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      Brazilian version of the Burden Interview scale for the assessment of burden of care in carers of people with mental illnesses Translated title: Versão brasileira da escala Burden Interview para avaliação de sobrecarga em cuidadores de indivíduos com doenças mentais

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          Abstract

          INTRODUCTION: Burden on informal carers of people with mental or physical illnesses has been studied for a long time. Several standardized instruments for the assessment of carer's burden have been developed. The Burden Interview is one of the most frequently used instruments. The aim of the present study is to examine the internal consistency and validity of the Brazilian version of the Burden Interview, designed to examine the burden in carers of individuals with mental illnesses. METHODS: Carers of patients with a diagnosis of depression, aged 60 or over, were assessed for burden (Burden Interview), emotional distress (SRQ-20) and their perception of patients' behavioral and mood disturbances (Behavioral and Mood Disturbance Scale - BMD). Socio-demographic information of patients and carers was collected with a standardized form. The reliability of the Burden Interview was assessed through its internal consistency. Construct validity was assessed through the exam of the associations of carers' burden with their perception of patients' behavioral and mood disturbances, and the carers' burden with carers' distress. RESULTS: Eighty-two carers of elderly patients with depression were included, being forty-eight (58,5%) women. The internal consistency was good, with a Cronbach's alpha of 0.87. The associations between total scores of the Burden Interview and total scores of the SRQ-20 (r=0.37, p=0.001), and between total scores of the Burden Interview with total scores of BMD (r=0.54, p=0.001) were strong, and similar to other studies that examined those associations, indicating a good construct validity of the Brazilian version of the Burden Interview. DISCUSSION: The Brazilian version of the Burden Interview is a standardized and valid instrument that can be used in the study of the impact of mental and physical illnesses on informal carers.

          Translated abstract

          OBJETIVO: Sobrecarga em cuidadores informais de pessoas com transtornos mentais ou com doenças físicas tem sido estudada há muito tempo. Diversos instrumentos padronizados para avaliação da sobrecarga em cuidadores já foram desenvolvidos. A Burden Interview é um dos instrumentos utilizados mais freqüentemente. O objetivo deste estudo é avaliar a consistência interna e a validade da versão brasileira da escala Burden Interview para avaliação de sobrecarga em cuidadores de indivíduos com doenças mentais. MÉTODOS: Cuidadores de pacientes com diagnóstico de depressão com 60 anos ou mais foram avaliados para sobrecarga (Burden Interview), desconforto emocional (SRQ-20) e para as percepções sobre problemas no comportamento e humor dos pacientes (Behavioural and Mood Disturbance Scale - BMD). Informações sociodemográficas dos pacientes e cuidadores foram obtidas com um questionário padronizado. A confiabilidade da Burden Interview foi avaliada por meio da sua consistência interna. A validade de construção foi avaliada pelo exame da associação da sobrecarga dos cuidadores com suas percepções sobre a perturbação do humor e do comportamento dos pacientes, e da sobrecarga com a avaliação dos sintomas psiquiátricos comuns dos cuidadores. RESULTADOS: Foram incluídos 82 cuidadores de pacientes idosos com depressão foram incluídos, sendo que 48 cuidadores eram mulheres (58,5%). A consistência interna foi boa, com um alpha de Cronbach igual a 0,87. As associações dos escores totais da Burden Interview aos escores totais do SRQ-20 (r=0,37, p=0,001) e aos escores totais da BMD (r=0,54, p=0,001) foram fortes e similares às associações encontradas em outros estudos, indicando uma boa validade de construção da versão Brasileira da Burden Interview. DISCUSSÃO: A versão brasileira da Burden Interview é um instrumento padronizado e válido, que pode ser utilizado no estudo do impacto de doenças mentais e físicas nos cuidadores informais.

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              Measuring the burden of psychiatric illness on the family: an evaluation of some rating scales.

              S Platt (1985)
              The gradual shift towards non-institutional treatment for severe and chronic psychiatric illnesses has been accompanied by a recognition of potentially harmful effects ('burden') upon the patient's caregivers. This paper aims to provide a framework for the development of further research into the burden of 'community care' by offering a clear definition of the burden concept, an exposition of the criteria for evaluating rating scales to measure the concept, a review of major rating scales of burden, and some suggestions for improvements in methodology which are urgently required.
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                Author and article information

                Contributors
                Role: ND
                Journal
                rbp
                Revista Brasileira de Psiquiatria
                Rev. Bras. Psiquiatr.
                Associação Brasileira de Psiquiatria - ABP (São Paulo )
                1809-452X
                March 2002
                : 24
                : 1
                : 12-17
                Affiliations
                [1 ] Universidade de São Paulo Brazil
                Article
                S1516-44462002000100006
                10.1590/S1516-44462002000100006
                5f414148-28c0-4f52-95c1-22744926e099

                http://creativecommons.org/licenses/by/4.0/

                History
                Product

                SciELO Brazil

                Self URI (journal page): http://www.scielo.br/scielo.php?script=sci_serial&pid=1516-4446&lng=en
                Categories
                PSYCHIATRY

                Clinical Psychology & Psychiatry
                Burden of care,Burden scale,Impact assessment,Validity,Reproducibility of results,Sobrecarga no cuidador,Escala de impacto em cuidadores,Medição de impacto,Validade,Reprodutibilidade dos resultados

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