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      Quantifying Family Spillover Effects in Economic Evaluations: Measurement and Valuation of Informal Care Time

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          Abstract

          Spillover effects on the welfare of family members may refer to caregiver health effects, informal care time costs, or both. This review focuses on methods that have been used to measure and value informal care time and makes suggestions for their appropriate use in cost-of-illness and cost-effectiveness analyses. It highlights the importance of methods to value informal care time that are independent of caregiver health effects in order to minimize double counting of spillover effects. Although the concept of including caregiver time costs in economic evaluations is not new, relatively few societal perspective cost-effectiveness analyses have included informal care, with the exception of dementia. This is due in part to challenges in measuring and valuing time costs. Analysts can collect information on time spent in informal care or can assess its impact in displacing other time use, notably time in paid employment. A key challenge is to ensure appropriate comparison groups that do not require informal care to be able to correctly estimate attributable informal care time or foregone market work. To value informal care time, analysts can use estimates of hourly earnings in either opportunity cost or replacement cost approaches. Researchers have used widely varying estimates of hourly earnings. Alternatively, stated-preference methods (i.e. contingent valuation, conjoint analysis) can be used to value the effect of informal care on utility, but this can entail double counting with health effects. Lack of consensus and standardization of methods makes it difficult to compare estimates of informal care costs.

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          The online version of this article (10.1007/s40273-019-00782-9) contains supplementary material, which is available to authorized users.

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          Most cited references87

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          A Meta-analysis of Hypothetical Bias in Stated Preference Valuation

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            Does informal care from children to their elderly parents substitute for formal care in Europe?

            This paper analyzes the impact of informal care by adult children on the use of long-term care among the elderly in Europe and the effect of the level of the parent's disability on this relationship. We focus on two types of formal home care that are the most likely to interact with informal care: paid domestic help and nursing care. Using recent European data emerging from the Survey on Health, Ageing and Retirement in Europe (SHARE), we build a two-part utilization model analyzing both the decision to use each type of formal care or not and the amount of formal care received by the elderly. Instrumental variables estimations are used to control for the potential endogeneity existing between formal and informal care. We find endogeneity of informal care in the decision to receive paid domestic help. Estimation results indicate that informal care substitutes for this type of formal home care. However, we find that this substitution effect tends to disappear as the level of disability of the elderly person increases. Finally, informal care is a weak complement to nursing care, independently of the level of disability. These results highlight the heterogeneous effects of informal care on formal care use and suggest that informal care is an effective substitute for long-term care as long as the needs of the elderly are low and require unskilled type of care. Any policy encouraging informal care to decrease long-term care expenditures should take it into account to assess its effectiveness.
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              Economic valuation of informal care. An overview of methods and applications.

              Informal care makes up a significant part of the total amount of care provided to care recipients with chronic and terminal diseases. Still, informal care is often neglected in economic evaluations of health care programs. Probably this is related to the fact that the costs of informal care are to an important extent related to time inputs by relatives and friends of care recipients and time is not easy to value. Development of theoretically sound, yet easily applicable valuation methods is therefore important since ignoring the costs of informal care may lead to undesirable shifts between formal and informal care. Moreover, there is increasing evidence that providing informal care may lead to health problems for the caregiver, both in terms of morbidity and mortality. Until now these health effects have not been incorporated in economic evaluations. More attention for the identification and valuation of the full costs and (health) effects of informal care for the informal caregiver seems needed therefore. This contribution presents a critical evaluation of the available methods to incorporate informal care in economic evaluations.
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                Author and article information

                Contributors
                404-498-3074 , sgrosse@cdc.gov
                Journal
                Pharmacoeconomics
                Pharmacoeconomics
                Pharmacoeconomics
                Springer International Publishing (Cham )
                1170-7690
                1179-2027
                6 April 2019
                6 April 2019
                2019
                : 37
                : 4
                : 461-473
                Affiliations
                [1 ]ISNI 0000 0001 2163 0069, GRID grid.416738.f, National Center on Birth Defects and Developmental Disabilities, , Centers for Disease Control and Prevention, ; 4770 Buford Highway NE, MS E-87, Atlanta, GA 30341 USA
                [2 ]ISNI 0000 0001 2163 0069, GRID grid.416738.f, Immunization Services Division, National Center for Immunization and Respiratory Disease, , Centers for Disease Control and Prevention, ; Atlanta, GA USA
                [3 ]ISNI 0000 0004 4687 1637, GRID grid.241054.6, Department of Health Policy and Management, Fay W. Boozman College of Public Health, , University of Arkansas for Medical Sciences, ; Little Rock, AR USA
                Author information
                http://orcid.org/0000-0003-1078-6855
                http://orcid.org/0000-0002-3442-5627
                http://orcid.org/0000-0003-3505-2559
                Article
                782
                10.1007/s40273-019-00782-9
                6529092
                30953263
                c99f8308-7e7f-4fe4-a21e-dc4d9863574d
                © The Author(s) 2019

                Open AccessThis article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International License ( http://creativecommons.org/licenses/by-nc/4.0/), which permits any noncommercial use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made.

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                Review Article
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                © Springer Nature Switzerland AG 2019

                Economics of health & social care
                Economics of health & social care

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