Perspectives of clinicians and survivors on the continuity of service provision during rehabilitation after acquired brain injury

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Abstract

The objective was to explore the care experiences and service design related to rehabilitation for mobility and participation in the community among individuals with acquired brain injury (ABI), as perceived by clinicians and patients. Five focus groups were held: three with clinicians and two with individuals with ABI. Focus group discussions were transcribed and analyzed using an inductive and deductive thematic content approach. Five themes were identified: Enabling continuity of care; System design; Accessibility and services in the community; Transportation services; and Uncertainty about the provided services. The results of participants’ experiences contributed to developing recommendations of service provision for mobility, leading to a patient-centered continuum of rehabilitation services. Accessibility to rehabilitation to improve the quality of care by addressing needs during transitions and mobility-related deficits, providing needed information, coordinated care, and self-management support in the community.

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Using Zoom Videoconferencing for Qualitative Data Collection: Perceptions and Experiences of Researchers and Participants

Mandy Archibald, Rachel Ambagtsheer, Mavourneen G. Casey … (2019)

Advances in communication technologies offer new opportunities for the conduct of qualitative research. Among these, Zoom—an innovative videoconferencing platform—has a number of unique features that enhance its potential appeal to qualitative and mixed-methods researchers. Although studies have explored the use of information and communication technologies for conducting research, few have explored both researcher and participant perspectives on the use of web and videoconferencing platforms. Further, data are lacking on the benefits and challenges of using Zoom as a data collection method. In this study, we explore the feasibility and acceptability of using Zoom to collect qualitative interview data within a health research context in order to better understand its suitability for qualitative and mixed-methods researchers. We asked 16 practice nurses who participated in online qualitative interviews about their experiences of using Zoom and concurrently recorded researcher observations. Although several participants experienced technical difficulties, most described their interview experience as highly satisfactory and generally rated Zoom above alternative interviewing mediums such as face-to-face, telephone, and other videoconferencing services, platforms, and products. Findings suggest the viability of Zoom as a tool for collection of qualitative data because of its relative ease of use, cost-effectiveness, data management features, and security options. Further research exploring the utility of Zoom is recommended in order to critically assess and advance innovations in online methods.

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Telerehabilitation: Review of the State-of-the-Art and Areas of Application

Alessandro Peretti, Francesco Amenta, Seyed Tayebati … (2017)

Background Telemedicine applications have been increasing due to the development of new computer science technologies and of more advanced telemedical devices. Various types of telerehabilitation treatments and their relative intensities and duration have been reported. Objective The objective of this review is to provide a detailed overview of the rehabilitation techniques for remote sites (telerehabilitation) and their fields of application, with analysis of the benefits and the drawbacks related to use. We discuss future applications of telerehabilitation techniques with an emphasis on the development of high-tech devices, and on which new tools and applications can be used in the future. Methods We retrieved relevant information and data on telerehabilitation from books, articles and online materials using the Medical Subject Headings (MeSH) “telerehabilitation,” “telemedicine,” and “rehabilitation,” as well as “disabling pathologies.” Results Telerehabilitation can be considered as a branch of telemedicine. Although this field is considerably new, its use has rapidly grown in developed countries. In general, telerehabilitation reduces the costs of both health care providers and patients compared with traditional inpatient or person-to-person rehabilitation. Furthermore, patients who live in remote places, where traditional rehabilitation services may not be easily accessible, can benefit from this technology. However, certain disadvantages of telerehabilitation, including skepticism on the part of patients due to remote interaction with their physicians or rehabilitators, should not be underestimated. Conclusions This review evaluated different application fields of telerehabilitation, highlighting its benefits and drawbacks. This study may be a starting point for improving approaches and devices for telerehabilitation. In this context, patients’ feedback may be important to adapt rehabilitation techniques and approaches to their needs, which would subsequently help to improve the quality of rehabilitation in the future. The need for proper training and education of people involved in this new and emerging form of intervention for more effective treatment can’t be overstated.

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Longitudinal follow-up of patients with traumatic brain injury: outcome at two, five, and ten years post-injury.

