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      Caregiver Burden in Schizophrenia and Autism Spectrum Disorders: A Comparative Study

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          Abstract

          Objective

          There is no study comparing schizophrenia and autism spectrum disorders (ASD) in terms of caregiver burden. This study aims to compare the caregiver burden among family members of the patients with schizophrenia and ASD and investigate the predictive factors.

          Methods

          A cross-sectional study with the family members living with and/or providing care to their patients was carried out. A sociodemographic form, the Beck Depression Inventory, the Self-Stigma Inventory for Families, and the Zarit Caregiver Burden Scale were utilized. Regression analyses were conducted to determine the predictive factors for higher burden.

          Results

          Caregiver burden in ASD was significantly higher than in schizophrenia. Regression analysis showed that the predictors of high caregiver burden were the need for self-care (OR=3.6), self-destructive behaviors (OR=3.4), self-stigma (OR=1.1), depression (OR=1.1), and level of income (OR=1.0) for all family members. When the diagnosis was removed from the equation, the factors determining the high burden did not change.

          Conclusion

          This study suggests that characteristics of the illness are stronger predictors than family members’ characteristics in explaining high caregiver burden for both illnesses. Psychological, social, and economic supports should be provided for families to help alleviate their caregiving burden.

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          Most cited references48

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          An inventory for measuring depression.

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            Subjective burden of husbands and wives as caregivers: a longitudinal study.

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              Caregiver burden: A concept analysis

              Objective Caregiver burden is used frequently within the nursing literature. It has not yet been clearly defined as there are different opinions regarding this concept. The purpose of this paper is to provide clarity surrounding the concept caregiver burden. Methods An electronic search of MEDLINE, CINAHL, Health Source Nursing/Academic Edition and Academic Search Complete (ASC) of EBSCO, China National Knowledge Infrastructure (CNKI) and Google Scholar were searched with a limit of 10 years and published in the English or Chinese language. The paper adopted the framework by Walker and Avant. The attributes, antecedents, consequences and uses of the concept were identified. Results At total of 33 articles were included. The three attributes of caregiver burden were identified as self-perception, multifaceted strain, and over time. The antecedents included insufficient financial resources, multiple responsibility conflict, lack of social activities. The consequences of caregiver burden resulted in negative change which included decreased care provision, decrease in quality of life, physical and psychological health deterioration. Conclusion A definition of caregiver burden was developed. Tools to measure caregiver burden were identified. The findings from this analysis can be used in nursing practice, nursing education, research and administration.
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                Author and article information

                Journal
                Psychiatry Investig
                Psychiatry Investig
                PI
                Psychiatry Investigation
                Korean Neuropsychiatric Association
                1738-3684
                1976-3026
                December 2021
                8 December 2021
                : 18
                : 12
                : 1180-1187
                Affiliations
                [1 ]Department of Psychiatry, Kocaeli University School of Medicine, Kocaeli, Turkey
                [2 ]Department of Psychosocial Rehabilitation, Kocaeli University Institute of Health Science, Kocaeli, Turkey
                Author notes
                Correspondence: Mustafa Yıldız, MD Department of Psychiatry, Kocaeli University School of Medicine, Umuttepe, 41001, Kocaeli, Turkey Tel: +90-(262)3037505, Fax: +90-(262)3037079, E-mail: myildiz60@ 123456yahoo.com
                Author information
                http://orcid.org/0000-0003-0769-1628
                http://orcid.org/0000-0002-5116-7009
                http://orcid.org/0000-0001-8948-4512
                http://orcid.org/0000-0001-8181-1371
                Article
                pi-2021-0165
                10.30773/pi.2021.0165
                8721291
                34872240
                7dd0448a-e970-4f63-9107-36d7bb486a7a
                Copyright © 2021 Korean Neuropsychiatric Association

                This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License ( http://creativecommons.org/licenses/by-nc/4.0/) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.

                History
                : 13 May 2021
                : 28 August 2021
                : 27 September 2021
                Categories
                Original Article

                Clinical Psychology & Psychiatry
                caregiver burden,schizophrenia,autism spectrum disorders,self-stigma,depression

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