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      Rede social e virtual de apoio ao adolescente que convive com doença crônica: uma revisão integrativa Translated title: Social and Virtual Support Network for Teenagers Living with Chronic Disease: An Integrative Review Translated title: Red social y virtual de apoyo al adolescente que convive con enfermedad crónica: una revisión integradora

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          Abstract

          Objetivo: identificar o papel do enfermeiro na rede social e virtual de apoio aos adolescentes que convivem com o diagnóstico de doença crônica. Metodologia: trata-se de uma revisão integrativa, realizada na base de dados: MEDLINE, LILACS e BDENF, no período de junho a novembro de 2013, com artigos indexados a partir de 2008 até 2013 e os descritores: "enfermagem", "apoio social", "adolescentes", "doenças crônicas" e "rede social". Resultados: os artigos descrevem que o apoio social de forma direta aos portadores de doenças crônicas ou por meio do apoio que os pais recebem, afetará positivamente no estado de saúde do portador. Conclusão: o enfermeiro deve estar preparado para fornecer o apoio necessário às famílias e ao portador de doença crônica com o objetivo de melhorar a saúde do paciente. Esse apoio por meio das redes sociais virtuais é um novo método que vem conquistando espaço e trazendo grandes benefícios para esses pacientes e seus familiares.

          Translated abstract

          Purpose: The study was intended to identify the nurse's role in social and virtual support networks for adolescents who live with a chronic disease diagnosis. Methodology: This is an integrative review conducted in several databases (MEDLINE, LILACS and BDENF) during the period from June to November 2013, with articles indexed from 2008 to 2013. Nursing, social support, adolescents, chronic diseases, and social network were the descriptors used. Findings: The articles explain that social support provided directly to patients with chronic diseases, or through support the parents receive, will have a positive impact on the health of the patient with a chronic disease. Conclusion: Nurses must be prepared to provide the necessary support to patients with a chronic disease and their families, in the hope of improving the patient's health. This support provided through virtual social networks constitutes a new method that has gained space and brought considerable benefit to chronically ill patients and their families.

          Translated abstract

          Objetivo: identificar el rol del enfermero en la red social y virtual de apoyo a los adolescentes que conviven con el diagnóstico de enfermedad crónica. Metodología: se trata de una revisión integradora, realizada en la base de datos: MEDLINE, LILACS e BDENF, en el periodo de junio a noviembre de 2013, con artículos indexados del 2008 hasta el 2013 y los descriptores: enfermería, apoyo social, adolescentes, enfermedades crónicas y red social. Resultados: los artículos describen que el apoyo social de forma directa a los portadores de enfermedades crónicas o por medio del apoyo que los padres reciben, afectará positivamente en el estado de salud del portador. Conclusión: el enfermero debe estar preparado para brindarles el apoyo necesario a las familias y al portador de enfermedad crónica con el objetivo de mejorar la salud del paciente. Este apoyo por medio de las redes sociales virtuales es un nuevo método que ha conquistado espacio y traído grandes beneficios para dichos pacientes y sus familiares.

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          Plano de ações estratégicas para o enfrentamento das doenáas crônicas nãoo transmissíveis (DCNT) no Brasil 2011-2022

          (2011)
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            Social media use among patients and caregivers: a scoping review

            Objective To map the state of the existing literature evaluating the use of social media in patient and caregiver populations. Design Scoping review. Data sources Medline, CENTRAL, ERIC, PubMed, CINAHL Plus Full Text, Academic Search Complete, Alt Health Watch, Health Source, Communication and Mass Media Complete, Web of Knowledge and ProQuest (2000–2012). Study selection Studies reporting primary research on the use of social media (collaborative projects, blogs/microblogs, content communities, social networking sites, virtual worlds) by patients or caregivers. Data extraction Two reviewers screened studies for eligibility; one reviewer extracted data from relevant studies and a second performed verification for accuracy and completeness on a 10% sample. Data were analysed to describe which social media tools are being used, by whom, for what purpose and how they are being evaluated. Results Two hundred eighty-four studies were included. Discussion forums were highly prevalent and constitute 66.6% of the sample. Social networking sites (14.8%) and blogs/microblogs (14.1%) were the next most commonly used tools. The intended purpose of the tool was to facilitate self-care in 77.1% of studies. While there were clusters of studies that focused on similar conditions (eg, lifestyle/weight loss (12.7%), cancer (11.3%)), there were no patterns in the objectives or tools used. A large proportion of the studies were descriptive (42.3%); however, there were also 48 (16.9%) randomised controlled trials (RCTs). Among the RCTs, 35.4% reported statistically significant results favouring the social media intervention being evaluated; however, 72.9% presented positive conclusions regarding the use of social media. Conclusions There is an extensive body of literature examining the use of social media in patient and caregiver populations. Much of this work is descriptive; however, with such widespread use, evaluations of effectiveness are required. In studies that have examined effectiveness, positive conclusions are often reported, despite non-significant findings.
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              Defining social support in context: a necessary step in improving research, intervention, and practice.

              A substantial body of work on the concept of social support has resulted in many definitions, but none have been accepted as definitive. The lack of consensus about the definition of social support has resulted in a lack of consistency and comparability among studies. More important, the validity of any study attempting to measure or influence social support is undermined by the use of generic definitions, which lack contextual sensitivity. In this article concept analysis is used to evaluate definitions of social support to ascertain their utility for research. The authors argue that a contextualized approach to the definition of social support is necessary to improve clarity in research, and results in interventions or practices that are useful. They also assert that the development of a contextualized definition of social support requires qualitative methods to explore the meaning of social support with groups of people for whom intervention research is ultimately intended.
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                Author and article information

                Contributors
                Role: ND
                Role: ND
                Role: ND
                Role: ND
                Journal
                aqui
                Aquichán
                Aquichán
                Universidad de La Sabana (Bogotá )
                1657-5997
                January 2015
                : 15
                : 1
                : 60-74
                Affiliations
                [1 ] Coordenação de Aperfeiçoamento de Pessoal de Nível Superior
                [2 ] Escola de Enfermagem Aurora de Afonso Costa
                [3 ] Escola de Enfermagem Aurora de Afonso Costa
                [4 ] Universidade Federal do Rio de Janeiro
                Article
                S1657-59972015000100007
                10.5294/aqui.2015.15.1.7
                a237f5fe-0b22-48ed-b919-f95b61dcb739

                http://creativecommons.org/licenses/by/4.0/

                History
                Product

                SciELO Colombia

                Self URI (journal page): http://www.scielo.org.co/scielo.php?script=sci_serial&pid=1657-5997&lng=en
                Categories
                NURSING

                Nursing
                Social network,social support,nursing,chronic diseases,adolescents,Red social,apoyo social,enfermería,enfermedades crónicas,adolescentes,Rede social,apoio social,enfermagem,doenças crônicas

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