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      Nothing for us, without us: a review of the clinical literature and discursive evidence of interpersonal trauma in autistic women

      e-literature-review
      Alexandra Schnabel , Clem Bastow
      Advances in Autism
      Emerald Publishing
      Autism, Trauma

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          Abstract

          Purpose

          From the authors’ personal and professional experiences, they have observed that autistic women are uniquely at risk of interpersonal trauma. Given the tendency for autistic women to be overlooked in research and practice, this study aims to rectify this by exploring the relevant literature and including the voices of autistic women throughout this paper.

          Design/methodology/approach

          This study completed a literature review of quantitative and qualitative data relating to exposure to interpersonal trauma in autistic women. This study also reviewed relevant discursive evidence available on in memoirs and reports. This study also included dialogue between us as authors from an auto/“Autie”-ethnographic position.

          Findings

          Both clinical literature and discursive evidence support the idea that autistic women are uniquely at risk of interpersonal trauma, in particular, sexual victimisation. Explanatory factors are considered. Studies exploring rates of post-traumatic stress disorder (PTSD) were less consistent. Further evidence is required to better understand how autistic women experience and express PTSD and to inform assessment and treatment modifications.

          Originality/value

          To the best of the authors’ knowledge, this is the first paper to integrate clinical literature and discursive evidence on the topic of interpersonal trauma in autistic women. It provides useful insights into the experiences of autistic women in this space, directions for urgently needed future research and modifications to clinical practice.

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          Most cited references59

          • Record: found
          • Abstract: found
          • Article: found

          What Is the Male-to-Female Ratio in Autism Spectrum Disorder? A Systematic Review and Meta-Analysis

          To derive the first systematically calculated estimate of the relative proportion of boys and girls with autism spectrum disorder (ASD) through a meta-analysis of prevalence studies conducted since the introduction of the DSM-IV and the International Classification of Diseases, Tenth Revision.
            Bookmark
            • Record: found
            • Abstract: found
            • Article: found

            Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis

            Co-occurring mental health or psychiatric conditions are common in autism, impairing quality of life. Reported prevalences of co-occurring mental health or psychiatric conditions in people with autism range widely. Improved prevalence estimates and identification of moderators are needed to enhance recognition and care, and to guide future research.
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              • Record: found
              • Abstract: found
              • Article: found
              Is Open Access

              The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype

              We used Framework Analysis to investigate the female autism phenotype and its impact upon the under-recognition of autism spectrum conditions (ASC) in girls and women. Fourteen women with ASC (aged 22–30 years) diagnosed in late adolescence or adulthood gave in-depth accounts of: ‘pretending to be normal’; of how their gender led various professionals to miss their ASC; and of conflicts between ASC and a traditional feminine identity. Experiences of sexual abuse were widespread in this sample, partially reflecting specific vulnerabilities from being a female with undiagnosed ASC. Training would improve teachers’ and clinicians’ recognition of ASC in females, so that timely identification can mitigate risks and promote wellbeing of girls and women on the autism spectrum.
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                Author and article information

                Contributors
                Journal
                AIA
                10.1108/AIA
                Advances in Autism
                AIA
                Emerald Publishing
                2056-3868
                2056-3868
                17 April 2023
                08 November 2023
                : 9
                : 4
                : 322-339
                Affiliations
                [1]Melbourne, Australia
                [2]School of Media and Communication, RMIT University; , Melbourne, Australia
                Author notes
                Alexandra Schnabel can be contacted at: ali@alischnabel.com.au
                Article
                701737 AIA-11-2021-0046.pdf AIA-11-2021-0046
                10.1108/AIA-11-2021-0046
                99e8e868-b760-47fa-9011-e744be59265c
                © Emerald Publishing Limited
                History
                : 30 November 2021
                : 26 June 2022
                : 22 October 2022
                : 30 January 2023
                : 15 March 2023
                : 25 March 2023
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 58, Pages: 18, Words: 11205
                Categories
                e-literature-review, Literature review
                cat-HSC, Health & social care
                cat-LID, Learning & intellectual disabilities
                Custom metadata
                M
                Web-ready article package
                Yes
                Yes
                JOURNAL
                included

                Health & Social care
                Autism,Trauma
                Health & Social care
                Autism, Trauma

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