Contributors
Sally Pezaro:
ORCID: https://orcid.org/0000-0001-5767-0708
Role: ConceptualizationRole: Data curationRole: Formal analysisRole: InvestigationRole:
MethodologyRole: Project administrationRole: Writing – original draftRole: Writing
– review & editing
Isabelle Brock: Role: ConceptualizationRole: Data curationRole: Formal analysisRole: InvestigationRole:
Writing – review & editing
Maggie Buckley:
ORCID: https://orcid.org/0000-0002-6996-8007
Role: Data curationRole: Formal analysisRole: InvestigationRole: Writing – review
& editing
Sarahann Callaway: Role: Data curationRole: Formal analysisRole: InvestigationRole: Writing – review
& editing
Serwet Demirdas:
ORCID: https://orcid.org/0000-0001-5496-4153
Role: Data curationRole: Formal analysisRole: InvestigationRole: Writing – review
& editing
Alan Hakim: Role: Data curationRole: Formal analysisRole: Writing – original draftRole: Writing
– review & editing
Cheryl Harris: Role: Data curationRole: Formal analysisRole: InvestigationRole: Writing – review
& editing
Carole High Gross: Role: Data curationRole: Formal analysisRole: InvestigationRole: Writing – review
& editing
Megan Karanfil: Role: Data curationRole: Formal analysisRole: InvestigationRole: Writing – review
& editing
Isabelle Le Ray: Role: Data curationRole: Formal analysisRole: InvestigationRole: MethodologyRole:
ValidationRole: Writing – review & editing
Laura McGillis: Role: Data curationRole: Formal analysisRole: InvestigationRole: Writing – review
& editing
Bonnie Nasar:
ORCID: https://orcid.org/0009-0004-1730-9837
Role: Data curationRole: Formal analysisRole: InvestigationRole: Writing – review
& editing
Melissa Russo: Role: Data curationRole: Formal analysisRole: InvestigationRole: ValidationRole: Writing
– review & editing
Lorna Ryan: Role: Data curationRole: Formal analysisRole: InvestigationRole: Writing – review
& editing
Natalie Blagowidow: Role: ConceptualizationRole: Data curationRole: Formal analysisRole: InvestigationRole:
Writing – original draftRole: Writing – review & editing
Martin E. Matsumura: Role: Editor
Journal
Journal ID (nlm-ta): PLoS One
Journal ID (iso-abbrev): PLoS One
Journal ID (publisher-id): plos
Title:
PLOS ONE
Publisher:
Public Library of Science
(San Francisco, CA USA
)
ISSN
(Electronic):
1932-6203
Publication date
(Electronic):
15
May
2024
Publication date Collection: 2024
Volume: 19
Issue: 5
Electronic Location Identifier: e0302401
Affiliations
[1
]
Research Centre for Healthcare and Communities, Coventry University, Coventry, United
Kingdom
[2
]
The University of Notre Dame, Notre Dame, Australia
[3
]
Department of Connective Tissue, Nova Combian Research Institute, New York, New York,
United States of America
[4
]
The Ehlers Danlos Society’s International Consortium, New York, New York, United States
of America
[5
]
Main Line Health- Bryn Mawr Rehab, King of Prussia, Pennsylvania, United States of
America
[6
]
Department of Clinical Genetics, Erasmus Medical Centre, Rotterdam, The Netherlands
[7
]
The Ehlers-Danlos Society, The Ehlers-Danlos Society – Europe, London, United Kingdom
[8
]
Harris Whole Health, Fairfax, Virginia, United States of America
[9
]
Lehigh Valley Health Network, Palmer, Pennsylvania, United States of America
[10
]
The International Consortium on the Ehlers-Danlos syndromes and Hypermobility Spectrum
Disorders, The Herds Nerd, Baltimore, Maryland, United States of America
[11
]
Integrative Systemic Medicine Center, Boulogne-Billancourt and Strasbourg University
Hospital, Strasbourg, France
[12
]
GoodHope EDS Program, Toronto General Hospital, Toronto, Ontario, Canada
[13
]
Registered Dietitian Nutritionist, Ridgewood, New Jersey, United States of America
[14
]
Women and Infants Hospital, An Affiliate of Warren Alpert Medical School at Brown
University in Providence, Providence, Rhode Island, United States of America
[15
]
Lorna Ryan Health, London, United Kingdom
[16
]
Harvey Institute for Human Genetics, Greater Baltimore Medical Center, Baltimore,
Maryland, United States of America
Geisinger Health System, UNITED STATES
Author notes
Competing Interests: SP reports receiving honorariums from the Ehlers-Danlos Society. AH reports receiving
honorariums from the Ehlers-Danlos Society. NB reports receiving honorariums from
the Ehlers-Danlos Society. Other authors report no conflict of interest.
Author information
Article
Publisher ID:
PONE-D-23-42863
DOI: 10.1371/journal.pone.0302401
PMC ID: 11095771
PubMed ID: 38748660
SO-VID: d37fc670-df1e-421d-80b1-f5e2baf7cdd3
Copyright © © 2024 Pezaro et al
License:
This is an open access article distributed under the terms of the
Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided
the original author and source are credited.
History
Date
received
: 11
January
2024
Date
accepted
: 2
April
2024
Page count
Figures: 1,
Tables: 4,
Pages: 34
Funding
The author(s) received no specific funding for this work.
Categories
Subject:
Research Article
Subject:
Medicine and Health Sciences
Subject:
Women's Health
Subject:
Maternal Health
Subject:
Pregnancy
Subject:
Medicine and Health Sciences
Subject:
Women's Health
Subject:
Obstetrics and Gynecology
Subject:
Pregnancy
Subject:
Medicine and Health Sciences
Subject:
Women's Health
Subject:
Maternal Health
Subject:
Birth
Subject:
Labor and Delivery
Subject:
Medicine and Health Sciences
Subject:
Women's Health
Subject:
Obstetrics and Gynecology
Subject:
Birth
Subject:
Labor and Delivery
Subject:
Medicine and Health Sciences
Subject:
Women's Health
Subject:
Maternal Health
Subject:
Birth
Subject:
Medicine and Health Sciences
Subject:
Women's Health
Subject:
Obstetrics and Gynecology
Subject:
Birth
Subject:
Medicine and Health Sciences
Subject:
Clinical Medicine
Subject:
Signs and Symptoms
Subject:
Pain
Subject:
Medicine and Health Sciences
Subject:
Epidemiology
Subject:
Medical Risk Factors
Subject:
Biology and Life Sciences
Subject:
Anatomy
Subject:
Musculoskeletal System
Subject:
Skeleton
Subject:
Skeletal Joints
Subject:
Medicine and Health Sciences
Subject:
Anatomy
Subject:
Musculoskeletal System
Subject:
Skeleton
Subject:
Skeletal Joints
Subject:
People and Places
Subject:
Population Groupings
Subject:
Age Groups
Subject:
Children
Subject:
Infants
Subject:
People and Places
Subject:
Population Groupings
Subject:
Families
Subject:
Children
Subject:
Infants
Subject:
Medicine and Health Sciences
Subject:
Women's Health
Subject:
Obstetrics and Gynecology
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