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      Is Open Access

      YouTube as a possible learning platform for patients and their family caregivers for gastrostomy tube feeding: A cross‐sectional study

      research-article
      , PhD, RN 1 , , PhD, RN 2 ,
      Nutrition in Clinical Practice
      John Wiley and Sons Inc.
      education, gastrostomy, homecare, web, YouTube

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          Abstract

          Background

          Many patients and family caregivers have informational needs, especially regarding gastrostomy care and home gastrostomy tube feeding. YouTube is a potential accessible option for educational resources concerning these topics.

          Methods

          This study aimed to explore the educational quality and content of informational YouTube videos. We used “gastrostomy,” “G‐tube,” “enteral feeding,” and “enteral nutrition,” as search keywords on YouTube on October 3, 2021. A total of 229 videos were evaluated using the global quality scale (GQS) and modified DISCERN scoring system. Variables extracted from the videos included general features, video parameters, and content themes.

          Results

          The GQS and modified DISCERN scores were 3.31 ± 0.90 and 2.63 ± 1.23, respectively. There were educational quality and differences among videos uploaded by various agencies. Frequent video content themes included “cleaning and dressing a gastrostomy tube,” “bolus method,” and “replacing a balloon‐type of gastrostomy tube.”

          Conclusion

          Results showed that YouTube can be a supplemental educational resource for people requiring gastrostomy care and for their caregivers. However, given the open‐access nature of YouTube, healthcare professionals' guidance is needed for video selection. Healthcare professionals should know and use specific, reliable resources to effectively guide and educate patients with gastrostomy and their caregivers, enhancing their self‐management skills and knowledge.

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          Most cited references29

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          The Measurement of Observer Agreement for Categorical Data

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            DISCERN: an instrument for judging the quality of written consumer health information on treatment choices.

            To develop a short instrument, called DISCERN, which will enable patients and information providers to judge the quality of written information about treatment choices. DISCERN will also facilitate the production of new, high quality, evidence-based consumer health information. An expert panel, representing a range of expertise in consumer health information, generated criteria from a random sample of information for three medical conditions with varying degrees of evidence: myocardial infarction, endometriosis, and chronic fatigue syndrome. A graft instrument, based on this analysis, was tested by the panel on a random sample of new material for the same three conditions. The panel re-drafted the instrument to take account of the results of the test. The DISCERN instrument was finally tested by a national sample of 15 information providers and 13 self help group members on a random sample of leaflets from 19 major national self help organisations. Participants also completed an 8 item questionnaire concerning the face and content validity of the instrument. Chance corrected agreement (weighted kappa) for the overall quality rating was kappa = 0.53 (95% CI kappa = 0.48 to kappa = 0.59) among the expert panel, kappa = 0.40 (95% CI kappa = 0.36 to kappa = 0.43) among information providers, and kappa = 0.23 (95% CI kappa = 0.19 to kappa = 0.27) among self help group members. Higher agreement levels were associated with experience of using the instrument and with professional knowledge of consumer health information. Levels of agreement varied across individual items on the instrument, reflecting the need for subjectivity in rating certain criteria. The trends in levels of agreement were similar among all groups. The final instrument consisted of 15 questions plus an overall quality rating. Responses to the questionnaire after the final testing revealed the instrument to have good face and content validity and to be generally applicable. DISCERN is a reliable and valid instrument for judging the quality of written consumer health information. While some subjectivity is required for rating certain criteria, the findings demonstrate that the instrument can be applied by experienced users and providers of health information to discriminate between publications of high and low quality. The instrument will also be of benefit to patients, though its use will be improved by training.
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              A systematic review of patient inflammatory bowel disease information resources on the World Wide Web.

              The Internet is a widely used information resource for patients with inflammatory bowel disease, but there is variation in the quality of Web sites that have patient information regarding Crohn's disease and ulcerative colitis. The purpose of the current study is to systematically evaluate the quality of these Web sites. The top 50 Web sites appearing in Google using the terms "Crohn's disease" or "ulcerative colitis" were included in the study. Web sites were evaluated using a (a) Quality Evaluation Instrument (QEI) that awarded Web sites points (0-107) for specific information on various aspects of inflammatory bowel disease, (b) a five-point Global Quality Score (GQS), (c) two reading grade level scores, and (d) a six-point integrity score. Thirty-four Web sites met the inclusion criteria, 16 Web sites were excluded because they were portals or non-IBD oriented. The median QEI score was 57 with five Web sites scoring higher than 75 points. The median Global Quality Score was 2.0 with five Web sites achieving scores of 4 or 5. The average reading grade level score was 11.2. The median integrity score was 3.0. There is marked variation in the quality of the Web sites containing information on Crohn's disease and ulcerative colitis. Many Web sites suffered from poor quality but there were five high-scoring Web sites.
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                Author and article information

                Contributors
                hanyizzang@hanyang.ac.kr
                Journal
                Nutr Clin Pract
                Nutr Clin Pract
                10.1002/(ISSN)1941-2452
                NCP
                Nutrition in Clinical Practice
                John Wiley and Sons Inc. (Hoboken )
                0884-5336
                1941-2452
                03 July 2024
                April 2025
                : 40
                : 2 , Patient Education Related to Nutrition Support ( doiID: 10.1002/ncp.v40.2 )
                : 389-396
                Affiliations
                [ 1 ] College of Nursing Dankook University Cheonan‐si Republic of Korea
                [ 2 ] College of Nursing Hanyang University Seoul Republic of Korea
                Author notes
                [*] [* ] Correspondence Hanyi Lee, PhD, RN, College of Nursing, Hanyang University. 222 Wangsimni‐ro, Seongdong‐gu, Seoul 04763, Korea.

                Email: hanyizzang@ 123456hanyang.ac.kr

                Author information
                http://orcid.org/0000-0001-8721-0390
                Article
                NCP11186
                10.1002/ncp.11186
                11879905
                38958580
                8b1a3b2c-89b9-42a0-ba8e-4c83390a0e10
                © 2024 The Author(s). Nutrition in Clinical Practice published by Wiley Periodicals LLC on behalf of American Society for Parenteral and Enteral Nutrition.

                This is an open access article under the terms of the http://creativecommons.org/licenses/by-nc/4.0/ License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes.

                History
                : 06 June 2024
                : 26 April 2024
                : 15 June 2024
                Page count
                Figures: 0, Tables: 3, Pages: 8, Words: 4522
                Categories
                Clinical Research
                Clinical Research
                Custom metadata
                2.0
                April 2025
                Converter:WILEY_ML3GV2_TO_JATSPMC version:6.5.4 mode:remove_FC converted:04.03.2025

                education,gastrostomy,homecare,web,youtube
                education, gastrostomy, homecare, web, youtube

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