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      Prenatal diagnosis and selective abortion: a challenge to practice and policy.

      American Journal of Public Health
      American Public Health Association

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          Abstract

          Professionals should reexamine negative assumptions about the quality of life with prenatally detectable impairments and should reform clinical practice and public policy to improve informed decision making and genuine reproductive choice. Current data on children and families affected by disabilities indicate that disability does not preclude a satisfying life. Many problems attributed to the existence of a disability actually stem from inadequate social arrangements that public health professionals should work to change. This article assumes a pro-choice perspective but suggests that unreflective uses of prenatal testing could diminish, rather than expand, women's choices. This critique challenges the view of disability that lies behind the social endorsement of such testing and the conviction that women will or should end their pregnancies if they discover that the fetus has a disabling trait.

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          Most cited references17

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          Genetic dilemmas and the child's right to an open future.

          D. Davis (1997)
          Although deeply committed to the model of nondirective counseling, most genetic counselors enter the profession with certain assumptions about health and disability-for example, that it is preferable to be a hearing person than a deaf person. Thus, most genetic counselors are deeply troubled when parents with certain disabilities ask for assistance in having a child who shares their disability. This ethical challenge benefits little from viewing it as a conflict between beneficence and autonomy. The challenge is better recast as a conflict between parental autonomy and the child's future autonomy.
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            Special Supplement: The Disability Rights Critique of Prenatal Genetic Testing Reflections and Recommendations

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              Prenatal Genetic Testing and Screening: Constructing Needs and Reinforcing Inequities

              This Article considers the influence and implications of the application of genetic technologies to definitions of disease and to the treatment of illness. The concept of “geneticization” is introduced to emphasize the dominant discourse in today's stories of health and disease and the social construction of biological phenomenon is described. The reassurance, choice and control supposedly provided by prenatal genetic testing and screening are critically examined, and their role in constructing the need for such technology is addressed. Using the stories told about prenatal diagnosis as a focus, the consequences of a genetic perspective for and on women and their health care needs are explored.
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                Author and article information

                Journal
                American Journal of Public Health
                Am J Public Health
                American Public Health Association
                0090-0036
                1541-0048
                November 1999
                November 1999
                : 89
                : 11
                : 1649-1657
                Article
                10.2105/AJPH.89.11.1649
                1508970
                10553384
                c7939350-1988-49d1-b784-b6c61091a3cf
                © 1999
                History

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