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      Menses, pregnancy, delivery, and menopause in hidradenitis suppurativa: A patient survey.

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          Abstract

          Hidradenitis suppurativa (HS) is a chronic inflammatory disorder that primarily affects women of childbearing age. There is a paucity of data on HS disease activity during menstruation, pregnancy, and menopause and the potential impact of HS on the method of delivery.

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          Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.

          Paul A. Harris, Robert Taylor, Robert Thielke … (2009)
          Research electronic data capture (REDCap) is a novel workflow methodology and software solution designed for rapid development and deployment of electronic data capture tools to support clinical and translational research. We present: (1) a brief description of the REDCap metadata-driven software toolset; (2) detail concerning the capture and use of study-related metadata from scientific research teams; (3) measures of impact for REDCap; (4) details concerning a consortium network of domestic and international institutions collaborating on the project; and (5) strengths and limitations of the REDCap system. REDCap is currently supporting 286 translational research projects in a growing collaborative network including 27 active partner institutions.
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            The REDCap consortium: Building an international community of software platform partners

            Paul Harris, Robert Taylor, Brenda Minor … (2019)
            The Research Electronic Data Capture (REDCap) data management platform was developed in 2004 to address an institutional need at Vanderbilt University, then shared with a limited number of adopting sites beginning in 2006. Given bi-directional benefit in early sharing experiments, we created a broader consortium sharing and support model for any academic, non-profit, or government partner wishing to adopt the software. Our sharing framework and consortium-based support model have evolved over time along with the size of the consortium (currently more than 3200 REDCap partners across 128 countries). While the "REDCap Consortium" model represents only one example of how to build and disseminate a software platform, lessons learned from our approach may assist other research institutions seeking to build and disseminate innovative technologies.
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              Evaluating Patients’ Unmet Needs in Hidradenitis Suppurativa: results from the Global VOICE project

              Amit Garg, Erica Neuren, Denny Cha … (2019)
              A needs assessment for patients with hidradenitis suppurativa (HS) will support advancements in multidisciplinary care, treatment, research, advocacy, and philanthropy.
              Article 0 comments Cited 66 times – based on 0 reviews     Review now
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                Author and article information

                Journal
                Journal ID (iso-abbrev): Int J Womens Dermatol
                Title: International journal of women's dermatology
                Publisher: Elsevier BV
                ISSN: 2352-6475
                ISSN (Print): 2352-6475
                Publication date (Electronic): Dec 2020
                Volume: 6
                Issue: 5
                Affiliations
                [1 ] University of Arizona, College of Medicine, Tucson, AZ, United States.
                [2 ] University of California Los Angeles, David Geffen School of Medicine, Los Angeles, CA, United States.
                [3 ] Department of Medicine Statistics Core, David Geffen School of Medicine, University of California, Los Angeles, CA, United States.
                [4 ] Department of Medicine, Division of Dermatology, University of Arizona, Tucson, AZ, United States.
                [5 ] Department of Medicine, Division of Dermatology, University of California Los Angeles, Los Angeles, CA, United States.
                Article
                Publisher Item ID: S2352-6475(20)30114-3
                DOI: 10.1016/j.ijwd.2020.07.002
                PMC ID: 8060662
                PubMed ID: 33898700
                SO-VID: 42f8aed7-5ca5-4b5d-b2f3-5bc2fc0f4fc3
                History

                Keywords: Pregnancy,Cesarean section,Delivery,Hidradenitis suppurativa,Menopause,Menses
                Data availability:
                Keywords: Pregnancy, Cesarean section, Delivery, Hidradenitis suppurativa, Menopause, Menses

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