7
views
0
recommends
+1 Recommend
0 collections
    0
    shares
      • Record: found
      • Abstract: found
      • Article: found
      Is Open Access

      Understanding the complexities of unexplained stillbirth in sub‐Saharan Africa: a mixed‐methods study

      research-article

      Read this article at

      Bookmark
          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          Objective

          To understand the complexities surrounding unexplained stillbirth for the development and implementation of culturally acceptable interventions to underpin care in Tanzania and Zambia.

          Design

          Mixed‐methods study.

          Setting

          Tertiary, secondary and primary care facilities in Mansa, Zambia, and Mwanza, Tanzania.

          Sample

          Quantitative: 1997 women giving birth at two tertiary care facilities (one in each country). Qualitative: 48 women and 19 partners from tertiary, secondary and primary care facilities.

          Methods

          Case review using data from a target of 2000 consecutive case records. Qualitative interviews with a purposive sample of women and partners, using a grounded theory approach.

          Results

          A total of 261 stillbirths were recorded, with a rate of 16% in Tanzania and 10% in Zambia, which is higher than the previous estimates of 2.24 and 2.09%, respectively, for those countries. Women in both countries who reported a previous stillbirth were more likely to have stillbirth (RR 1.86, 95% CI 1.23–2.81). The cause of death was unexplained in 28% of cases. Qualitative findings indicated that not knowing what caused the baby to be stillborn prevented women from grieving. This was compounded by the poor communication skills of health professionals, who displayed little empathy and skill when counselling bereaved families.

          Conclusions

          The stillbirth risk in both facilities was far higher than the risk recorded from national data, with women reporting a previous stillbirth being at higher risk. Women want to know the cause of stillbirth and an exploration of appropriate investigations in this setting is required. Providing health professionals with support and continuing training is key to improving the experiences of women and future care.

          Tweetable abstract

          Stillbirths receive little investigation and are often unexplained. Communication with women about the death of their baby is limited.

          Tweetable abstract

          Stillbirths receive little investigation and are often unexplained. Communication with women about the death of their baby is limited.

          Related collections

          Most cited references29

          • Record: found
          • Abstract: found
          • Article: not found

          Research electronic data capture (REDCap)--a metadata-driven methodology and workflow process for providing translational research informatics support.

          Research electronic data capture (REDCap) is a novel workflow methodology and software solution designed for rapid development and deployment of electronic data capture tools to support clinical and translational research. We present: (1) a brief description of the REDCap metadata-driven software toolset; (2) detail concerning the capture and use of study-related metadata from scientific research teams; (3) measures of impact for REDCap; (4) details concerning a consortium network of domestic and international institutions collaborating on the project; and (5) strengths and limitations of the REDCap system. REDCap is currently supporting 286 translational research projects in a growing collaborative network including 27 active partner institutions.
            Bookmark
            • Record: found
            • Abstract: found
            • Book: not found

            The Discovery of Grounded Theory

            <p>Most writing on sociological method has been concerned with how accurate facts can be obtained and how theory can thereby be more rigorously tested. In The Discovery of Grounded Theory, Barney Glaser and Anselm Strauss address the equally Important enterprise of how the discovery of theory from data--systematically obtained and analyzed in social research--can be furthered. The discovery of theory from data--grounded theory--is a major task confronting sociology, for such a theory fits empirical situations, and is understandable to sociologists and laymen alike. Most important, it provides relevant predictions, explanations, interpretations, and applications.</p><p>In Part I of the book, Generation Theory by Comparative Analysis, the authors present a strategy whereby sociologists can facilitate the discovery of grounded theory, both substantive and formal. This strategy involves the systematic choice and study of several comparison groups. In Part II, The Flexible Use of Data, the generation of theory from qualitative, especially documentary, and quantitative data Is considered. In Part III, Implications of Grounded Theory, Glaser and Strauss examine the credibility of grounded theory.</p><p>The Discovery of Grounded Theory is directed toward improving social scientists' capacity for generating theory that will be relevant to their research. While aimed primarily at sociologists, it will be useful to anyone Interested In studying social phenomena--political, educational, economic, industrial-- especially If their studies are based on qualitative data.</p></p>
              Bookmark
              • Record: found
              • Abstract: found
              • Article: found

