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      Death Cafés: Death Doulas and Family Communication

      research-article
      Behavioral Sciences
      MDPI
      Death Café, communication, family communication, end of life, death doulas, death

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          Abstract

          The Death Café is part of the Death Positive movement, and as such, is uniquely positioned to bring the dialogue about death and dying to the public. Participants in a Death Café typically have two different perspectives. Some participants have not experienced death in their family and friends’ circle and wish to converse with others about their beliefs on death and dying. Others are those who have experienced death somewhere in their circle of friends and families. One of goals of the Death Café facilitators is to help attendees reconcile their family narratives regarding death using the broader lens of the Death Café. Using the insights provided by interviews from 15 Death Café facilitators, this manuscript discusses the role of the Death Café facilitators as the death doulas of family communication.

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          Most cited references12

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          Qualitative inquire and research design. Choosing among five traductions

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            Death Cafe

            This article explains the meaning of the phrase Death Cafe and describes what typically occurs at a Death Cafe gathering. The article traces the history of the Death Cafe movement, explores some reasons why people take part in a Death Cafe gathering, and gives examples of what individuals think they might derive from their participation. In addition, this article notes similarities between the Death Cafe movement and three other developments in the field of death, dying, and bereavement. Finally, this article identifies two provisional lessons that can be drawn from Death Cafe gatherings and the Death Cafe movement itself.
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              Understanding cultural difference in caring for dying patients.

              Experiences of illness and death, as well as beliefs about the appropriate role of healers, are profoundly influenced by patients' cultural background. As the United States becomes increasingly diverse, cultural difference is a central feature of many clinical interactions. Knowledge about how patients experience and express pain, maintain hope in the face of a poor prognosis, and respond to grief and loss will aid health care professionals. Many patients' or families' beliefs about appropriate end-of-life care are easily accommodated in routine clinical practice. Desires about the care of the body after death, for example, generally do not threaten deeply held values of medical science. Because expected deaths are increasingly the result of explicit negotiation about limiting or discontinuing therapies, however, the likelihood of serious moral disputes and overt conflict increases. We suggest a way to assess cultural variation in end-of-life care, arguing that culture is only meaningful when interpreted in the context of a patient's unique history, family constellation, and socioeconomic status. Efforts to use racial or ethnic background as simplistic, straightforward predictors of beliefs or behavior will lead to harmful stereotyping of patients and culturally insensitive care for the dying.
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                Author and article information

                Contributors
                Role: Academic Editor
                Journal
                Behav Sci (Basel)
                Behav Sci (Basel)
                behavsci
                Behavioral Sciences
                MDPI
                2076-328X
                26 April 2017
                June 2017
                : 7
                : 2
                : 26
                Affiliations
                Department of Communication Studies, Western Oregon University, Monmouth, OR 97361, USA; baldwinp@ 123456wou.edu ; Tel.: +1-503-838-8065
                Article
                behavsci-07-00026
                10.3390/bs7020026
                5485456
                28445392
                ec29c37e-ae76-4c0f-925e-f493d4a76257
                © 2017 by the author.

                Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license ( http://creativecommons.org/licenses/by/4.0/).

                History
                : 28 February 2017
                : 19 April 2017
                Categories
                Article

                death café,communication,family communication,end of life,death doulas,death

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