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      Transitional Care in Rheumatology: a Review of the Literature from the Past 5 Years

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          Abstract

          Purpose of Review

          Effective transitional care for adolescents and young adults (AYA) with rheumatic musculoskeletal disease (RMD) is fundamental to rheumatology care provision. Here we review the recent evidence from the literature on transition in rheumatology and debate why universal implementation has yet to be recognised.

          Recent Findings

          Evidence of need for transitional care continues to be reported. The triphasic nature of transitional care remains poorly recognised, and the third phase following transfer to adult rheumatology is particularly under-researched in spite of the recognition of the age-related trajectories of transition skill development during young adulthood. Several rheumatology-specific transitional care interventions have now been evaluated but the search for valid measures including outcome continues. Finally, the need to study transition at a health system level is increasingly recognised.

          Summary

          Future research in this area should consider the developmental trajectories of AYA as well as the social-ecological model of transition readiness, which focuses on the interactions between AYA, caregivers and providers (and the systems they are part of) as these are the likely targets of any intervention to improve health transitions.

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          Most cited references65

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          The Transition Readiness Assessment Questionnaire (TRAQ): its factor structure, reliability, and validity.

          National consensus statements recommend that providers regularly assess the transition readiness skills of adolescent and young adults (AYA). In 2010 we developed a 29-item version of Transition Readiness Assessment Questionnaire (TRAQ). We reevaluated item performance and factor structure, and reassessed the TRAQ's reliability and validity.
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            Implementing transition: Ready Steady Go

            There is good evidence that morbidity and mortality increase for young persons (YP) following the move from paediatric to adult services. Studies show that effective transition between paediatric and adult care improves long-term outcomes. Many of the issues faced by young people across subspecialties with a long-term condition are generic. This article sets out some of the obstacles that have delayed the implementation of effective transition. It reports on a successful generic transition programme ‘Ready Steady Go’ that has been implemented within a large National Health Service teaching hospital in the UK, with secondary and tertiary paediatric services, where it is now established as part of routine care.
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              Parenting a child with chronic illness as they transition into adulthood: A systematic review and thematic synthesis of parents' experiences.

              To understand how parents view and experience their role as their child with a long-term physical health condition transitions to adulthood and adult healthcare services.
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                Author and article information

                Contributors
                janet.mcdonagh@manchester.ac.uk
                Journal
                Curr Rheumatol Rep
                Curr Rheumatol Rep
                Current Rheumatology Reports
                Springer US (New York )
                1523-3774
                1534-6307
                6 September 2019
                6 September 2019
                2019
                : 21
                : 10
                : 57
                Affiliations
                [1 ]ISNI 0000000121662407, GRID grid.5379.8, Versus Arthritis Centre for Epidemiology, Centre for MSK Research, University of Manchester and NIHR Biomedical Research Centre, , Manchester University Hospital NHS Trust, ; Manchester, UK
                [2 ]ISNI 0000 0004 0397 2876, GRID grid.8241.f, School of Nursing and Health Sciences, , University of Dundee, ; Dundee, UK
                Author information
                http://orcid.org/0000-0002-4555-7270
                http://orcid.org/0000-0001-8970-6146
                Article
                855
                10.1007/s11926-019-0855-4
                6731189
                31492991
                e88e4a07-9ca5-4fa9-ab07-e5d8dec6332e
                © The Author(s) 2019

                Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License ( http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.

                History
                Funding
                Funded by: University of Manchester
                Categories
                Pediatric Rheumatology (S Ozen, Section Editor)
                Custom metadata
                © Springer Science+Business Media, LLC, part of Springer Nature 2019

                Rheumatology
                transitional care,rheumatology,chronic illness,adolescents,young adults,review
                Rheumatology
                transitional care, rheumatology, chronic illness, adolescents, young adults, review

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