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      Anti‐ableist language is fully compatible with high‐quality autism research: Response to S inger et al. (2023)

      1 , 2 , 3 , 4 , 5 , 6 , 7 , 8 , 9 , 10 , 11 , 12 , 13 , 14 , 15 , 16 , 17 , 18 , 19 , 20 , 21 , 22 , 23 , 24 , 25 , 26 , 27 , 28 , 29 , 30 , 31 , 32 , 33 , 34 , 4 , 3 , 35 , 36 , 20 , 30 , 3 , 37 , 38 , 39 , 20 , 40 , 20 , 41 , 42 , 4 , 43 , 44 , 45 , 46 , 47 , 33 , 21 , 48 , 4 , 49 , 50 , 51 , 52 , 33 , 53 , 54 , 55 , 56 , 57 , 58 , 49 , 59 , 23 , 60
      Autism Research
      Wiley

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          To address racial disparities in autism research, we must think globally, act locally

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            Is Open Access

            Autism‐related language preferences of English ‐speaking individuals across the globe: A mixed methods investigation

            Abstract Over the past two decades, there have been increasing discussions around which terms should be used to talk about autism. Whilst these discussions have largely revolved around the suitability of identity‐first language and person‐first language, more recently this debate has broadened to encompass other autism‐related terminology (e.g., ‘high‐functioning’). To date, academic studies have not investigated the language preferences of autistic individuals outside of the United Kingdom or Australia, nor have they compared levels of endorsement across countries. Hence, the current study adopted a mixed‐methods approach, employing both quantitative and qualitative techniques, to explore the linguistic preferences of 654 English‐speaking autistic adults across the globe. Despite variation in levels of endorsement between countries, we found that the most popular terms were similar—the terms ‘Autism’, ‘Autistic person’, ‘Is autistic’, ‘Neurological/Brain Difference’, ‘Differences’, ‘Challenges’, ‘Difficulties’, ‘Neurotypical people’, and ‘Neurotypicals’ were consistently favored across countries. Despite relative consensus across groups, both our quantitative and qualitative data demonstrate that there is no universally accepted way to talk about autism. Our thematic analysis revealed the reasons underlying participants’ preferences, generating six core themes, and illuminated an important guiding principle—to respect personal preferences. These findings have significant implications for informing practice, research and language policy worldwide.
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              Autistic Perspectives on the Future of Clinical Autism Research

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                Author and article information

                Contributors
                Journal
                Autism Research
                Autism Research
                Wiley
                1939-3792
                1939-3806
                April 2023
                April 22 2023
                April 2023
                : 16
                : 4
                : 673-676
                Affiliations
                [1 ]The Translational Genomics Research Institute Phoenix Arizona USA
                [2 ]Indiana University Bloomington Indiana USA
                [3 ]Foundations for Divergent Minds Plano Texas USA
                [4 ]University of Virginia Charlottesville Virginia USA
                [5 ]University of Idaho Moscow Moscow Idaho USA
                [6 ]University of British Columbia Vancouver British Columbia Canada
                [7 ]University of Stirling Stirling UK
                [8 ]Boston College Chestnut Hill Massachusetts USA
                [9 ]New York University New York New York USA
                [10 ]Georgetown University Washington DC USA
                [11 ]Duke University Durham North Carolina USA
                [12 ]University of New South Wales Sydney New South Wales Australia
                [13 ]Knox College Galesburg Illinois USA
                [14 ]Self‐Advocate USA
                [15 ]Thinking Person's Guide to Autism Redwood City California USA
                [16 ]Brighton & Sussex Medical School Brighton UK
                [17 ]Bangor University Bangor UK
                [18 ]Aspect Research Centre for Autism Practice Frenchs Forest New South Wales Australia
                [19 ]OK Chapter of the National Federation of the Blind Oklahoma City Oklahoma USA
                [20 ]University College London London UK
                [21 ]University of Edinburgh Edinburgh UK
                [22 ]La Trobe University Bundoora Victoria Australia
                [23 ]Ask Me I'm an AAC User! USA
                [24 ]Adelphi University Garden City New York USA
                [25 ]Towson University Towson Maryland USA
                [26 ]Rice University Houston Texas USA
                [27 ]University of Amsterdam Amsterdam Netherlands
                [28 ]Swansea University Swansea UK
                [29 ]University of Memphis Memphis Tennessee United States
                [30 ]University of London London UK
                [31 ]Disabled in Higher Ed Baltimore Maryland USA
                [32 ]University of Portsmouth Portsmouth UK
                [33 ]University of Kent Canterbury UK
                [34 ]City University of Seattle Seattle Washington USA
                [35 ]University of Manchester Manchester UK
                [36 ]Neurodivergent Liberation Coalition Washington DC USA
                [37 ]Bond University Gold Coast Queensland Australia
                [38 ]Oregon Health and Science University Portland Oregon USA
                [39 ]University of Reading Reading UK
                [40 ]University of Sunderland Sunderland UK
                [41 ]Occupational Therapist Bristol UK
                [42 ]Macquarie University Macquarie Park New South Wales Australia
                [43 ]Autistic Women and Nonbinary Network Lincoln Nebraska USA
                [44 ]Drexel University Philadelphia Pennsylvania USA
                [45 ]Cabarrus Family Medicine Atrium Health Charlotte North Carolina USA
                [46 ]University of Alberta Edmonton Alberta Canada
                [47 ]The University of Texas at Dallas Dallas Texas USA
                [48 ]Minnesota Disability Support Alternatives Plymouth Minnesota USA
                [49 ]CommunicationFIRST Washington DC USA
                [50 ]University of Alberta Edmonton Alberta USA
                [51 ]University of Birmingham Birmingham UK
                [52 ]Bowling Green State University Bowling Green Ohio USA
                [53 ]California Institute of Integral Studies San Francisco California USA
                [54 ]University of Newcastle Newcastle upon Tyne UK
                [55 ]Vanderbilt University School of Medicine Nashville Tennessee USA
                [56 ]London South Bank University London UK
                [57 ]San Francisco State University San Francisco California USA
                [58 ]University of Adelaide Adelaide South Australia Australia
                [59 ]The Nora Project Highland Park Illinois USA
                [60 ]AssistiveWare Amsterdam Netherlands
                Article
                10.1002/aur.2928
                37087601
                929e92d7-aaad-4cb7-8afa-ad50441f2fad
                © 2023

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