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Abstract
This article describes the implementation of SHARE (Support, Health, Activities, Resources,
and Education), a counseling-based care-planning intervention for persons living with
early-stage dementia and their family caregivers (CGs). The foundation of SHARE is
built upon assessing and documenting the person living with dementia's care values
and preferences for future care. Using the SHARE approach, CGs are given an opportunity
to achieve an understanding of their loved one's desires before the onset of disease
progression when the demand for making care decisions is high. Through working together
with a SHARE Counselor, the care dyad begins to identify other sources of support,
such as family and friends and service providers, in order to build a more balanced
and realistic plan of care for the future. Data were collected from 40 early-stage
dementia care dyads to determine the acceptability of having structured discussions
about future care in the early stages of dementia. Findings from this study demonstrate
the importance of planning in the early stages when persons with dementia can voice
their care values and preferences for future care. Finally, this paper illustrates
the use of supportive strategies such as rapport building, establishing buy-in, and
communication to initiate care-related discussions with care dyads in the early stages
that will help lead to more effective decision making in the future.
Recent developments in basic research suggest that therapeutic breakthroughs may occur in Alzheimer's disease treatment over the coming decades. To model the potential magnitude and nature of the effect of these advances, historical data from congestive heart failure and Parkinson's disease were used. Projections indicate that therapies which delay disease onset will markedly reduce overall disease prevalence, whereas therapies to treat existing disease will alter the proportion of cases that are mild as opposed to moderate/severe. The public health impact of such changes would likely involve both the amount and type of health services needed. Particularly likely to arise are new forms of outpatient services, such as disease-specific clinics and centers. None of our models predicts less than a threefold rise in the total number of persons with Alzheimer's disease between 2000 and 2050. Therefore, Alzheimer's care is likely to remain a major public health problem during the coming decades.