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      Development of nursing quality care process metrics and indicators for intellectual disability services: a literature review and modified Delphi consensus study

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          Abstract

          Background

          Nursing process quality care metrics and indicators are quantifiable measures of the nursing care delivered to clients. They can be used to identify and support nurses’ contribution to high quality, safe, client care and are lacking in specialist intellectual disability nursing. In a national Nursing Quality Care-Metrics project for Irish intellectual disability services, a set of nursing quality care process metrics and associated indicators were established for intellectual disability services.

          Methods

          A two-stage design approach was undertaken; a broad scoping review of the literature and a modified Delphi consensus process. The Delphi included a four round e-Delphi survey and a consensus meeting. Four hundred one intellectual disability nurses working in Ireland were recruited for the surveys and 20 stakeholders attended the consensus meeting.

          Results

          From the review, 20 existing and 16 potential intellectual disability nursing metrics were identified for nurses to prioritise in the e-surveys. After the four survey rounds, 12 intellectual disability nursing metrics and 84 associated indicators were identified. Following the consensus meeting, these were reduced to 12 metrics and 79 indicators.

          Conclusions

          This first set of intellectual disability nursing process metrics and associated indicators has been identified for implementation in practice. These metrics while developed in Ireland have international relevance and their application and appropriateness in practice needs to be evaluated.

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          Most cited references33

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          The nursing profession: public image, self-concept and professional identity. A discussion paper.

          To discuss the actual public image of nurses and other factors that influence the development of nurses' self-concept and professional identity. Nurses have become healthcare professionals in their own right who possess a great deal of knowledge. However, the public does not always value the skills and competences nurses have acquired through education and innovation. Discussion paper. We identified 1216 relevant studies by searching MEDLINE, CINAHL and PsycINFO databases in the period 1997-2010. Finally, 18 studies met our inclusion criteria. The included studies show that the actual public image of nursing is diverse and incongruous. This image is partly self-created by nurses due to their invisibility and their lack of public discourse. Nurses derive their self-concept and professional identity from their public image, work environment, work values, education and traditional social and cultural values. Nurses should work harder to communicate their professionalism to the public. Social media like the Internet and YouTube can be used to show the public what they really do. To improve their public image and to obtain a stronger position in healthcare organizations, nurses need to increase their visibility. This could be realized by ongoing education and a challenging work environment that encourages nurses to stand up for themselves. Furthermore, nurses should make better use of strategic positions, such as case manager, nurse educator or clinical nurse specialist and use their professionalism to show the public what their work really entails. © 2013 John Wiley & Sons Ltd.
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            Health disparities among adults with physical disabilities or cognitive limitations compared to individuals with no disabilities in the United States.

            National survey data indicate the number of individuals reporting a disability is rising. Those with disabilities experience a large number of barriers to health promotion and disease prevention programming. However, only a limited number of studies have used nationally representative data to examine the health status of individuals with disabilities in comparison to those without disabilities. We used the Medical Expenditures Panel Survey (MEPS) to examine whether disability is associated with higher prevalence rates for common chronic diseases, lower use of preventive care and higher health care expenditures. Our research hypothesis was that nationally, adults with either physical disability or cognitive limitations experience significant health disparities in comparison to those with no disability. We conducted a retrospective analysis comparing the health of adults (18 and over) with physical disabilities or cognitive limitations to individuals with no disability using data from the 2006 full year consolidated data file from the Medical Expenditures Panel Survey (MEPS). We used chi-squared tests, t-tests, and logistic regression to evaluate the association. Individuals with physical disabilities or cognitive limitations had significantly higher prevalence rates for 7 chronic diseases than persons with no disabilities. The disability groups were also significantly less likely than the no disability group to receive 3 types of preventive care. These data suggest that adults with disabilities and chronic conditions receive significantly fewer preventive services and have poorer health status than individuals without disabilities who have the same health conditions. This indicates a need for public health interventions that address the unique characteristics of adults with disabilities, many of whom are at risk for high cost, debilitating conditions that may not have as severe an effect on other population segments. Published by Elsevier Inc.
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              Cause of death and potentially avoidable deaths in Australian adults with intellectual disability using retrospective linked data

