17
views
0
recommends
+1 Recommend
2 collections
    0
    shares

      Submit your digital health research with an established publisher
      - celebrating 25 years of open access

      • Record: found
      • Abstract: found
      • Article: found
      Is Open Access

      “Ask a Doctor About Coronavirus”: How Physicians on Social Media Can Provide Valid Health Information During a Pandemic

      research-article

      Read this article at

      ScienceOpenPublisherPMC
      Bookmark
          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          In the wake of the COVID-19 pandemic, the information stream has overflowed with accurate information, misinformation, and constantly changing guidelines. There is a great need for guidance on the identification of trustworthy health information, and official channels are struggling to keep pace with this infodemic. Consequently, a Facebook group was created where volunteer medical physicians would answer laypeople’s questions about the 2019 novel coronavirus. There is not much precedence in health care professional–driven Facebook groups, and the framework was thus developed continuously. We ended up with an approach without room for debate, which fostered a sense of calmness, trust, and safety among the questioners. Substantial moderator effort was needed to ensure high quality and consistency through collaboration among the presently >200 physicians participating in this group. At the time of writing, the group provides a much-needed service to >58,000 people in Denmark during this crisis.

          Related collections

          Most cited references14

          • Record: found
          • Abstract: found
          • Article: found
          Is Open Access

          Social media use in healthcare: A systematic review of effects on patients and on their relationship with healthcare professionals

          Background Since the emergence of social media in 2004, a growing percentage of patients use this technology for health related reasons. To reflect on the alleged beneficial and potentially harmful effects of social media use by patients, the aim of this paper is to provide an overview of the extant literature on the effects of social media use for health related reasons on patients and their relationship with healthcare professionals. Methods We conducted a systematic literature review on empirical research regarding the effects of social media use by patients for health related reasons. The papers we included met the following selection criteria: (1) published in a peer-reviewed journal, (2) written in English, (3) full text available to the researcher, (4) contain primary empirical data, (5) the users of social media are patients, (6) the effects of patients using social media are clearly stated, (7) satisfy established quality criteria. Results Initially, a total of 1,743 articles were identified from which 22 were included in the study. From these articles six categories of patients’ use of social media were identified, namely: emotional, information, esteem, network support, social comparison and emotional expression. The types of use were found to lead to seven identified types of effects on patients, namely improved self-management and control, enhanced psychological well-being, and enhanced subjective well-being, diminished subjective well-being, addiction to social media, loss of privacy, and being targeted for promotion. Social media use by patients was found to affect the healthcare professional and patient relationship, by leading to more equal communication between the patient and healthcare professional, increased switching of doctors, harmonious relationships, and suboptimal interaction between the patient and healthcare professional. Conclusions Our review provides insights into the emerging utilization of social media in healthcare. In particular, it identifies types of use by patients as well as the effects of such use, which may differ between patients and doctors. Accordingly, our results framework and propositions can serve to guide future research, and they also have practical implications for healthcare providers and policy makers. Electronic supplementary material The online version of this article (doi:10.1186/s12913-016-1691-0) contains supplementary material, which is available to authorized users.
            Bookmark
            • Record: found
            • Abstract: found
            • Article: not found

            Building trust while influencing online COVID-19 content in the social media world

