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      Do care homes deliver person-centred care? A cross-sectional survey of staff-reported abusive and positive behaviours towards residents from the MARQUE (Managing Agitation and Raising Quality of Life) English national care home survey

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          Abstract

          Background

          There are widespread concerns about abuse of care home residents. We report, in the largest care home survey, prevalence of staff anonymously-reported, perpetrated/witnessed abusive behaviours towards care home residents over 3 months. We also report positive care behaviours.

          Methods

          1544 staff in 92 English care home units completed the revised Modified Conflict Tactics Scale and Maslach Burnout Inventory.

          Outcomes

          Most staff reported positive care behaviours, but specific person-centred activities were sometimes infrequent. Many care home staff were never or almost never aware of a resident being taken out of the home for their enjoyment (34%, n = 520); or an activity planned around a resident’s interests (15%, n = 234). 763 (51%; 95% Confidence Interval (CI) 47% to 54%) of care home staff reported carrying out or observing potentially abusive or neglectful behaviours at least sometimes in the preceding 3 months; some abuse was reported as happening “at least sometimes” in 91/92 care homes. Neglect was most frequently reported: making a resident wait for care (n = 399, 26%), avoiding a resident with challenging behaviour (n = 391, 25%), giving residents insufficient time for food (n = 297, 19%), and taking insufficient care when moving residents (n = 169, 11%). 1.1% of staff reported physical and 5% verbal abuse. More staff reported abusive/neglectful behaviour in homes with higher staff burnout-depersonalisation scores (adjusted odds ratio 1.191, CI 1.052–1.349).

          Interpretation

          Staff anonymous reports of abusive behaviour and neglect could be used to monitor care quality, as cases currently reported are probably tip of the iceberg, and be an outcome in intervention studies.

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          Most cited references31

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          The Neuropsychiatric Inventory: Comprehensive assessment of psychopathology in dementia

          Neurology, 44(12), 2308-2308
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            The prevalence of elder abuse and neglect: a systematic review.

            to perform a systematic review of studies measuring the prevalence of elder abuse or neglect, either reported by older people themselves, or family and professional caregivers or investigated using objective measures. we conducted a comprehensive literature search of multiple databases up to October 2006, supplemented by a search of the references of all relevant articles. Validity of studies was graded by two authors independently using a standardised checklist. forty-nine studies met our inclusion criteria, of which only seven used measures for which reliability and validity had been assessed. In the general population studies, 6% of older people reported significant abuse in the last month and 5.6% of couples reported physical violence in their relationship in the last year. In studies using valid instruments involving vulnerable elders, nearly a quarter reported significant levels of psychological abuse. Five per cent of family caregivers reported physical abuse towards care recipients with dementia in a year, and a third reported any significant abuse. Sixteen per cent of care home staff admitted significant psychological abuse. Rates of abuse recorded using objective measures (5%) or reported to home management or adult protective services (APS) (1-2%) were low. one in four vulnerable elders are at risk of abuse and only a small proportion of this is currently detected. Elders and family and professional caregivers are willing to report abuse and should be asked about it routinely. Valid, reliable measures and consensus on what constitutes an adequate standard for validity of abuse measures are needed.
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              Regression standard errors in clustered samples

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                Author and article information

                Contributors
                Role: ConceptualizationRole: Funding acquisitionRole: InvestigationRole: MethodologyRole: Project administrationRole: Writing – original draft
                Role: ConceptualizationRole: Formal analysisRole: Funding acquisitionRole: MethodologyRole: Writing – review & editing
                Role: ConceptualizationRole: Formal analysisRole: Funding acquisitionRole: MethodologyRole: SupervisionRole: Writing – review & editing
                Role: ConceptualizationRole: MethodologyRole: Project administrationRole: SupervisionRole: Writing – review & editing
                Role: ConceptualizationRole: InvestigationRole: MethodologyRole: Writing – review & editing
                Role: ConceptualizationRole: MethodologyRole: Writing – review & editing
                Role: ConceptualizationRole: Funding acquisitionRole: InvestigationRole: MethodologyRole: SupervisionRole: Writing – review & editing
                Role: Editor
                Journal
                PLoS One
                PLoS ONE
                plos
                plosone
                PLoS ONE
                Public Library of Science (San Francisco, CA USA )
                1932-6203
                21 March 2018
                2018
                : 13
                : 3
                : e0193399
                Affiliations
                [1 ] UCL Department of Old Age Psychiatry, Division of Psychiatry, London, United Kingdom
                [2 ] Camden and Islington NHS Foundation trust, London, United Kingdom
                [3 ] Department of Primary Care and Population Health, UCL, London, United Kingdom
                [4 ] PRIMENT Clinical Trials Unit, UCL, London, United Kingdom
                [5 ] UCL Department of Statistical Science, London, United Kingdom
                University of Exeter, UNITED KINGDOM
                Author notes

                Competing Interests: The authors have declared that no competing interests exist.

                Author information
                http://orcid.org/0000-0002-2777-7616
                Article
                PONE-D-17-38055
                10.1371/journal.pone.0193399
                5862450
                29561867
                76ca0314-f640-417c-a7af-8c54cb14d5f6
                © 2018 Cooper et al

                This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

                History
                : 25 October 2017
                : 10 February 2018
                Page count
                Figures: 0, Tables: 5, Pages: 13
                Funding
                Funded by: funder-id http://dx.doi.org/10.13039/501100000269, Economic and Social Research Council;
                Award ID: NIHR/ESRC ES/L001780/1
                Award Recipient :
                The MARQUE study is funded by Economic and Social Research Council (ESRC) and National Institute for Health Research (NIHR) as part of a joint funding call connected with the 2012 UK government’s challenge on dementia (ES/L001780/1) (GL).
                Categories
                Research Article
                Medicine and Health Sciences
                Mental Health and Psychiatry
                Dementia
                Medicine and Health Sciences
                Neurology
                Dementia
                Medicine and Health Sciences
                Mental Health and Psychiatry
                Psychological Stress
                Biology and Life Sciences
                Psychology
                Psychological Stress
                Social Sciences
                Psychology
                Psychological Stress
                Biology and Life Sciences
                Behavior
                Medicine and Health Sciences
                Health Care
                Quality of Life
                Medicine and Health Sciences
                Health Care
                Nursing Science
                Medicine and Health Sciences
                Health Care
                Health Care Facilities
                Nursing Homes
                Medicine and Health Sciences
                Health Care
                Health Services Research
                Biology and Life Sciences
                Psychology
                Emotions
                Social Sciences
                Psychology
                Emotions
                Custom metadata
                The data underlying this study contain sensitive information and cannot be made publicly available, according to PRIMENT CTU Data Management Group. PRIMENT CTU is a UK Clinical Research Collaboration (UKCRC) registered clinical trials unit and is based at UCL (see here for more information: https://www.ucl.ac.uk/priment). Requests for data access may be sent to Anne Marie Downey ( a.downey@ 123456ucl.ac.uk or priment@ 123456ucl.ac.uk ) from PRIMENT CTU Data Management Group.

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                Uncategorized

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