              Objectives To investigate mortality and its causes in adults over the age of 20 years with intellectual disability (ID). Design, setting and participants Retrospective population-based standardised mortality of the ID and Comparison cohorts. The ID cohort comprised 42 204 individuals who registered for disability services with ID as a primary or secondary diagnosis from 2005 to 2011 in New South Wales (NSW). The Comparison cohort was obtained from published deaths in NSW from the Australian Bureau of Statistics (ABS) from 2005 to 2011. Main outcome measures We measured and compared Age Standardised Mortality Rate (ASMR), Comparative Mortality Figure (CMF), years of productive life lost (YPLL) and proportion of deaths with potentially avoidable causes in an ID cohort with an NSW general population cohort. Results There were 19 362 adults in the ID cohort which experienced 732 (4%) deaths at a median age of 54 years. Age Standardised Mortality Rates increased with age for both cohorts. Overall comparative mortality figure was 1.3, but was substantially higher for the 20–44 (4.0) and 45–64 (2.3) age groups. YPLL was 137/1000 people in the ID cohort and 49 in the comparison cohort. Cause of death in ID cohort was dominated by respiratory, circulatory, neoplasm and nervous system. After recoding deaths previously attributed to the aetiology of the disability, 38% of deaths in the ID cohort and 17% in the comparison cohort were potentially avoidable. Conclusions Adults with ID experience premature mortality and over-representation of potentially avoidable deaths. A national system of reporting of deaths in adults with ID is required. Inclusion in health policy and services development and in health promotion programmes is urgently required to address premature deaths and health inequalities for adults with ID.
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                Author and article information

                Contributors
                +353 (0) 61 213367 , owen.doody@ul.ie
                fiona.murphy@ul.ie
                rosemary.lyons@ul.ie
                anne.gallen@hse.ie
                judy.ryan@hse.ie
                johanna.downey@hse.ie
                duygu.sezgin@nuigalway.ie
                Journal
                BMC Health Serv Res
                BMC Health Serv Res
                BMC Health Services Research
                BioMed Central (London )
                1472-6963
                29 November 2019
                29 November 2019
                2019
                : 19
                : 909
                Affiliations
                [1 ]ISNI 0000 0004 1936 9692, GRID grid.10049.3c, Health Research Institute and Senior Lecturer, Faculty of Education and Health Sciences, Department of Nursing and Midwifery, , University of Limerick, ; Castletroy, Limerick, Ireland
                [2 ]ISNI 0000 0004 1936 9692, GRID grid.10049.3c, Faculty of Education and Health Sciences, Department of Nursing and Midwifery, , University of Limerick, ; Castletroy, Limerick, Ireland
                [3 ]ISNI 0000 0004 1936 9692, GRID grid.10049.3c, Lecturer, Faculty of Education and Health Sciences, Department of Nursing and Midwifery, , University of Limerick, ; Castletroy, Limerick, Ireland
                [4 ]Director of Nursing and Midwifery Planning Development Unit, National Lead for Nursing and Midwifery Quality Care Metrics Project, Health Services Executive Ireland North West, Bishop Street, Ballyshannon, Donegal Ireland
                [5 ]Director of Nursing and Midwifery Planning Development Unit, Intellectual Disability Services Work-stream Chairperson, Health Services Executive Ireland South East, Kilkenny, Ireland
                [6 ]Quality Care Metrics Project Officer, National Lead for Intellectual Disability Services Workstream, Health Services Executive, Ireland South, Cork, Ireland
                [7 ]ISNI 0000 0004 0488 0789, GRID grid.6142.1, Postdoctoral Researcher, College of Medicine, Nursing & Health Sciences, , Clinical Sciences Institute, National University of Ireland Galway, ; Costello Road, Galway, Ireland
                Author information
                http://orcid.org/0000-0002-3708-1647
                Article
                4749
                10.1186/s12913-019-4749-y
                6883715
                31783758
                9e35587b-7adb-4407-b85a-e2d8b163530e
                © The Author(s). 2019

                Open AccessThis article is distributed under the terms of the Creative Commons Attribution 4.0 International License ( http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver ( http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.

                History
                : 1 March 2019
                : 15 November 2019
                Funding
                Funded by: Office of Nursing and Midwifery Services, Health Services Executive Ireland
                Award ID: 0
                Award Recipient :
                Categories
                Research Article
                Custom metadata
                © The Author(s) 2019

                Health & Social care
                consensus,delphi study,intellectual disability nursing,nursing care process,nursing metrics,indicators,quality care,vulnerable population

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