Translation, cross-cultural adaptation, and validation of the heart disease fact questionnaire among the Brazilian population

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SUMMARY OBJECTIVE: This study aimed to translate, cross-culturally adapt, and validate the Heart Disease Fact Questionnaire into Brazilian Portuguese. METHODS: The Brazilian version of the Heart Disease Fact Questionnaire was developed through the processes of translation, back-translation, review committee, and pre-test. Test-retest reliability was measured using the intraclass correlation coefficient and the kappa coefficient. Internal consistency was measured using Cronbach's alpha. For construct validity, the total Heart Disease Fact Questionnaire score was correlated with the Diabetes Knowledge Scale and the Diabetes Attitudes Questionnaire. Ceiling and floor effects were also evaluated in this study. RESULTS: For construct validity and floor and ceiling effect measurements, a total of 100 participants were selected. Reliability was measured using a sub-sample of 30 participants from the total sample. We identified adequate values of reliability (kappa between 0.22 and 1.00 and ICC=0.75) and internal consistency (Cronbach's alpha=0.79). We observed adequate correlations of the Heart Disease Fact Questionnaire score with Diabetes Knowledge Scale (r=0.348) and Diabetes Attitudes Questionnaire (r=0.136). No ceiling or floor effects found. CONCLUSION: Brazilian Portuguese version of the Heart Disease Fact Questionnaire has adequate psychometric properties according to the best scientific recommendations.

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COSMIN guideline for systematic reviews of patient-reported outcome measures

C. A. C. Prinsen, L. Mokkink, L Bouter … (2018)

Purpose Systematic reviews of patient-reported outcome measures (PROMs) differ from reviews of interventions and diagnostic test accuracy studies and are complex. In fact, conducting a review of one or more PROMs comprises of multiple reviews (i.e., one review for each measurement property of each PROM). In the absence of guidance specifically designed for reviews on measurement properties, our aim was to develop a guideline for conducting systematic reviews of PROMs. Methods Based on literature reviews and expert opinions, and in concordance with existing guidelines, the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) steering committee developed a guideline for systematic reviews of PROMs. Results A consecutive ten-step procedure for conducting a systematic review of PROMs is proposed. Steps 1–4 concern preparing and performing the literature search, and selecting relevant studies. Steps 5–8 concern the evaluation of the quality of the eligible studies, the measurement properties, and the interpretability and feasibility aspects. Steps 9 and 10 concern formulating recommendations and reporting the systematic review. Conclusions The COSMIN guideline for systematic reviews of PROMs includes methodology to combine the methodological quality of studies on measurement properties with the quality of the PROM itself (i.e., its measurement properties). This enables reviewers to draw transparent conclusions and making evidence-based recommendations on the quality of PROMs, and supports the evidence-based selection of PROMs for use in research and in clinical practice.

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Global estimates of diabetes prevalence for 2013 and projections for 2035.

L Guariguata, D.R. Whiting, I Hambleton … (2014)

Diabetes is a serious and increasing global health burden and estimates of prevalence are essential for appropriate allocation of resources and monitoring of trends. We conducted a literature search of studies reporting the age-specific prevalence for diabetes and used the Analytic Hierarchy Process to systematically select studies to generate estimates for 219 countries and territories. Estimates for countries without available source data were modelled from pooled estimates of countries that were similar in regard to geography, ethnicity, and economic development. Logistic regression was applied to generate smoothed age-specific prevalence estimates for adults 20-79 years which were then applied to population estimates for 2013 and 2035. A total of 744 data sources were considered and 174 included, representing 130 countries. In 2013, 382 million people had diabetes; this number is expected to rise to 592 million by 2035. Most people with diabetes live in low- and middle-income countries and these will experience the greatest increase in cases of diabetes over the next 22 years. The new estimates of diabetes in adults confirm the large burden of diabetes, especially in developing countries. Estimates will be updated annually including the most recent, high-quality data available. Copyright © 2013. Published by Elsevier Ireland Ltd.

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COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study

C. Terwee, C. A. C. Prinsen, A Chiarotto … (2018)

Background Content validity is the most important measurement property of a patient-reported outcome measure (PROM) and the most challenging to assess. Our aims were to: (1) develop standards for evaluating the quality of PROM development; (2) update the original COSMIN standards for assessing the quality of content validity studies of PROMs; (3) develop criteria for what constitutes good content validity of PROMs, and (4) develop a rating system for summarizing the evidence on a PROM’s content validity and grading the quality of the evidence in systematic reviews of PROMs. Methods An online 4-round Delphi study was performed among 159 experts from 21 countries. Panelists rated the degree to which they (dis)agreed to proposed standards, criteria, and rating issues on 5-point rating scales (‘strongly disagree’ to ‘strongly agree’), and provided arguments for their ratings. Results Discussion focused on sample size requirements, recording and field notes, transcribing cognitive interviews, and data coding. After four rounds, the required 67% consensus was reached on all standards, criteria, and rating issues. After pilot-testing, the steering committee made some final changes. Ten criteria for good content validity were defined regarding item relevance, appropriateness of response options and recall period, comprehensiveness, and comprehensibility of the PROM. Discussion The consensus-based COSMIN methodology for content validity is more detailed, standardized, and transparent than earlier published guidelines, including the previous COSMIN standards. This methodology can contribute to the selection and use of high-quality PROMs in research and clinical practice. Electronic supplementary material The online version of this article (10.1007/s11136-018-1829-0) contains supplementary material, which is available to authorized users.

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Journal

Journal ID (publisher-id): ramb

Title: Revista da Associação Médica Brasileira

Abbreviated Title: Rev. Assoc. Med. Bras.

Publisher: Associação Médica Brasileira (São Paulo, SP, Brazil )

ISSN (Print): 0104-4230

ISSN (Electronic): 1806-9282

Publication date (Print and electronic): May 2022

Volume: 68

Issue: 5

Pages: 610-615

Affiliations

[5] São Luís MA orgnameUniversidade Ceuma orgdiv1Department of Medicine Brazil

[1] Cuiabá Mato Grosso orgnameCentro Universitário de Várzea Grande Brazil

[4] São Luís MA orgnameUniversidade Ceuma orgdiv1Postgraduate Program in Dentistry Brazil

[6] Cuiabá Mato Grosso orgnameUniversidade de Cuiabá orgdiv1Department of Physiotherapy Brazil

[3] São Luís MA orgnameUniversidade Ceuma orgdiv1Programs Management and Health Services Brazil

[2] São Carlos orgnameUniversidade Federal de São Carlos orgdiv1Postgraduate Program in Physical Therapy orgdiv2Cardiopulmonary Laboratory Brazil

[7] São Luís MA orgnameUniversidade Ceuma orgdiv1Department of Physiotherapy Brazil

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Publisher ID: S0104-42302022000500610 Publisher ID: S0104-4230(22)06800500610

DOI: 10.1590/1806-9282.20211212

SO-VID: 7714eedc-ce05-449e-84f1-88be013a3d92

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This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

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Date accepted : 11 February 2022

Date received : 10 February 2022

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Figures: 0, Tables: 0, Equations: 0, References: 20, Pages: 6

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Translation, cross-cultural adaptation, and validation of the heart disease fact questionnaire among the Brazilian population

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Most cited references 19

COSMIN guideline for systematic reviews of patient-reported outcome measures

Global estimates of diabetes prevalence for 2013 and projections for 2035.

COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study

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