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      Factors Predicting Parent Participation in Caring for Hospitalized Children with Chronic Diseases

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      The Open Public Health Journal
      Bentham Science Publishers Ltd.

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          Abstract

          Background:

          Being hospitalized with chronic disease is a stressful situation for most children that can be affect their well-being. Parent participation in child care is required for getting a better outcome.

          Objective:

          The objective of this study was to identify factors predicting parent participation in caring for hospitalized children with chronic diseases.

          Methods:

          In this study, the participants consisted of 234 parents of hospitalized children with chronic diseases and 125 nurses who cared for the children in four tertiary hospitals in central Thailand. Self-reported questionnaires were used in data collection. Data were analyzed using a descriptive statistic, Spearman’s correlation coefficient, and ordinal regression.

          Results:

          The results revealed that parent participation in caring for hospitalized children with chronic diseases had a statistically significant positive relationship with perceived self-efficacy in caring for hospitalized child, information support from health care providers, and communication between parents and nurse (r = .39, .34, and .39 p < .01, respectively). Using ordinal regression analysis, the parents’ perceived self-efficacy in caring for their child was the only predictor of parent participation in caring for hospitalized children with chronic diseases, accounting for 72.65%.

          Conclusion:

          Parents’ perceived self-efficacy in child care was the only predictor with a strong influence on parent participation in child care. This can be used as preliminary data for developing an effective intervention program for enhancing parent participation that would result in better health and quality of life for those children.

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          Most cited references24

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          Comparison of Values of Pearson's and Spearman's Correlation Coefficients on the Same Sets of Data

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            Family-Centered Care: Current Applications and Future Directions in Pediatric Health Care

            Family-centered care (FCC) is a partnership approach to health care decision-making between the family and health care provider. FCC is considered the standard of pediatric health care by many clinical practices, hospitals, and health care groups. Despite widespread endorsement, FCC continues to be insufficiently implemented into clinical practice. In this paper we enumerate the core principles of FCC in pediatric health care, describe recent advances applying FCC principles to clinical practice, and propose an agenda for practitioners, hospitals, and health care groups to translate FCC into improved health outcomes, health care delivery, and health care system transformation.
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              Reducing premature infants' length of stay and improving parents' mental health outcomes with the Creating Opportunities for Parent Empowerment (COPE) neonatal intensive care unit program: a randomized, controlled trial.

              Although low birth weight premature infants and parents are at high risk for adverse health outcomes, there is a paucity of studies that test early NICU interventions with parents to prevent the development of negative parent-infant interaction trajectories and to reduce hospital length of stay. Our objective was to evaluate the efficacy of an educational-behavioral intervention program (ie, Creating Opportunities for Parent Empowerment) that was designed to enhance parent-infant interactions and parent mental health outcomes for the ultimate purpose of improving child developmental and behavior outcomes. A randomized, controlled trial was conducted with 260 families with preterm infants from 2001 to 2004 in 2 NICUs in the northeast United States. Parents completed self-administered instruments during hospitalization, within 7 days after infant discharge, and at 2 months' corrected age. Blinded observers rated parent-infant interactions in the NICU. All participants received 4 intervention sessions of audiotaped and written materials. Parents in the Creating Opportunities for Parent Empowerment program received information and behavioral activities about the appearance and behavioral characteristics of preterm infants and how best to parent them. The comparison intervention contained information regarding hospital services and policies. Parental stress, depression, anxiety, and beliefs; parent-infant interaction during the NICU stay; NICU length of stay; and total hospitalization were measured. Mothers in the Creating Opportunities for Parent Empowerment program reported significantly less stress in the NICU and less depression and anxiety at 2 months' corrected infant age than did comparison mothers. Blinded observers rated mothers and fathers in the Creating Opportunities for Parent Empowerment program as more positive in interactions with their infants. Mothers and fathers also reported stronger beliefs about their parental role and what behaviors and characteristics to expect of their infants during hospitalization. Infants in the Creating Opportunities for Parent Empowerment program had a 3.8-day shorter NICU length of stay (mean: 31.86 vs 35.63 days) and 3.9-day shorter total hospital length of stay (mean: 35.29 vs 39.19 days) than did comparison infants. A reproducible educational-behavioral intervention program for parents that commences early in the NICU can improve parent mental health outcomes, enhance parent-infant interaction, and reduce hospital length of stay.
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                Author and article information

                Journal
                The Open Public Health Journal
                TOPHJ
                Bentham Science Publishers Ltd.
                1874-9445
                April 20 2021
                April 20 2021
                : 14
                : 1
                : 189-195
                Article
                10.2174/1874944502114010189
                b9a77615-1a56-4e8e-bbc5-ac02b8378749
                © 2021

                https://creativecommons.org/licenses/by/4.0/legalcode

                History

                Medicine,Chemistry,Life sciences
                Medicine, Chemistry, Life sciences

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