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      Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Diverse Urban Neighborhoods

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          Abstract

          Longitudinal, natural experiments provide an ideal evaluation approach to better understand the impact of built environment interventions on community health outcomes, particularly health disparities. As there are many participant engagement challenges inherent in the design of large-scale community-based studies, adaptive and iterative participant engagement strategies are critical. This paper shares practical lessons learned from the Physical Activity and Redesigned Community Spaces (PARCS) study, which is an evaluation of the impact of a citywide park renovation initiative on physical activity, psychosocial health, and community well-being. The PARCS study, although ongoing, has developed several approaches to improve participant engagement: building trust with communities, adapting the study protocol to meet participants’ needs and to reflect their capacity for participation, operational flexibility, and developing tracking systems. These strategies may help researchers anticipate and respond to participant engagement challenges in community-based studies, particularly in low-income communities of color.

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          Most cited references38

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          Projected U.S. State-Level Prevalence of Adult Obesity and Severe Obesity

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            Prevalence of childhood and adult obesity in the United States, 2011-2012.

            More than one-third of adults and 17% of youth in the United States are obese, although the prevalence remained stable between 2003-2004 and 2009-2010. To provide the most recent national estimates of childhood obesity, analyze trends in childhood obesity between 2003 and 2012, and provide detailed obesity trend analyses among adults. Weight and height or recumbent length were measured in 9120 participants in the 2011-2012 nationally representative National Health and Nutrition Examination Survey. In infants and toddlers from birth to 2 years, high weight for recumbent length was defined as weight for length at or above the 95th percentile of the sex-specific Centers for Disease Control and Prevention (CDC) growth charts. In children and adolescents aged 2 to 19 years, obesity was defined as a body mass index (BMI) at or above the 95th percentile of the sex-specific CDC BMI-for-age growth charts. In adults, obesity was defined as a BMI greater than or equal to 30. Analyses of trends in high weight for recumbent length or obesity prevalence were conducted overall and separately by age across 5 periods (2003-2004, 2005-2006, 2007-2008, 2009-2010, and 2011-2012). In 2011-2012, 8.1% (95% CI, 5.8%-11.1%) of infants and toddlers had high weight for recumbent length, and 16.9% (95% CI, 14.9%-19.2%) of 2- to 19-year-olds and 34.9% (95% CI, 32.0%-37.9%) of adults (age-adjusted) aged 20 years or older were obese. Overall, there was no significant change from 2003-2004 through 2011-2012 in high weight for recumbent length among infants and toddlers, obesity in 2- to 19-year-olds, or obesity in adults. Tests for an interaction between survey period and age found an interaction in children (P = .03) and women (P = .02). There was a significant decrease in obesity among 2- to 5-year-old children (from 13.9% to 8.4%; P = .03) and a significant increase in obesity among women aged 60 years and older (from 31.5% to 38.1%; P = .006). Overall, there have been no significant changes in obesity prevalence in youth or adults between 2003-2004 and 2011-2012. Obesity prevalence remains high and thus it is important to continue surveillance.
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              A systematic review of barriers and facilitators to minority research participation among African Americans, Latinos, Asian Americans, and Pacific Islanders.

              To assess the experienced or perceived barriers and facilitators to health research participation for major US racial/ethnic minority populations, we conducted a systematic review of qualitative and quantitative studies from a search on PubMed and Web of Science from January 2000 to December 2011. With 44 articles included in the review, we found distinct and shared barriers and facilitators. Despite different expressions of mistrust, all groups represented in these studies were willing to participate for altruistic reasons embedded in cultural and community priorities. Greater comparative understanding of barriers and facilitators to racial/ethnic minorities' research participation can improve population-specific recruitment and retention strategies and could better inform future large-scale prospective quantitative and in-depth ethnographic studies.
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                Author and article information

                Contributors
                Journal
                JMIR Form Res
                JMIR Form Res
                JFR
                JMIR Formative Research
                JMIR Publications (Toronto, Canada )
                2561-326X
                March 2021
                24 March 2021
                : 5
                : 3
                : e18591
                Affiliations
                [1 ] Center for Systems and Community Design Graduate School of Public Health and Health Policy City University of New York New York, NY United States
                [2 ] Department of Epidemiology Gillings School of Global Public Health University of North Carolina Chapel Hill, NC United States
                [3 ] Sophie Davis Biomedical Education Program City University of New York School of Medicine New York, NY United States
                [4 ] Department of Population Health School of Medicine New York University New York, NY United States
                [5 ] Research Triangle Institute Research Triangle Park Durham, NC United States
                Author notes
                Corresponding Author: Terry T-K Huang terry.huang@ 123456sph.cuny.edu
                Author information
                https://orcid.org/0000-0003-1134-1356
                https://orcid.org/0000-0002-5699-2497
                https://orcid.org/0000-0002-3720-5830
                https://orcid.org/0000-0003-0830-655X
                https://orcid.org/0000-0002-5535-2674
                https://orcid.org/0000-0002-3082-628X
                https://orcid.org/0000-0001-5544-5187
                Article
                v5i3e18591
                10.2196/18591
                8294636
                33759799
                cc2258aa-f51e-49cb-a313-8d63098c78d1
                ©Emily B Ferris, Katarzyna Wyka, Kelly R Evenson, Joan M Dorn, Lorna Thorpe, Diane Catellier, Terry T-K Huang. Originally published in JMIR Formative Research (http://formative.jmir.org), 24.03.2021.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License ( https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on http://formative.jmir.org, as well as this copyright and license information must be included.

                History
                : 10 March 2020
                : 15 June 2020
                : 30 September 2020
                : 20 January 2021
                Categories
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                community-based,participant engagement,natural experiment,built environment intervention,health disparities,study adaptations

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