              Stillbirths: rates, risk factors, and acceleration towards 2030

              An estimated 2.6 million third trimester stillbirths occurred in 2015 (uncertainty range 2.4-3.0 million). The number of stillbirths has reduced more slowly than has maternal mortality or mortality in children younger than 5 years, which were explicitly targeted in the Millennium Development Goals. The Every Newborn Action Plan has the target of 12 or fewer stillbirths per 1000 births in every country by 2030. 94 mainly high-income countries and upper middle-income countries have already met this target, although with noticeable disparities. At least 56 countries, particularly in Africa and in areas affected by conflict, will have to more than double present progress to reach this target. Most (98%) stillbirths are in low-income and middle-income countries. Improved care at birth is essential to prevent 1.3 million (uncertainty range 1.2-1.6 million) intrapartum stillbirths, end preventable maternal and neonatal deaths, and improve child development. Estimates for stillbirth causation are impeded by various classification systems, but for 18 countries with reliable data, congenital abnormalities account for a median of only 7.4% of stillbirths. Many disorders associated with stillbirths are potentially modifiable and often coexist, such as maternal infections (population attributable fraction: malaria 8.0% and syphilis 7.7%), non-communicable diseases, nutrition and lifestyle factors (each about 10%), and maternal age older than 35 years (6.7%). Prolonged pregnancies contribute to 14.0% of stillbirths. Causal pathways for stillbirth frequently involve impaired placental function, either with fetal growth restriction or preterm labour, or both. Two-thirds of newborns have their births registered. However, less than 5% of neonatal deaths and even fewer stillbirths have death registration. Records and registrations of all births, stillbirths, neonatal, and maternal deaths in a health facility would substantially increase data availability. Improved data alone will not save lives but provide a way to target interventions to reach more than 7000 women every day worldwide who experience the reality of stillbirth.
                Bookmark

                Author and article information

                Contributors
                carol.bedwell@lstmed.ac.uk
                Journal
                BJOG
                BJOG
                10.1111/(ISSN)1471-0528
                BJO
                Bjog
                John Wiley and Sons Inc. (Hoboken )
                1470-0328
                1471-0528
                11 January 2021
                June 2021
                : 128
                : 7 ( doiID: 10.1111/bjo.v128.7 )
                : 1206-1214
                Affiliations
                [ 1 ] International Public Health Liverpool School of Tropical Medicine Liverpool UK
                [ 2 ] School of Health Sciences University of Manchester Manchester UK
                [ 3 ] Archbishop Antony Mayala School of Nursing Catholic University of Health and Allied Health Sciences Mwanza Tanzania
                [ 4 ] Department of Public Health and Research Ministry of Health Headquarters Lusaka Zambia
                [ 5 ] University of Nairobi Nairobi Kenya
                [ 6 ] Perinatal Imaging and Health King's College London London UK
                Author notes
                [*] [* ] Correspondence: Dr C Bedwell, International Public Health, Liverpool School of Tropical Medicine, Liverpool, L3 5QA UK, UK. Email: carol.bedwell@ 123456lstmed.ac.uk

                Author information
                https://orcid.org/0000-0001-8031-7793
                https://orcid.org/0000-0003-2476-1659
                https://orcid.org/0000-0002-6406-1318
                https://orcid.org/0000-0002-4417-7786
                https://orcid.org/0000-0002-5314-7626
                https://orcid.org/0000-0003-1473-4956
                Article
                BJO16629
                10.1111/1471-0528.16629
                8248405
                33319470
                c2afa730-6605-41f4-8f19-c0f5dc4f6869
                © 2021 The Authors. BJOG: An International Journal of Obstetrics and Gynaecology published by John Wiley & Sons Ltd.

                This is an open access article under the terms of the http://creativecommons.org/licenses/by/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

                History
                : 07 December 2020
                Page count
                Figures: 0, Tables: 4, Pages: 9, Words: 7205
                Funding
                Funded by: National Institute for Health Research (NIHR) , open-funder-registry 10.13039/501100000272;
                Award ID: 16/137/53
                Award ID: 16/137/53
                Award ID: 16/137/53
                Categories
                Original Article
                Original Articles
                General Obstetrics
                Custom metadata
                2.0
                June 2021
                Converter:WILEY_ML3GV2_TO_JATSPMC version:6.0.2 mode:remove_FC converted:01.07.2021

                Obstetrics & Gynecology
                autopsy,communication,grief,mixed‐methods study,stillbirth,sub‐saharan africa

                Comments

                Comment on this article