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      Quality of life and self-esteem of patients with intestinal stoma Translated title: Qualidade de vida e autoestima em pacientes com estoma intestinal

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          Abstract

          The aim of this study was to investigate the quality of life and self-esteem in patients with intestinal stoma. This is a clinical, primary, descriptive, analytical study, conducted at the Ostomized People's Pole of Pouso Alegre, after approval by the Ethics Committee of the Faculdade de Ciências da Saúde Dr. Jose Antonio Garcia Coutinho under opinion No. 23,227. Three instruments - a questionnaire on demographics and stoma, Rosenberg Self-Esteem Scale/UNIFESP-EPM and Flanagan Quality of Life Scale - were used in the data collection. The following tests were used for statistical analysis: chi-squared and Kruskal-Wallis tests and Spearman correlation. For all statistical tests, the level of significance of 5% (p<0.05) was considered. Most participants were older than 60 years, of male gender and attended support groups. Twenty-one (30%) of respondents were illiterate. Neoplasia was the most frequent of the causes that led patients to receive an ostomy; permanent colostomy was the type of ostomy used. Individuals were not submitted to stoma demarcation and did not make irrigation. Regarding the type of complication, 34 (48.60%) had dermatitis; 14 (20%) showed retraction.The mean of Rosenberg Self-Esteem Scale/UNIFESP-EPM was 10.81 and the mean of Flanagan Quality of Life Scale was 26.16. It was concluded that individuals with intestinal stoma participating in the survey showed impaired self-esteem/quality of life.

          Translated abstract

          O objetivo deste estudo foi investigar a qualidade de vida e a autoestima em pacientes com estoma intestinal. Trata-se de um estudo clínico, primário, descritivo e analítico. Este estudo foi realizado no Pólo dos ostomizados de Pouso Alegre, após aprovação pelo Comitê de Ética em Pesquisa da Faculdade de Ciências da Saúde “Dr. José Antônio Garcia Coutinho", sob o parecer no 23.277. Foram utilizados três instrumentos para a coleta de dados da pesquisa: questionário sobre os dados demográficos e estoma, Escala de Autoestima de Rosenberg/UNIFESP-EPM e Escala de Qualidade de Vida de Flanagan. Foram utilizados para a análise estatística os seguintes testes: Qui-quadrado e Kruskal-Wallis e correlação de Spearman. Para todos os testes estatísticos, foi considerado o nível de significância de 5% (p < 0,05). A maioria dos participantes tinha mais de 60 anos, eram do gênero masculino e partici-pavam de grupo de apoio. Vinte e um (30%) dos participantes da pesquisa eram analfabetos. Neoplasia foi a causa mais frequente para a aquisição da ostomia; o tipo de ostomia foi colostomia permanente. Os indivíduos não foram submetidos à demarcação do estoma e nem realizaram irrigação. Com relação ao tipo de complicação, 34 (48,60%) apresentavam dermatite; 14 (20%) retração. A média da Escala de Autoestima de Rosenberg/UNIFESP-EPM foi 10,81 e a média da Escala de Qualidade de Vida de Flanagan (EQVF) foi 26,16. Concluiu-se que os indivíduos com estoma intestinal que participaram da pesquisa apresentavam autoestima e qualidade de vida prejudicadas.

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          Tradução para a língua portuguesa e validação do questionário genérico de avaliação de qualidade de vida SF-36 (Brasil SF-36)

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            Quality of Life Outcomes in Patients Living with Stoma

            Background: Despite efforts to maintain the intestinal tissue and treat gastrointestinal disease, a large number of patients undergo ostomy surgery each year. Using stoma reduces the patient's quality of life (QOL) greatly. Although there are approximately 3000 patients in Iran; there is little information about the impact of stoma on their QOL. Aims: The study aims to evaluate QOL of stoma patients using a special measurement tool. Settings and Design: This survey was a cross-sectional study that was conducted on 102 random samples of stoma patients. Materials and Methods: The City of Hope Quality of Life-Ostomy Questionnaire was used for collecting demographic and clinical information and evaluating QOL. Statistical Analysis Used: Univariate and multiple regression analyses were performed to identify predictors of QOL. Results: The mean score for the overall QOL for stoma patients was 7.48 ± 0.9. 70% of patients were dissatisfied with sexual activities. More than half of them reported feelings of depression following stoma surgery. Univariate analysis indicated that factors such as the type of ostomy (temporary/permanent), the underlying disease that had led to the stoma, depression, problem with location of ostomy, and change in clothing style had significant effects on overall QOL and its subscales (P < 0.05). The results of the regression analyses showed that only depression and problem with the location of ostomy were statistically significant in predicting patients’ QOL and its subscales (P < 0.05). Conclusions: The findings demonstrated that living with stoma influences the overall aspect of QOL. Education for the patients and their families is important for improving the stoma patients’ QOL. Sexual and psychological consultation may also improve patients’ QOL.
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              Escala de Autoestima de Rosenberg (EAR): validade fatorial e consistência interna

              O objetivo deste estudo foi investigar as propriedades psicométricas da Escala de Autoestima de Rosenberg (EAR) para adolescentes. Participaram 4.757 adolescentes, com idades entre 14 e 18 anos (M=15,77; DP=1,22), de nove cidades brasileiras. Os participantes responderam a uma versão da EAR adaptada para o Brasil. A análise fatorial exploratória apontou uma estrutura bidimensional, com 51.4% da variância explicada, que foi sustentada pela análise fatorial confirmatória. As análises de consistência interna realizadas por meio do coeficiente alfa de Cronbach, confiabilidade composta e variância extraída indicaram bons valores de fidedignidade. Diferenças nos escores de autoestima em função do sexo e da idade não foram encontradas. Conclui-se que a EAR apresenta qualidades psicométricas satisfatórias, mostrando-se um instrumento confiável para medir autoestima em adolescentes brasileiros.
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                Author and article information

                Contributors
                Role: ND
                Role: ND
                Role: ND
                Journal
                jcol
                Journal of Coloproctology (Rio de Janeiro)
                J. Coloproctol. (Rio J.)
                Sociedade Brasileira de Coloproctologia (Rio de Janeiro )
                2317-6423
                December 2014
                : 34
                : 4
                : 231-239
                Affiliations
                [1 ] Universidade do Vale do Sapucaí Brazil
                Article
                S2237-93632014000400231
                10.1016/j.jcol.2014.05.009
                7114f9fe-1f83-458f-af02-12b7e96edbf3

                http://creativecommons.org/licenses/by/4.0/

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                SciELO Brazil

                Self URI (journal page): http://www.scielo.br/scielo.php?script=sci_serial&pid=2237-9363&lng=en
                Categories
                GASTROENTEROLOGY & HEPATOLOGY
                SURGERY

                Gastroenterology & Hepatology,Surgery
                Ostomy,Quality of life,Body image,Self-concept,Self-esteem,Estomia,Qualidade de vida,Imagem corporal,Autoimagem,Autoestima

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