Correction to: <i>“PPI? That sounds like Payment Protection Insurance”</i>: Reflections and learning from a substance use and homelessness study Experts by Experience group

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Abstract

Correction to: Research Involvement and Engagement (2021) 7:82 10.1186/s40900-021-00324-8 Following publication of the original article [1], the authors reported errors in the Funding section. The revised Funding section is indicated hereafter and the changes have been highlighted in bold typeface. The incorrect Funding section reads: The Experts by Experience group was funded by a study which was funded in whole by the National Institute for Health Research, grant number HTA 16/153/14. For the purposes of open access, the authors have applied a CC BY public copyright licence to any Author Accepted Manuscript version arising from this submission. The correct Funding section should read: This project was funded by the Health Technology Assessment Programme (project number 16/153/14) and is now published in full in the Health Technology Assessment online journal [volume 26, and issue number 14, February 2022) and available here https://www.journalslibrary.nihr.ac.uk/hta/WVVL4786#/abstract Further information on the project is available at: https://www.journalslibrary.nihr.ac.uk/programmes/hta/1615314/#/ This report presents independent research commissioned by the National Institute for Health Research (NIHR). The views and opinions expressed by authors in this publication are those of the authors and do not necessarily reflect those of the NHS, the NIHR, MRC, CCF, NETSCC, the HTA programme or the Department of Health. All the changes requested are implemented in this correction and the original article [1] has been corrected.

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“ PPI? That sounds like Payment Protection Insurance”: Reflections and learning from a substance use and homelessness study Experts by Experience group

Rebecca Foster, Hannah Carver, Jason K. Wallace … (2021)

Background Patient and Public Involvement in research is important for citizenship, accountability and transparency, and has the practical benefit of helping to ensure its quality and applicability. Involving members of the public in research is becoming increasingly commonplace, in the UK and internationally. It is essential that public involvement is inclusive of individuals and their diverse life experiences, including challenging experiences that may be associated with stigma and social exclusion. The involvement of people with lived/living experience of substance use and homelessness in research is increasing in response to increased recognition of the importance of inclusion and the benefits conferred to research. Main body In this commentary, we share our own experiences of being part of a Patient and Public Involvement group that was convened during a feasibility study of a peer-delivered harm reduction intervention. We are a diverse group but share experience of the field of substance use/homelessness, as people with lived/living experience, and as researchers and practitioners. We share our reflections and learning, as well as offer recommendations for researchers working in our field. Our group worked together to make a positive and deliberate contribution to the study. This did not happen by chance but required the development of mutual trust and respect, with each member having a commitment to support the group for its two-year duration. Short conclusion It is important for researchers to appreciate that meaningful Patient and Public Involvement is very valuable but requires a commitment from all involved. Regarding our field of substance use and homelessness specifically, it is essential that people with these experiences have opportunities to contribute to research and can do so in a meaningful way. People with lived/living experience are able to bring to life the rich tapestry of others’ experiences. However, the involvement must be neither tokenistic nor indifferent to the wider challenges common to these experiences. This article describes the activities and lessons learned from the involvement of an Experts by Experience group in a National Institute for Health Research (NIHR) study. The study was about peer support for people experiencing homelessness and substance use challenges. The Experts by Experience group was made up of research team members, and a range of individuals from across the UK who had experienced homelessness and/or drug use and/or alcohol use, and who were recruited from a range of services who currently worked with people experiencing homelessness and/or substance use. The purpose of the group was to ‘sense check’ the study throughout. The group was a requirement from NIHR who funded the project. These groups are usually known as PPI groups (Patient and Public Involvement), but members of the group felt that ‘Experts by Experience’ was a more accurate term to describe the membership. The lived/living experience members’ knowledge of the topic, and experience of using the types of services and interventions involved in the study, helped to guide the study team. Study team members facilitated Experts by Experience group meetings, but everyone was equal. The group gelled and worked well together to oversee the study. This article describes the benefits of having Experts by Experience members as part of the project from the inception through to the end. Ensuring the group had autonomy enhanced the study and was a powerful and empowering experience for the lived/living experience members.

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Author and article information

Contributors

Hannah Carver: Hannah.Carver@stir.ac.uk

Journal

Journal ID (nlm-ta): Res Involv Engagem

Journal ID (iso-abbrev): Res Involv Engagem

Title: Research Involvement and Engagement

Publisher: BioMed Central (London )

ISSN (Electronic): 2056-7529

Publication date (Electronic): 3 May 2022

Publication date PMC-release: 3 May 2022

Publication date Collection: 2022

Volume: 8

Electronic Location Identifier: 17

Affiliations

[1 ]GRID grid.11918.30, ISNI 0000 0001 2248 4331, Salvation Army Centre for Addiction Services and Research, Faculty of Social Sciences, 4S26 RG Bomont Building, , University of Stirling, ; Stirling, FK9 4LA UK

[2 ]The Scottish Drugs Forum, 91 Mitchell Street, Glasgow, UK

[3 ]The Ragged University, Online Forum, Edinburgh, UK

[4 ]Expert Focus, Basildon, Essex UK

[5 ]Turning Point Scotland, 54 Govan Road, Glasgow, UK

[6 ]GRID grid.143640.4, ISNI 0000 0004 1936 9465, School of Nursing, , University of Victoria, ; Victoria, Canada

Article

Publisher ID: 352

DOI: 10.1186/s40900-022-00352-y

PMC ID: 9066787

PubMed ID: 35505449

SO-VID: b892eb52-dcf7-4783-a2ad-dd2d3a71e411

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Open AccessThis article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver ( http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.

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Correction to: “PPI? That sounds like Payment Protection Insurance”: Reflections and learning from a substance use and homelessness study Experts by Experience group

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