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      PERSPECTIVA DE ENFERMERAS NEONATÓLOGAS SOBRE EL ACOMPAÑAMIENTO ESPIRITUAL AL FAMILIAR ANTE LA MUERTE DE UN PACIENTE NEONATO Translated title: PERSPECTIVE OF NEONATAL NURSES ON SPIRITUAL ACCOMPANIMENT OF FAMILY MEMBERS IN THE FACE OF THE DEATH OF A NEONATAL PATIENT Translated title: PERSPECTIVA DE ENFERMEIRAS DE NEONATOLOGIA SOBRE O ACOMPANHAMENTO ESPIRITUAL AO FAMILIAR NA MORTE DE UM PACIENTE NEONATO

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          Abstract

          RESUMEN Objetivo: Describir la perspectiva de enfermeras neonatólogas sobre el acompañamiento espiritual al familiar ante la muerte de un paciente neonato. Material y Método: Estudio cualitativo, descriptivo en una unidad de cuidados intensivos de un hospital público de la ciudad de Chiclayo, Perú. La muestra fue no probabilística y el muestreo por conveniencia. La saturación de los datos se alcanzó con 12 enfermeras. La recolección de datos se realizó entre agosto y septiembre 2019 mediante entrevista semiestructurada, previo consentimiento informado. El análisis de contenido fue mediante tres fases: Preanálisis, Codificación y Categorización. Se respetaron principios éticos de la Declaración de Helsinki y se tuvo en cuenta los criterios de rigor científico: Credibilidad, Confirmabilidad y Transferibilidad. Resultados: Se identificaron dos categorías: a) Trato humano, empatía y prácticas religiosas previas al deceso, b) Compasión y consuelo durante el fallecimiento. Conclusión: Se demuestra que la muerte de un paciente neonato en la unidad de cuidados intensivos es un suceso funesto e inexplicable para padres/madres. El profesional de enfermería ofrece un acompañamiento espiritual basado en el trato humano, empatía, y permisión de prácticas religiosas como la oración y el bautismo; previo al suceso y al momento del fallecimiento se muestran compasivos y brindan consuelo a través de la esperanza en un ser superior, un abrazo y el permitir que la madre permanezca unos momentos con su bebé, antes de realizar la atención post mortem y los trámites administrativos.

          Translated abstract

          ABSTRACT Objective: To describe the perspective of neonatal nurses on the spiritual accompaniment of family members in the face of the death of a neonatal patient. Material and Method: Qualitative, descriptive study carried out in the intensive care unit of a public hospital in the city of Chiclayo, Peru. The sample was non-probabilistic and determined by using convenience sampling. Data saturation was reached with 12 nurses. Data collection was carried out between August and September 2019, using semi-structured interviews and prior informed consent. Content analysis was conducted in three phases: Pre-analysis, coding and categorization. The ethical principles of the Helsinki Declaration and the criteria of scientific rigor were considered: credibility, confirmability and transferability. Results: Two categories were identified: (a) humane treatment, empathy and religious practices before death, (b) compassion and comfort during death. Conclusion: The death of a neonatal patient in the intensive care unit is shown to be a fatal and incomprehensible event for parents. The nursing professional offers spiritual accompaniment, based on humane treatment, empathy and permission to perform religious practices such as prayer and baptism. Prior to the event and at the time of death, they show compassion and provide comfort through hope in a higher being, give a hug and allow the mother to stay a few moments with her baby, before performing postmortem care and administrative procedures.

          Translated abstract

          RESUMO Objetivo: Descrever a perspectiva de enfermeiras de neonatologia sobre o acompanhamento espiritual do familiar diante da morte do paciente neonato. Material e Método: Estudo qualitativo descritivo em una unidade de terapia intensiva de um hospital público da cidade de Chiclayo, Peru. A amostra foi não probabilística e por conveniência. A saturação dos dados foi alcançada com 12 enfermeiras. Os dados foram coletados entre agosto e setembro de 2019 por meio de entrevista semiestruturada, com consentimento informado prévio. A análise de conteúdo ocorreu em três fases: Pré-análise, Codificação e Categorização. Foram respeitados os princípios éticos da Declaração de Helsinki e consideraram-se os critérios de rigor científico: Credibilidade, Confirmabilidade e Transferibilidade. Resultados: Duas categorias foram identificadas: a) Trato humano, empatia e práticas religiosas antes da morte, b) Compaixão e conforto durante a morte. Conclusão: Demonstra-se que a morte de um paciente neonato na unidade de terapia intensiva é um evento catastrófico e inexplicável para pais/ mães. O profissional de enfermagem oferece um acompanhamento espiritual baseado no trato humanizado, na empatia, e na permissão de práticas religiosas como a oração e o batismo; antes do evento e no momento da morte, são compassivos e proporcionam conforto por meio da esperança em um ser superior, um abraço e permitir que a mãe permaneça alguns momentos com seu bebê, antes de realizar os cuidados pós-morte e os procedimentos administrativos.

