5
views
0
recommends
+1 Recommend
0 collections
    0
    shares
      • Record: found
      • Abstract: found
      • Article: found
      Is Open Access

      Remote follow-up based on patient-reported outcomes in patients with chronic kidney disease: A qualitative study of patient perspectives

      research-article

      Read this article at

      Bookmark
          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          Background

          Patient-reported outcomes (PROs) are increasingly used in outpatient follow-up. PRO-based remote follow-up offers a new healthcare delivery model, where PROs are used as the basis for outpatient follow-up in patients with chronic kidney disease. However, the patient’s perspective of this novel remote care delivery remains unknown.

          Objectives

          This study aimed to explore the patients’ experiences using PROs in remote care and how this mode of follow-up may enhance patient engagement.

          Design

          A qualitative approach was employed, guided by Focused Ethnography and Interpretive Description.

          Participants

          Purposively, 15 patients with chronic kidney disease experienced with PRO-based remote follow-up in 3 renal outpatient clinics in the Central Denmark Region, were recruited.

          Measures

          Field studies comprising participant observation in remote PRO consultations and individual, semi-structured interviews with the patients constituted the empirical data. Thematic analysis was performed according to Braun and Clarke’s six-phase process.

          Results

          PRO-based remote follow-up may enhance patient engagement by a) improving communication, b) increasing disease knowledge, c) inducing flexibility, d) ensuring clinician feedback on PRO data, and e) prompting clinical action. Barriers to enhanced patient engagement were identified as a) lack of feedback on PRO data, b) lower disease knowledge, c) PRO in competition with biomedical data, and d) loss of personal relation.

          Conclusion

          PRO-based follow-up in remote care holds several advantages for the patients. However, some barriers need clinical awareness before PROs may enhance the patients’ engagement in remote follow-up. Future studies should explore the impact of involving relatives in PRO-based follow-up.

          Related collections

          Most cited references51

          • Record: found
          • Abstract: not found
          • Article: not found

          Using thematic analysis in psychology

            Bookmark
            • Record: found
            • Abstract: found
            • Article: not found

            Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.

            Qualitative research explores complex phenomena encountered by clinicians, health care providers, policy makers and consumers. Although partial checklists are available, no consolidated reporting framework exists for any type of qualitative design. To develop a checklist for explicit and comprehensive reporting of qualitative studies (in depth interviews and focus groups). We performed a comprehensive search in Cochrane and Campbell Protocols, Medline, CINAHL, systematic reviews of qualitative studies, author or reviewer guidelines of major medical journals and reference lists of relevant publications for existing checklists used to assess qualitative studies. Seventy-six items from 22 checklists were compiled into a comprehensive list. All items were grouped into three domains: (i) research team and reflexivity, (ii) study design and (iii) data analysis and reporting. Duplicate items and those that were ambiguous, too broadly defined and impractical to assess were removed. Items most frequently included in the checklists related to sampling method, setting for data collection, method of data collection, respondent validation of findings, method of recording data, description of the derivation of themes and inclusion of supporting quotations. We grouped all items into three domains: (i) research team and reflexivity, (ii) study design and (iii) data analysis and reporting. The criteria included in COREQ, a 32-item checklist, can help researchers to report important aspects of the research team, study methods, context of the study, findings, analysis and interpretations.
              Bookmark
              • Record: found
              • Abstract: not found
              • Article: not found

              World Medical Association Declaration of Helsinki: ethical principles for medical research involving human subjects.

              (2013)
                Bookmark

                Author and article information

                Contributors
                Role: ConceptualizationRole: Data curationRole: Formal analysisRole: Funding acquisitionRole: InvestigationRole: MethodologyRole: Project administrationRole: Writing – original draft
                Role: Data curationRole: MethodologyRole: SupervisionRole: Writing – review & editing
                Role: Data curationRole: Project administrationRole: ResourcesRole: SupervisionRole: Writing – review & editing
                Role: Funding acquisitionRole: ResourcesRole: SupervisionRole: Writing – review & editing
                Role: ConceptualizationRole: MethodologyRole: SupervisionRole: Writing – review & editing
                Role: ConceptualizationRole: Data curationRole: Formal analysisRole: MethodologyRole: Writing – original draftRole: Writing – review & editing
                Role: Editor
                Journal
                PLoS One
                PLoS One
                plos
                PLOS ONE
                Public Library of Science (San Francisco, CA USA )
                1932-6203
                10 February 2023
                2023
                : 18
                : 2
                : e0281393
                Affiliations
                [1 ] AmbuFlex, Center for Patient-reported Outcomes, Gødstrup Hospital, Herning, Denmark
                [2 ] Department of Clinical Medicine, Aarhus University, Aarhus, Denmark
                [3 ] Department of Renal Medicine, Aarhus University Hospital, Aarhus N, Denmark
                [4 ] Department of Clinical Epidemiology, Aarhus University Hospital, Aarhus N, Denmark
                [5 ] Department of Rheumatology, Aarhus University Hospital, Aarhus N, Denmark
                [6 ] DEFACTUM—Public Health & Health Services Research, Aarhus, Denmark
                University of Warwick, UNITED KINGDOM
                Author notes

                Competing Interests: The authors have declared that no competing interests exist.

                Author information
                https://orcid.org/0000-0002-3763-9911
                Article
                PONE-D-22-23774
                10.1371/journal.pone.0281393
                9916608
                36763600
                7c1be09b-6951-4e54-a7ce-05b1df423dcd
                © 2023 Grove et al

                This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

                History
                : 25 August 2022
                : 20 January 2023
                Page count
                Figures: 0, Tables: 2, Pages: 17
                Funding
                Funded by: funder-id http://dx.doi.org/10.13039/501100010983, Health Research Fund of Central Denmark Region;
                Award Recipient :
                Funded by: Gødstrup Hospital
                Award Recipient :
                Health Research Foundation of Central Denmark https://www.rm.dk/sundhed/faginfo/forskning/region-midtjyllands-sundhedsvidenskabelige-forskningsfond/ and Gødstrup Hospital, Denmark http://goedstrup.intra.rm.dk/mit-hospital/forskning-og-uddannelse/forskningsfond-hospitalsenheden-vest/ have kindly funded this study. BEG received the funding. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.
                Categories
                Research Article
                Medicine and Health Sciences
                Health Care
                Health Care Providers
                Physicians
                People and Places
                Population Groupings
                Professions
                Medical Personnel
                Physicians
                Biology and Life Sciences
                Anatomy
                Renal System
                Kidneys
                Medicine and Health Sciences
                Anatomy
                Renal System
                Kidneys
                Medicine and Health Sciences
                Nephrology
                Renal Diseases
                Chronic Kidney Disease
                Medicine and Health Sciences
                Health Care
                Patients
                Medicine and Health Sciences
                Health Care
                Health Care Facilities
                Outpatient Clinics
                Medicine and Health Sciences
                Health Care
                Patients
                Outpatients
                Research and Analysis Methods
                Research Design
                Survey Research
                Questionnaires
                Biology and Life Sciences
                Anatomy
                Renal System
                Medicine and Health Sciences
                Anatomy
                Renal System
                Custom metadata
                Data cannot be shared publicly as participants did not give consent for their transcripts to be shared in the public domain. However, a preliminary coding strategy and a coding tree is availability in the Supporting Information File (SI 3). Moreover, the study group welcomes data requests via the principal investigator ( bigcri@ 123456rm.dk ) or contact the AmbuFlex- Center for Patient-reported Outcome organisation ( ambuflex@ 123456rm.dk ).

                Uncategorized
                Uncategorized

                Comments

                Comment on this article