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      The need to distinguish between different forms of oral nutrition refusal and different forms of voluntary stopping of eating and drinking

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          Abstract

          Voluntary stopping of eating and drinking (VSED) is a well-known phenomenon among palliative care professionals. This study intent to distinguish between different forms of VSED. In a qualitative interview study 18 relatives were interviewed about their experiences of caring a person during VSED. Different forms of oral nutrition refusal and different forms of VSED were found and described. The study results help members of the multidisciplinary team to manage the situation appropriately.

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          Most cited references29

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          Qualitative research in healthcare: an introduction to grounded theory using thematic analysis.

          In today's NHS, qualitative research is increasingly important as a method of assessing and improving quality of care. Grounded theory has developed as an analytical approach to qualitative data over the last 40 years. It is primarily an inductive process whereby theoretical insights are generated from data, in contrast to deductive research where theoretical hypotheses are tested via data collection. Grounded theory has been one of the main contributors to the acceptance of qualitative methods in a wide range of applied social sciences. The influence of grounded theory as an approach is, in part, based on its provision of an explicit framework for analysis and theory generation. Furthermore the stress upon grounding research in the reality of participants has also given it credence in healthcare research. As with all analytical approaches, grounded theory has drawbacks and limitations. It is important to have an understanding of these in order to assess the applicability of this approach to healthcare research. In this review we outline the principles of grounded theory, and focus on thematic analysis as the analytical approach used most frequently in grounded theory studies, with the aim of providing clinicians with the skills to critically review studies using this methodology.
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            A Systematic Approach for Using Qualitative Methods in Primary Prevention Research

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              Malnutrition in elderly: social and economic determinants.

              Malnutrition occurs frequently in the frailest groups of the population, especially in people who are on a low income and elderly subjects, overall if they are institutionalized. The aim of this study was to assess the prevalence of malnutrition in a sample of elderly people living in different settings and to identify the determinants of malnutrition. A total of 718 subjects, 472 females (F) and 246 males (M), were recruited from nursing homes or were free living in three different regions in Italy. Nutritional status, depression, social, functional and cognitive status, were evaluated. According to the Mini Nutritional Assessment (MNA), a high prevalence of malnutrition was found out in both genders: 26% of F and 16.3% of M were classified as being malnourished (MNA<17); 40.9% of F and 35% of M were at risk of malnutrition (MNA 17-23,5). The prevalence of malnutrition was significantly higher in NH subjects in both sexes. Moreover, a relationship was shown between malnutrition and inability to shop, prepare and cook meals because of a low income, distance from markets or supermarkets as well as impossibility to drive the car or to use public transportation. This study confirms the necessity to routinely perform nutritional status evaluation in elderly subjects, to carry out training courses for health workers (doctors, nurses, psychologists, dietitians), to implement nutritional education of the geriatric population, to develop tools and guidelines for health workers and caregivers, to identify and reduce clinical, functional, social or economic risk factors for malnutrition.
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                Author and article information

                Contributors
                Journal
                Palliat Care Soc Pract
                Palliat Care Soc Pract
                PCR
                sppcr
                Palliative Care and Social Practice
                SAGE Publications (Sage UK: London, England )
                2632-3524
                9 October 2019
                2019
                : 13
                : 1178224219875738
                Affiliations
                [1-1178224219875738]Department of Nursing Science, Faculty of Health, Witten/Herdecke University, Witten, Germany; School of Health Professions, ZHAW Zurich University of Applied Sciences, Winterthur, Switzerland
                [2-1178224219875738]Department of Nursing Science, Faculty of Health, Witten/Herdecke University, Witten, Germany
                [3-1178224219875738]Department of Nursing Science, Faculty of Health, Witten/Herdecke University, Witten, Germany; School of Health Professions, ZHAW Zurich University of Applied Sciences, Winterthur, Switzerland
                Author notes
                Author information
                https://orcid.org/0000-0003-1664-8824
                https://orcid.org/0000-0003-4950-7788
                Article
                10.1177_1178224219875738
                10.1177/1178224219875738
                7065502
                6417457b-e270-4790-b1ea-9c261e4c54db
                © The Author(s), 2019

                This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License ( http://www.creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages ( https://us.sagepub.com/en-us/nam/open-access-at-sage).

                History
                : 13 August 2019
                : 20 August 2019
                Categories
                Perspective Review
                Custom metadata
                January-December 2019

                autonomy,palliative care,professional support,voluntary stopping of eating and drinking

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