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      Communicating diagnoses to individuals with a first episode psychosis: A qualitative study of individuals perspectives

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          Abstract

          Background

          Receiving the label of a psychotic disorder influences self-perception and may result in negative outcomes such as self-stigma and decreased self-esteem. The way the diagnosis is communicated to individuals may affect these outcomes.

          Aims

          This study aims to explore the experiences and needs of individuals after a first episode of psychosis with regard to the way in which information about diagnosis, treatment options and prognosis is communicated with them.

          Design and methods

          A descriptive interpretative phenomenological approach was used. Fifteen individuals who experienced a first episode of psychosis participated in individual semi-structured open-ended interviews on their experiences and needs regarding the process of providing information about diagnosis, treatment options and prognosis. Inductive thematic analysis was used to analyze the interviews.

          Results

          Four recurring themes where identified (1) timing (when); (2) content (what); and (3) the way information is provided (how). Individuals also reported that the provided information could elicit an emotional reaction, for which they would require specific attention, therefore the fourth theme is (4) reactions and feelings.

          Conclusion

          This study provides new insights into the experiences and specific information needed by individuals with a first episode of psychosis. Results suggest that individuals have different needs regarding the type of (what), how and when to receive information about diagnosis and treatment options. This requires a tailor-made process of communicating diagnosis. A guideline on when, how and what to inform, as well as providing personalized written information regarding the diagnosis and treatment options, is recommended.

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          Most cited references45

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          Using thematic analysis in psychology

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            Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.

            Qualitative research explores complex phenomena encountered by clinicians, health care providers, policy makers and consumers. Although partial checklists are available, no consolidated reporting framework exists for any type of qualitative design. To develop a checklist for explicit and comprehensive reporting of qualitative studies (in depth interviews and focus groups). We performed a comprehensive search in Cochrane and Campbell Protocols, Medline, CINAHL, systematic reviews of qualitative studies, author or reviewer guidelines of major medical journals and reference lists of relevant publications for existing checklists used to assess qualitative studies. Seventy-six items from 22 checklists were compiled into a comprehensive list. All items were grouped into three domains: (i) research team and reflexivity, (ii) study design and (iii) data analysis and reporting. Duplicate items and those that were ambiguous, too broadly defined and impractical to assess were removed. Items most frequently included in the checklists related to sampling method, setting for data collection, method of data collection, respondent validation of findings, method of recording data, description of the derivation of themes and inclusion of supporting quotations. We grouped all items into three domains: (i) research team and reflexivity, (ii) study design and (iii) data analysis and reporting. The criteria included in COREQ, a 32-item checklist, can help researchers to report important aspects of the research team, study methods, context of the study, findings, analysis and interpretations.
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              Naturalistic inquiry

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                Author and article information

                Contributors
                Journal
                Front Psychiatry
                Front Psychiatry
                Front. Psychiatry
                Frontiers in Psychiatry
                Frontiers Media S.A.
                1664-0640
                16 February 2023
                2023
                : 14
                : 1098224
                Affiliations
                [1] 1Friesland Mental Health Care Services , Leeuwarden, Netherlands
                [2] 2Department of Clinical Psychology and Experimental Psychopathology, University of Groningen , Groningen, Netherlands
                [3] 3Department of Psychotic Disorders, GGZ Drenthe Mental Health Institute , Assen, Netherlands
                [4] 4Department of Psychology, Bar-Ilan University , Ramat Gan, Israel
                [5] 5Department of Healthcare and Welfare, NHL Stenden University of Applied Sciences , Leeuwarden, Netherlands
                [6] 6KieN VIP Mental Health Care Services , Leeuwarden, Netherlands
                [7] 7Department of Psychiatry, UMC Utrecht Brain Center, University Medical Center Utrecht , Utrecht, Netherlands
                Author notes

                Edited by: Arjen Noordhof, University of Amsterdam, Netherlands

                Reviewed by: Katrine Schepelern Johansen, Competence Centre for Dual Diagnosis, Denmark; Doron Amsalem, Columbia University, United States

                *Correspondence: Nynke Boonstra, nynke.boonstra@ 123456nhlstenden.com

                This article was submitted to Psychopathology, a section of the journal Frontiers in Psychiatry

                Article
                10.3389/fpsyt.2023.1098224
                9980435
                36873199
                b47ec7e0-0f6e-44a7-94bf-ef233a4b888d
                Copyright © 2023 Huurman, Pijnenborg, Sportel, van Rijsbergen, Hasson-Ohayon and Boonstra.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

                History
                : 14 November 2022
                : 30 January 2023
                Page count
                Figures: 0, Tables: 2, Equations: 0, References: 45, Pages: 10, Words: 8853
                Categories
                Psychiatry
                Original Research

                Clinical Psychology & Psychiatry
                psychosis,communicating,stigma,needs,individual’s perception
                Clinical Psychology & Psychiatry
                psychosis, communicating, stigma, needs, individual’s perception

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