Jennie Ponsford, Marina G Downing, John Olver … (2014)

The deleterious consequences of traumatic brain injury (TBI) impair capacity to return to many avenues of pre-morbid life. However, there has been limited longitudinal research examining outcome beyond five years post-injury. The aim of this study was to examine aspects of function, previously shown to be affected following TBI, over a span of 10 years. One hundred and forty one patients with TBI were assessed at two, five, and 10 years post-injury using the Structured Outcome Questionnaire. Fatigue and balance problems were the most common neurological symptoms, with reported rates decreasing only slightly during the 10-year period. Mobility outcomes were good in more than 75% of patients, with few participants requiring aids for mobility. Changes in cognitive, communication, behavioral, and emotional functions were reported by approximately 60% of the sample at all time points. Levels of independence in activities of daily living were high during the 10-year period, and as many as 70% of subjects returned to driving. Nevertheless, approximately 40% of patients required more support than before their injury. Only half the sample returned to previous leisure activities and fewer than half were employed at each assessment time post-injury. Although marital status remained stable over time, approximately 30% of participants reported difficulties in personal relationships. Older age at injury did not substantially alter the pattern of changes over time, except in employment. Overall, problems that were evident at two years post-injury persisted until 10 years post-injury. The importance of these findings is discussed with reference to rehabilitation programs.

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Author and article information

Contributors

Rehab Alhasani: Role: Writing – original draftRole: Writing – review & editing

Dennis Radman: Role: MethodologyRole: Validation

Claudine Auger:

ORCID: https://orcid.org/0000-0003-0159-2004

Role: MethodologyRole: Validation

Anouk Lamontagne: Role: MethodologyRole: Validation

Sara Ahmed:

ORCID: https://orcid.org/0000-0001-5172-6790

Role: Supervision

Jeffrey Jutai: Role: Editor

Journal

Journal ID (nlm-ta): PLoS One

Journal ID (iso-abbrev): PLoS One

Journal ID (publisher-id): plos

Title: PLOS ONE

Publisher: Public Library of Science (San Francisco, CA USA )

ISSN (Electronic): 1932-6203

Publication date (Electronic): 12 April 2023

Publication date Collection: 2023

Volume: 18

Issue: 4

Electronic Location Identifier: e0284375

Affiliations

[1 ] School of Physical and Occupation Therapy, Faculty of Medicine, McGill University, Montreal, Canada

[2 ] Centre for Interdisciplinary Research in Rehabilitation of Greater Montreal (CRIR), Montreal, Quebec, Canada

[3 ] Department of Rehabilitation Sciences, College of Health and Rehabilitation Sciences, Princess Nourah Bint Abdulrahman University, Riyadh, Saudi Arabia

[4 ] School of Rehabilitation, Faculty of Medicine, Université de Montréal, Montreal, Quebec, Canada

[5 ] Institut universitaire sur la réadaptation en déficience physique de Montréal, CIUSSS du Centre-Sud-de-l’Île-de-Montréal, Montréal, Québec, Canada

[6 ] Jewish Rehabilitation Hospital, CISSS de Laval, Laval, Quebec, Canada

[7 ] Constance Lethbridge Rehabilitation Center, CIUSSS Centre- Ouest de l’Îile de Montreal, Montreal, Quebec, Canada

[8 ] McGill University Health Center Research Institute, Clinical Epidemiology, Center for Outcome Research and Evaluation (CORE), Montreal, Quebec, Canada

University of Ottawa, CANADA

Author notes

Competing Interests: The authors have declared that no competing interests exist.

* E-mail: sara.ahmed@ 123456mcgill.ca

Author information

Claudine Auger https://orcid.org/0000-0003-0159-2004

Sara Ahmed https://orcid.org/0000-0001-5172-6790

Article

Publisher ID: PONE-D-22-20233

DOI: 10.1371/journal.pone.0284375

PMC ID: 10096466

PubMed ID: 37043494

SO-VID: ca296db3-4e84-45f8-b125-e71ce14f57cd

License:

This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

History

Date received : 19 July 2022

Date accepted : 29 March 2023

Page count

Figures: 1, Tables: 2, Pages: 22

Funding

Funded by: The Canadian Foundation of Innovation Funding for the Biomedical Research and Informatics Living Laboratory for Innovative Advances of New Technologies in Community Mobility Rehabilitation (BRILLIANT) (https:// www. brill iant- cfi)

Award Recipient : Rehab Alhasani

The Canadian Foundation of Innovation Funding for the Biomedical Research and Informatics Living Laboratory for Innovative Advances of New Technologies in Community Mobility Rehabilitation (BRILLIANT) ( https://www.brilliant-cfi).

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Perspectives of clinicians and survivors on the continuity of service provision during rehabilitation after acquired brain injury

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Most cited references 50

Using Zoom Videoconferencing for Qualitative Data Collection: Perceptions and Experiences of Researchers and Participants

Telerehabilitation: Review of the State-of-the-Art and Areas of Application

Longitudinal follow-up of patients with traumatic brain injury: outcome at two, five, and ten years post-injury.

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