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      Supporting Client and Family Engagement in Care Through the Planning and Implementation of an Online Consumer Health Portal

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          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          Web-based portals and electronic health records are making it easier for clients and families to access health information. This improved transparency and access to information has the potential to promote activation and improve outcomes, but to realize these benefits, the information needs to be valuable, meaningful, and understandable. Engagement of the end users in the planning and implementation will ensure that the product meets the needs of the consumers. The purpose of this case study is to describe the client and family engagement strategies that were employed to support the process of planning and implementing an online consumer health portal at a pediatric rehabilitation hospital to support the successful launch of this new information-sharing technology platform.

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          Open notes: doctors and patients signing on.

          Tom Delbanco, Jan Walker, Jonathan Darer … (2010)
          Few patients read their doctors' notes, despite having the legal right to do so. As information technology makes medical records more accessible and society calls for greater transparency, patients' interest in reading their doctors' notes may increase. Inviting patients to review these notes could improve understanding of their health, foster productive communication, stimulate shared decision making, and ultimately lead to better outcomes. Yet, easy access to doctors' notes could have negative consequences, such as confusing or worrying patients and complicating rather than improving patient-doctor communication. To gain evidence about the feasibility, benefits, and harms of providing patients ready access to electronic doctors' notes, a team of physicians and nurses have embarked on a demonstration and evaluation of a project called OpenNotes. The authors describe the intervention and share what they learned from conversations with doctors and patients during the planning stages. The team anticipates that "open notes" will spread and suggests that over time, if drafted collaboratively and signed by both doctors and patients, they might evolve to become contracts for care.
          Article 0 comments Cited 67 times – based on 0 reviews     Review now
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            Clinical documentation in the 21st century: executive summary of a policy position paper from the American College of Physicians.

            Thomson Kuhn, Peter Basch, Michael Barr … (2015)
            Clinical documentation was developed to track a patient's condition and communicate the author's actions and thoughts to other members of the care team. Over time, other stakeholders have placed additional requirements on the clinical documentation process for purposes other than direct care of the patient. More recently, new information technologies, such as electronic health record (EHR) systems, have led to further changes in the clinical documentation process. Although computers and EHRs can facilitate and even improve clinical documentation, their use can also add complexities; new challenges; and, in the eyes of some, an increase in inappropriate or even fraudulent documentation. At the same time, many physicians and other health care professionals have argued that the quality of the systems being used for clinical documentation is inadequate. The Medical Informatics Committee of the American College of Physicians has undertaken this review of clinical documentation in an effort to clarify the broad range of complex and interrelated issues surrounding clinical documentation and to suggest a path forward such that care and clinical documentation in the 21st century best serve the needs of patients and families.
            Article 0 comments Cited 57 times – based on 0 reviews     Review now
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              The future of health information technology in the patient-centered medical home.

              Asaf Bitton, D Bates (2010)
              Most electronic health records today need further development of features that patient-centered medical homes require to improve their efficiency, quality, and safety. We propose a road map of the domains that need to be addressed to achieve these results. We believe that the development of electronic health records will be critical in seven major areas: telehealth, measurement of quality and efficiency, care transitions, personal health records, and, most important, registries, team care, and clinical decision support for chronic diseases. To encourage this development, policy makers should include medical homes in emerging electronic health record regulations. Additionally, more research is needed to learn how these records can enhance team care.
              Article 0 comments Cited 56 times – based on 0 reviews     Review now
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                Author and article information

                Journal
                Journal ID (nlm-ta): J Patient Exp
                Journal ID (publisher-id): JPX
                Journal ID (hwp): spjpx
                Title: Journal of patient experience
                Publisher: SAGE Publications (Sage CA: Los Angeles, CA )
                ISSN (Print): 2374-3735
                ISSN (Electronic): 2374-3743
                Publication date (Electronic): 11 August 2016
                Publication date (Print): June 2016
                Volume: 3
                Issue: 2
                Pages: 48-51
                Affiliations
                [1 ]Holland Bloorview Kids Rehabilitation Hospital, Toronto, Ontario, Canada
                [2 ]University of Toronto’s School of Occupational Therapy and Occupational Science, Toronto, Canada
                [3 ]Faculty of Social Work, University of Toronto’s Factor-Inwentash, Toronto, Canada
                Author notes
                [*]Joanne Maxwell, BScOT, MSc, Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Rd, Toronto, Ontario, Canada M4G 1R8. Email: jmaxwell@ 123456hollandbloorview.ca
                Article
                Publisher ID: 10.1177_2374373516652256
                DOI: 10.1177/2374373516652256
                PMC ID: 5513619
                SO-VID: e3b7b00b-35eb-4da3-9e05-58bb5ed499ce
                Copyright © © The Author(s) 2016
                License:

                This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 3.0 License ( http://www.creativecommons.org/licenses/by-nc/3.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page ( https://us.sagepub.com/en-us/nam/open-access-at-sage).

                History
                Categories
                Subject: Case Study

                Keywords: patient activation,client and family engagement,consumer health portal,electronic health record
                Data availability:
                Keywords: patient activation, client and family engagement, consumer health portal, electronic health record

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