at locations in senior
centers and housing complexes. Groups continue to meet at both agencies with plans
to continue this successful intervention to bring older adults together to build new
relationships. In addition, a rural hospital in Perry County and the Family Practice
program at Saint Louis University are both providing Circle of Friends groups. Our
preliminary observations have suggested that the Circle of Friends is an excellent
approach to reduce loneliness.
Physicians and other health and social service providers tend to be poorly trained
and equipped to deal with loneliness (27). Patients are seldom asked about loneliness
and providers do not have an approach to treating the “problem.” There is a need to
train medical students and residents and other professionals in recognizing loneliness,
e.g., ALONE screen (Table 3) and to manage the problem working together with social
workers and the community as so aptly stated by Mother Theresa, “Loneliness and the
feeling of being unwanted is the most terrible poverty.” Health professionals need
to become more aware of the importance of loneliness in older persons.
Table 3
ALONE Scale
To assess an individual’s perception of being lonely, ask each of the items below
using the following rating scale: Yes, Sometimes, No
A
Are you Attractive (as a friend) to others?
Yes___
Sometimes___
No___
L
Are you Lonely?
Yes___
Sometimes___
No___
O
Are you Outgoing/friendly?
Yes___
Sometimes___
No___
N
Do you feel you have No friends?
Yes___
Sometimes___
No___
E
Are you Emotionally upset (sad)?
Yes___
Sometimes___
No___