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      Read and accepted? Scoping the cognitive accessibility of privacy policies of health apps and websites in three European countries

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          Abstract

          Objective

          Trust and accessibility are vital to adoption of health and wellness apps. This research scoped three elements of cognitive accessibility of health app privacy policies: availability, ease of navigation, and readability.

          Methods

          For this cross-sectional study, quantitative data collected in the Netherlands, Sweden, and the United Kingdom included: whether privacy information was in a country's official language (availability); number of distracting visual elements (ease of navigation); word count and Common European Framework of Reference (CEFR) reading level (readability). Health app privacy policies were compared to policies from a purposively selected sample of websites, and to benchmarks, including CEFR reading level B1.

          Results

          Health app privacy policies were less often available in countries’ official languages compared to sampled websites (Chi-Square [1, 180]  =  57.470, p < 0.001) but contained fewer distracting visual elements. More UK privacy policies were in the country's official language, whereas Swedish privacy policies contained fewest words and fewest potentially distracting design elements. Only one privacy policy met the CEFR reading level benchmark.

          Conclusions

          Lack of privacy information in non-Anglophone app-users’ native languages and high reading levels may be major barriers to cognitive accessibility. Web and app developers should consider recommendations arising from this study, to stimulate trust in and adoption of health and wellness apps.

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          Most cited references23

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          Privacy and human behavior in the age of information.

          This Review summarizes and draws connections between diverse streams of empirical research on privacy behavior. We use three themes to connect insights from social and behavioral sciences: people's uncertainty about the consequences of privacy-related behaviors and their own preferences over those consequences; the context-dependence of people's concern, or lack thereof, about privacy; and the degree to which privacy concerns are malleable—manipulable by commercial and governmental interests. Organizing our discussion by these themes, we offer observations concerning the role of public policy in the protection of privacy in the information age.
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            Privacy in the age of medical big data

            Big data has become the ubiquitous watch word of medical innovation. The rapid development of machine-learning techniques and artificial intelligence in particular has promised to revolutionize medical practice from the allocation of resources to the diagnosis of complex diseases. But with big data comes big risks and challenges, among them significant questions about patient privacy. Here, we outline the legal and ethical challenges big data brings to patient privacy. We discuss, among other topics, how best to conceive of health privacy; the importance of equity, consent, and patient governance in data collection; discrimination in data uses; and how to handle data breaches. We close by sketching possible ways forward for the regulatory system.
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              A new readability yardstick.

              R Flesch (1948)
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                Author and article information

                Journal
                Digit Health
                Digit Health
                DHJ
                spdhj
                Digital Health
                SAGE Publications (Sage UK: London, England )
                2055-2076
                18 January 2023
                Jan-Dec 2023
                : 9
                : 20552076231152162
                Affiliations
                [1 ]Department of Psychiatry, Amsterdam University Medical Centers, Location VUmc/Amsterdam Public Health Research Institute, Amsterdam, The Netherlands
                [2 ]Division of Occupational Therapy, Department of Neurobiology, Care Sciences and Society (NVS), Ringgold 27106, universityKarolinska Institutet; , Stockholm, Sweden
                [3 ]Centre for Assistive Technology and Connected Healthcare, School of Health and Related Research, Ringgold 7315, universityThe University of Sheffield; , Sheffield, UK
                [4 ]Research Group Smart Health, School of Health, Ringgold 2975, universitySaxion University of Applied Sciences; , Enschede, The Netherlands
                Author notes
                [*]David Neal, Department of Psychiatry Amsterdam UMC, Location VUmc, Oldenaller 1, 1081 HJ Amsterdam, The Netherlands. Email: d.n.neal@ 123456amsterdamumc.nl
                Author information
                https://orcid.org/0000-0001-7916-3299
                Article
                10.1177_20552076231152162
                10.1177/20552076231152162
                9869200
                36698427
                8c3280fd-a979-4711-b053-a53c23eded3d
                © The Author(s) 2023

                This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License ( https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page ( https://us.sagepub.com/en-us/nam/open-access-at-sage).

                History
                : 24 October 2022
                : 3 January 2023
                Funding
                Funded by: H2020 Marie Skłodowska-Curie Actions, FundRef https://doi.org/10.13039/100010665;
                Award ID: 813196
                Categories
                Original Research
                Custom metadata
                ts19
                January-December 2023

                mobile device apps,digital health,universal design,cognitive accessibility,privacy

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