            With more than two million cases globally, the coronavirus disease 2019 (COVID-19) pandemic has resulted in unprecedented disruption to human society. Leaders from around the world have escalated from states of reluctant acceptance to states of emergency. Unlike historical pandemics, such as the 1918 H1N1 pandemic, COVID-19 is spreading across a highly connected world, in which virtually all individuals are linked to each other through the mobile phone in their pockets. Because of strict physical distancing measures, people are heavily reliant on maintaining connectivity using global digital social networks, such as Facebook or Twitter, to facilitate human interaction and information sharing about the virus. In what follows, we discuss some ways in which social media has undermined effective responses to COVID-19. We consider how various groups could respond to these challenges—especially government leaders, social media companies, and health-care providers. Ultimately, these actors each have roles to play in preventing social media from being weaponised to sow distrust and further endanger public health, while also ensuring that social media can fulfill its essential civic function of facilitating good faith political expression and discourse. The idea of legitimacy has changed in the context of social media platforms. Users increasingly see trusted individuals within their peer networks who support production and exchange of valued information as authoritative sources of information. As that information is further disseminated, it often increases in its perceived legitimacy. This method of sharing and validating information contrasts with methods more directly controlled by intermediaries (eg, traditional media), who have specialised knowledge and specific responsibilities related to information verification and sharing. 1 This model of information sharing has become a driving feature of how public information related to health and medicine is produced and disseminated. In the COVID-19 pandemic, individuals are, not surprisingly, turning to this new digital reality for guidance. Digital social networks have facilitated the spread of a different viral entity—misinformation. Scientific misinformation has been actively propagated as a means to destabilise trust in governments and as a political weapon.2, 3 In the few months since the first COVID-19 cases, a broad range of misinformation has spread across traditional media and social media in what WHO has called an infodemic (ie, excessive amounts misinformation, disinformation, and rumours that make it difficult identify reliable sources of information), 4 including the Trump administration referring to the epidemic as a hoax and political attack by opposition politicians. 5 Misinformation can have fatal consequences, as shown by the spread of premature evidence suggesting chloroquine is an effective treatment for COVID-19. 6 Given the exponential growth of the COVID-19 pandemic, the unchecked and rapid spread of misinformation, primarily fuelled by social media, presents a pressing public health challenge for COVID-19 control and mitigation measures, as confusion sowed by misinformation hinders public trust, consensus, and subsequent action. Unlike the litany of debunked misinformation perpetuated by anti-vaccine activists, our understanding of COVID-19 is evolving continuously. As such, what qualifies as misinformation will be sensitive to new scientific discoveries and insights, making it in turn, harder to eliminate misinformation. That is, distinguishing misinformation from legitimate information is, at present, a moving target. The stakes are exceptionally high. With the scale and reach of the pandemic increasing exponentially, there is an urgent need to establish practices to effectively disseminate current, accurate information and quickly identify and root out outdated guidance or misinformation. Actions taken by government agencies to partner with the social media giants Facebook, Twitter, and Instagram show how public–private cooperation to flag, fact-check, and even remove false or outdated information can be an effective way to inoculate these networks from impeding and actually worsening public health efforts. Social media companies have committed to regulate content in light of the pandemic. 7 Eliminating misinformation can help social media users gather and disseminate accurate information, helping them stay safe and reduce risk to others. Emerging tools, including crowd intelligence-based misinformation detection, can support social media platforms to root out misinformation. 8 A more ambitious role for social media platforms would be to boost efforts by public health authorities by, for example, upranking links to recommendations from recognised health authorities, and downranking ads for essential limited medical supplies, such as face masks, to prevent hoarding. Removing false claims about COVID-19 and elevating authoritative information are welcome steps to help protect public health in this extraordinary time. Content standards should be designed to allow diverse voices, including voices critical of government policy, while maintaining controls on the validity and authenticity of claims and recommendations. This aim is understandably complicated. In setting these standards, it is paramount to preserve social media's role as a platform for open, critical public discussion of policies, including good faith disagreements about how government or global health agencies are responding to the pandemic. We anticipate that critiques will only become louder as citizens increasingly question the overall benefits, for example, of physical distancing. The risk of misinformation spreading will probably increase, as these tensions between public health authorities and the public increase. Social media provides an important platform to ensure that citizens have a voice and promote public trust in the transparency and accountability of policy making. 9 As public health practitioners, we must ensure that measures strike an ethically appropriate balance between protecting speech and preserving and promoting public health. Finally, because many are turning to social media for information and advice, the differentiation between individuals who are qualified to provide accurate information online and so-called armchair epidemiologists is increasingly difficult. Members of the lay public might try to identify the most seemingly qualified member of their close network as a trusted resource to vet information. These individuals might feel unequipped to respond effectively to misinformation that individuals are exposed to on social media. To dispel myths, one strategy for the lay public and trusted sources of information (ie, epidemiologists) is inoculation. Inoculation, in this sense, focuses on strengthening a person's attitudes and opinions to protect them from misinformation. 10 For example, a common myth circulating on social media is that COVID-19 was engineered in a lab. By affirming the proliferation of misinformation about COVID-19, one can also point to the use of conspiracy theory rhetoric. Such rhetoric characteristically suggests unsubstantiated links and invokes themes of unseen nefarious networks that act behind the scenes of the pandemic. Because of the ubiquitous nature of misinformation related to COVID-19, all members of these broad digital social networks (including government agencies, social media companies, health-care providers, and the consumers or propagators of information themselves) share in the responsibility to help address the broader implications of this pandemic and the underlying infodemic to strengthen community resiliency.
              Bookmark
              • Record: found
              • Abstract: found
              • Article: not found

              Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia.

              Ever since the rise of online support groups it has been presumed that there is an empowering effect from patients' participating in these groups, despite a lack of evidence to back up this assumption. In this study we explored if, and in which ways, patients feel empowered by participation. Additionally, we studied which empowering and disempowering processes occur as a result of taking part in these groups. To accomplish this aim, we interviewed 32 participants of online support groups. This analysis revealed the following empowering processes: exchanging information, encountering emotional support, finding recognition, sharing experiences, helping others, and amusement. Disempowering processes were mentioned far less often. Empowering outcomes mentioned were being better informed; feeling confident in the relationship with their physician, their treatment, and their social environment; improved acceptance of the disease; increased optimism and control; enhanced self-esteem and social well-being; and collective action. This article demonstrates that participation in online support groups can make a valuable contribution to the emergence of empowered patients.
                Bookmark

                Author and article information

                Contributors
                Journal
                J Med Internet Res
                J Med Internet Res
                JMIR
                Journal of Medical Internet Research
                JMIR Publications (Toronto, Canada )
                1439-4456
                1438-8871
                April 2021
                20 April 2021
                20 April 2021
                : 23
                : 4
                : e24586
                Affiliations
                [1 ] Section for Health Services Research Department of Public Health University of Copenhagen Copenhagen Denmark
                [2 ] Roche Diagnostics Copenhagen Denmark
                [3 ] The Research Unit of General Practice Department of Public Health University of Southern Denmark Odense Denmark
                [4 ] Department of Internal Medicine Herlev University Hospital Herlev Denmark
                [5 ] Steno Diabetes Center Copenhagen Copenhagen Denmark
                Author notes
                Corresponding Author: Dorthe Furstrand furstrand@ 123456gmail.com
                Author information
                https://orcid.org/0000-0003-0537-2121
                https://orcid.org/0000-0003-0158-7205
                https://orcid.org/0000-0001-7146-8792
                https://orcid.org/0000-0002-6797-9917
                https://orcid.org/0000-0002-1629-1864
                Article
                v23i4e24586
                10.2196/24586
                8059786
                33835935
                6d68b3b7-c175-4fe6-80fb-f955a84cc946
                ©Dorthe Furstrand, Andreas Pihl, Elif Bayram Orbe, Natasja Kingod, Jens Søndergaard. Originally published in the Journal of Medical Internet Research (https://www.jmir.org), 20.04.2021.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License ( https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in the Journal of Medical Internet Research, is properly cited. The complete bibliographic information, a link to the original publication on http://www.jmir.org/, as well as this copyright and license information must be included.

                History
                : 29 September 2020
                : 18 November 2020
                : 7 March 2021
                : 3 April 2021
                Categories
                Viewpoint
                Viewpoint

                Medicine
                covid-19,coronavirus,digital health literacy,ehealth literacy,facebook,framework,health information,health literacy,health promotion,infodemic,infodemiology,mental health,misinformation,pandemic,patient-physician relationship,public health,social media,trust,web-based community

                Comments

                Comment on this article