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      Autistic Self-Advocacy and the Neurodiversity Movement: Implications for Autism Early Intervention Research and Practice

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          Abstract

          The growth of autistic self-advocacy and the neurodiversity movement has brought about new ethical, theoretical and ideological debates within autism theory, research and practice. These debates have had genuine impact within some areas of autism research but their influence is less evident within early intervention research. In this paper, we argue that all autism intervention stakeholders need to understand and actively engage with the views of autistic people and with neurodiversity as a concept and movement. In so doing, intervention researchers and practitioners are required to move away from a normative agenda and pay diligence to environmental goodness-of-fit, autistic developmental trajectories, internal drivers and experiences, and autistic prioritized intervention targets. Autism intervention researchers must respond to these debates by reframing effectiveness, developing tools to measure autistic prioritized outcomes, and forming partnerships with autistic people. There is a pressing need for increased reflection and articulation around how intervention practices align with a neurodiversity framework and greater emphasis within intervention programmes on natural developmental processes, coping strategies, autonomy, and well-being.

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          The Politics of Disablement

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            Which terms should be used to describe autism? Perspectives from the UK autism community.

            Recent public discussions suggest that there is much disagreement about the way autism is and should be described. This study sought to elicit the views and preferences of UK autism community members - autistic people, parents and their broader support network - about the terms they use to describe autism. In all, 3470 UK residents responded to an online survey on their preferred ways of describing autism and their rationale for such preferences. The results clearly show that people use many terms to describe autism. The most highly endorsed terms were 'autism' and 'on the autism spectrum', and to a lesser extent, 'autism spectrum disorder', for which there was consensus across community groups. The groups disagreed, however, on the use of several terms. The term 'autistic' was endorsed by a large percentage of autistic adults, family members/friends and parents but by considerably fewer professionals; 'person with autism' was endorsed by almost half of professionals but by fewer autistic adults and parents. Qualitative analysis of an open-ended question revealed the reasons underlying respondents' preferences. These findings demonstrate that there is no single way of describing autism that is universally accepted and preferred by the UK's autism community and that some disagreements appear deeply entrenched.
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              On the ontological status of autism: the ‘double empathy problem’

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                Author and article information

                Contributors
                Journal
                Front Psychol
                Front Psychol
                Front. Psychol.
                Frontiers in Psychology
                Frontiers Media S.A.
                1664-1078
                12 April 2021
                2021
                : 12
                : 635690
                Affiliations
                [1] 1Division of Neuroscience and Experimental Psychology, University of Manchester , Manchester, United Kingdom
                [2] 2The Autscape Organisation , Coventry, United Kingdom
                [3] 3The European Council of Autistic People , Prague, Czechia
                Author notes

                Edited by: Laura Crane, University College London, United Kingdom

                Reviewed by: Sue Fletcher-Watson, University of Edinburgh, United Kingdom; Kristen Marie Bottema-Beutel, Boston College, United States

                *Correspondence: Kathy Leadbitter kathy.leadbitter@ 123456manchester.ac.uk

                This article was submitted to Psychology for Clinical Settings, a section of the journal Frontiers in Psychology

                Article
                10.3389/fpsyg.2021.635690
                8075160
                33912110
                a26c2277-999c-408f-becf-208845cb2830
                Copyright © 2021 Leadbitter, Buckle, Ellis and Dekker.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

                History
                : 30 November 2020
                : 23 February 2021
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 75, Pages: 7, Words: 5935
                Categories
                Psychology
                Perspective

                Clinical Psychology & Psychiatry
                autism,children,neurodiversity,self-advocacy,early intervention
                Clinical Psychology & Psychiatry
                autism, children, neurodiversity, self-advocacy, early intervention

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