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      Disparities and barriers in the assessment of psychological distress, access to and use of psycho-oncological support in Europe: current perspectives

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          Abstract

          The implementation of psycho-oncological support has shown important results in positively influencing treatment outcomes and quality of life in cancer patients and survivors. In the last few decades, the importance of mental health has been brought to attention to the general public and healthcare professionals on a national, institutional and organisational level. Official guidelines, policies, and training programs have been developed suggesting that psycho-oncological support should be considered as a non-negotiable requirement for quality cancer care in many hospitals and clinical centres across Europe. Health organisations, associations, institutions, and societies, such as the International Psycho-Oncology Society (IPOS) and the European Partnership for Action Against Cancer (EPAAC), are forming alliances, funding research projects and organising congresses in order to study, understand, and discuss the reasons for barriers and disparities in psycho-oncological support and, eventually, to overcome the existing cancer divide. Nevertheless, the World Health Organization’s (WHO) estimations indicate that the cancer burden is still increasing, and relevant barriers and disparities in accessing psycho-oncological support continue to exist and influence the health conditions and quality of life of cancer patients and survivors. The present work will present the current disparities and barriers regarding assessment, access to and use of psycho-oncological support in the countries of the European Union, making suggestions for further research and possible solutions.

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          Most cited references36

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          The Edmonton Symptom Assessment System (ESAS): A Simple Method for the Assessment of Palliative Care Patients

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            What is the evidence for the use of mindfulness-based interventions in cancer care? A review.

            The aim of this paper is to present and critically appraise the evidence for the use of mindfulness-based interventions in cancer care. Systematic review methods were used. A thorough search of relevant major and specialised electronic databases was made and unpublished and ongoing work was also identified. Both qualitative and quantitative studies were eligible for inclusion. Information about aims, design, participant sample, measures, findings and intervention details were extracted from each study. Thirteen research papers and four conference abstracts published since 2007 were identified which met the criteria, reporting five different types of mindfulness intervention. The 13 papers composed of three randomised control trials, two non-randomised control trials, five pre and post-test designs and two qualitative studies. Studies report significant improvements in anxiety, depression, stress, sexual difficulties, physiological arousal and immune function or subjective benefits across all interventions. Methodological limitations were identified. Diversity in study designs and interventions makes comparisons between studies difficult. Some mindfulness interventions may have a place in acute treatment and palliative care. Mindfulness approaches are a promising intervention in cancer care, potentially across the cancer trajectory. Further qualitative research and research into different styles of mindfulness delivery are recommended. Copyright © 2010 John Wiley & Sons, Ltd.
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              Why do oncology outpatients who report emotional distress decline help?

              Many patients who experience distress do not seek help, and little is known about the reasons for this. We explored the reasons for declining help among patients who had significant emotional distress.
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                Author and article information

                Contributors
                Journal
                Front Psychol
                Front Psychol
                Front. Psychol.
                Frontiers in Psychology
                Frontiers Media S.A.
                1664-1078
                19 September 2023
                2023
                : 14
                : 1252843
                Affiliations
                [1] 1Applied Research Division for Cognitive and Psychological Science, IEO, European Institute of Oncology IRCCS , Milan, Italy
                [2] 2Department of Psychology, Educational Science and Human Movement (SPPEFF), University of Palermo , Palermo, Italy
                [3] 3Department of Oncology and Hemato-Oncology, University of Milan , Milan, Italy
                Author notes

                Edited by: Eun-Jung Shim, Pusan National University, Republic of Korea

                Reviewed by: Christian Heuser, University of Cologne, Germany

                *Correspondence: Veronica Coppini, veronica.coppini@ 123456ieo.it
                Article
                10.3389/fpsyg.2023.1252843
                10546339
                37794912
                5fe2b643-1230-436f-a8e3-f00b1ff593a7
                Copyright © 2023 Coppini, Ferraris, Monzani, Grasso and Pravettoni.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.

                History
                : 04 July 2023
                : 06 September 2023
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 40, Pages: 6, Words: 5217
                Funding
                Funded by: European Union, doi 10.13039/501100000780;
                Award ID: 101080005
                Categories
                Psychology
                Perspective
                Custom metadata
                Psycho-Oncology

                Clinical Psychology & Psychiatry
                psycho-oncology,psychological support,psychological distress,cancer disparities,cancer inequalities,cancer divide

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