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          The spiritual needs of parents at the time of their child's death in the pediatric intensive care unit and during bereavement: a qualitative study.

          Death is common in pediatric intensive care units. A child's death can shatter parents' personal identities, disrupt their relationships, and challenge their worldviews. Spirituality is a human characteristic that engenders transcendence; seeks meaning, purpose, and connection to others; and helps to construct a coherent worldview. Greater attention to spiritual needs may help parents cope with their loss. Our objective is to gain a deeper understanding of parents' spiritual needs during their child's death and bereavement. Prospective, qualitative study. University-affiliated children's hospital. Thirty-three parents of 26 children who died in the pediatric intensive care unit between January 1, 1999, and August 31, 2000. Semistructured, in-depth, videotaped interviews with parents 2 yrs after their child's death. The main spiritual need described by parents was that of maintaining connection with their child. Parents maintained connection at the time of death by physical presence. Parents maintained connection after the death through memories, mementos, memorials, and altruistic acts such as organ donation, volunteer work, charitable fund raising, support group development, and adoption. Other spiritual needs included the need for truth; compassion; prayer, ritual, and sacred texts; connection with others; bereavement support; gratitude; meaning and purpose; trust; anger and blame; and dignity. Bereaved parents have intense spiritual needs. Health care providers can help to support parents' spiritual needs through words and actions that demonstrate a caring presence, impart truth, and foster trust; by providing opportunity to stay connected with the child at the time of death; and by creating memories that will bring comfort in the future.
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            Spirituality and religiosity in supportive and palliative care.

            To provide an updated overview about the role of spirituality and religiosity in the way patients with life-threatening illnesses cope, and the importance of providing a comprehensive spiritual assessment and spiritual care in an interdisciplinary team work setting, such as supportive and palliative care.
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              • Record: found
              • Abstract: found
              • Article: not found

              End-of-life care in the neonatal intensive care unit: experiences of staff and parents.

              The aim of the study is to determine the perceptions of end-of-life care practices and experience with infants who have died in the NICU among neonatologists, advanced practitioners, nurses, and parents, and also to determine perceived areas for improvement and the perceived value of a palliative care team.
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                Author and article information

                Journal
                cienf
                Ciencia y enfermería
                Cienc. enferm.
                Universidad de Concepción. Facultad de Enfermería (Concepción, , Chile )
                0717-9553
                2020
                : 26
                : 24
                Affiliations
                [4] Chiclayo orgnameUniversidad Católica Santo Toribio de Mogrovejo Peru anunez@ 123456usat.edu.pe
                [3] Chiclayo orgnameUniversidad Católica Santo Toribio de Mogrovejo Peru lrodriguez@ 123456usat.edu.pe
                [2] Chiclayo orgnameUniversidad Católica Santo Toribio de Mogrovejo Peru rdiaz@ 123456usat.edu.pe
                [5] Chachapoyas orgnameUniversidad Nacional Toribio Rodríguez de Mendoza Perú sonia.tejada@ 123456untrm.edu.pe
                [1] Chiclayo orgnameUniversidad Católica Santo Toribio de Mogrovejo Peru milagros-0801@ 123456hotmail.com
                Article
                S0717-95532020000100217 S0717-9553(20)02600000217
                10.29393/ce26-17pels50017
                5ef0ac06-7366-44fe-bf76-6064f5a38f0b

                This work is licensed under a Creative Commons Attribution-NonCommercial 4.0 International License.

                History
                : 30 September 2020
                : 10 June 2020
                Page count
                Figures: 0, Tables: 0, Equations: 0, References: 22, Pages: 0
                Product

                SciELO Chile

                Categories
                INVESTIGACION

                Espiritualidad,Spirituality,Neonatal Nursing,Familia,Muerte,Family,Espiritualidade,Enfermagem neonatal,Família,Death,Morte,Enfermería neonatal

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