Identification of undiagnosed dementia cases using a web‐based pre‐screening tool: The MOPEAD project

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Abstract

Introduction

Innovative patient engagement models are required to identify people with prodromal and mild Alzheimer's disease who are “hidden” in their communities and not normally found in a memory clinic setting.

Methods

A marketing campaign and a web‐based pre‐screening tool were used to identify individuals at risk of dementia in five European countries. Harmonized clinical evaluation of these patients was performed in participating memory clinics within the MOPEAD project.

Results

A total of 1487 individuals completed the pre‐screening, with 547 of them found to be at risk of dementia (36.8%). Among the subset of 91 patients with a positive pre‐screening result that underwent full clinical evaluation, 49 (53.8%) were diagnosed with either mild cognitive impairment or Alzheimer's disease.

Conclusion

This novel web‐based pre‐screening tool showed to be a valid strategy to identify undiagnosed people with cognitive impairment.

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Most cited references 22

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A review of Internet use among older adults

Amanda Hunsaker, Eszter Hargittai (2018)

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Recruiting for health, medical or psychosocial research using Facebook: Systematic review

Louise Thornton, Philip J. Batterham, Daniel B. Fassnacht … (2016)

Recruiting participants is a challenge for many health, medical and psychosocial research projects. One tool more frequently being used to improve recruitment is the social networking website Facebook. A systematic review was conducted to identify studies that have used Facebook to recruit participants of all ages, to any psychosocial, health or medical research. 110 unique studies that used Facebook as a recruitment source were included in the review. The majority of studies used a cross-sectional design (80%) and addressed a physical health or disease issue (57%). Half (49%) of the included studies reported specific details of the Facebook recruitment process. Researchers paid between $1.36 and $110 per completing participants (Mean = $17.48, SD = $23.06). Among studies that examined the representativeness of their sample, the majority concluded (86%) their Facebook-recruited samples were similarly representative of samples recruited via traditional methods. These results indicate that Facebook is an effective and cost-efficient recruitment method. Researchers should consider their target group, advertisement wording, offering incentives and no-cost methods of recruitment when considering Facebook as a recruitment source. It is hoped this review will assist researchers to make decisions regarding the use of Facebook as a recruitment tool in future research.

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Timely Diagnosis for Alzheimer’s Disease: A Literature Review on Benefits and Challenges

Bruno Dubois, Alessandro Padovani, Philip Scheltens … (2015)

Background: Timely diagnosis of Alzheimer’s disease (AD) refers to a diagnosis at the stage when patients come to the attention of clinicians because of concerns about changes in cognition, behavior, or functioning and can be still free of dementia and functionally independent. Objectives: To comprehensively review existing scientific evidence on the benefits and potential challenges of making a timely diagnosis of AD. Methods: Relevant studies were identified by searching electronic databases (Medline, Embase) and bibliographies for studies published in English between 1 January 2000 and 2 June 2014 on the consequences of a timely diagnosis of AD. Results: Nine studies were identified that investigated the consequences of diagnosing AD at the initial stages; none were specifically focused on prodromal AD. A timely diagnosis potentially offers the opportunities of early intervention, implementation of coordinated care plans, better management of symptoms, patient safety, cost savings, and postponement of institutionalization. Barriers to making a timely diagnosis include stigma, suicide risk, lack of training, diagnostic uncertainty, shortage of specialized diagnostic services, and the reluctance of healthcare providers to make a diagnosis when no effective disease-modifying options are available. Conclusions: Despite its potential benefits, few published studies have explored the advantages or risks of a timely diagnosis of AD. In light of the cultural shift toward diagnosis at the initial stage of the disease continuum, when the patient does not yet have dementia, more investigations are needed to evaluate the benefits and address the barriers that may impede making a timely AD diagnosis.

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Author and article information

Contributors

Mercè Boada: mboada@fundacioace.org

Journal

Journal ID (nlm-ta): Alzheimers Dement

Journal ID (iso-abbrev): Alzheimers Dement

Journal ID (doi): 10.1002/(ISSN)1552-5279

Journal ID (publisher-id): ALZ

Title: Alzheimer's & Dementia

Publisher: John Wiley and Sons Inc. (Hoboken )

ISSN (Print): 1552-5260

ISSN (Electronic): 1552-5279

Publication date (Electronic): 15 April 2021

Publication date (Print): August 2021

Volume: 17

Issue: 8 ( doiID: 10.1002/alz.v17.8 )

Pages: 1307-1316

Affiliations

[ ¹ ] GMV SECURE E SOLUTIONS Valencia Spain

[ ² ] Research Center and Memory Clinic Fundació ACE Institut Català de Neurociències Aplicades Universitat Internacional de Catalunya Barcelona Spain

[ ³ ] Networking Research Center on Neurodegenerative Diseases (CIBERNED) Instituto de Salud Carlos III Madrid Spain

[ ⁴ ] Center for Cognitive Impairments Department of Neurology University Medical Center Ljubljana Ljubljana Slovenia

[ ⁵ ] Division of Neurogeriatrics Department of Neurobiology Care Sciences and Society Karolinska Institutet Huddinge Sweden

[ ⁶ ] Karolinska University Hospital Theme Aging Stockholm Sweden

[ ⁷ ] Alzheimer Center Amsterdam, Department of Neurology, Amsterdam Neuroscience Vrije Universiteit Amsterdam Amsterdam the Netherlands

[ ⁸ ] Department of Psychiatry and Neuropsychology, School for Mental Health and Neuroscience Maastricht University Maastricht the Netherlands

[ ⁹ ] Department of Psychiatry University of Cologne Cologne Germany

[ ¹⁰ ] Eli Lilly and Company Firenze Italy

Author notes

[*] [* ] Correspondence

Mercè Boada, Research Center and Memory Clinic, Fundació ACE, Institut Català de Neurociències Aplicades, Universitat Internacional de Catalunya, Barcelona, Spain.

E‐mail: mboada@ 123456fundacioace.org

Article

Publisher ID: ALZ12297

DOI: 10.1002/alz.12297

PMC ID: 8453736

PubMed ID: 33860599

SO-VID: d6f4fdc5-06d2-4cbd-b88d-7bec754a398e

License:

This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc-nd/4.0/ License, which permits use and distribution in any medium, provided the original work is properly cited, the use is non‐commercial and no modifications or adaptations are made.

History

Date revision received : 29 December 2020

Date received : 19 February 2020

Date accepted : 01 January 2021

Page count

Figures: 1, Tables: 5, Pages: 10, Words: 6240

Funding

Funded by: Innovative Medicines Initiative , doi 10.13039/501100010767;

Award ID: 115985

Funded by: European Union's Horizon 2020 Research and Innovation

Custom metadata

source-schema-version-number 2.0

cover-date August 2021

details-of-publishers-convertor Converter:WILEY_ML3GV2_TO_JATSPMC version:6.0.7 mode:remove_FC converted:21.09.2021

Keywords: alzheimer's disease,diagnostic gap,early diagnosis,patient engagement,population‐based screening

Data availability:

Keywords: alzheimer's disease, diagnostic gap, early diagnosis, patient engagement, population‐based screening

Identification of undiagnosed dementia cases using a web‐based pre‐screening tool: The MOPEAD project

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Abstract

Introduction

Methods

Results

Conclusion

Related collections

Alternative approaches to Alzheimer's Disease

Most cited references 22

A review of Internet use among older adults

Recruiting for health, medical or psychosocial research using Facebook: Systematic review

Timely Diagnosis for Alzheimer’s Disease: A Literature Review on Benefits and Challenges

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Contributors

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