Challenges faced during the COVID-19 pandemic by family carers of people living with dementia towards the end of life.

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Abstract

People living with dementia account for a large proportion of deaths due to COVID-19. Family carers are faced with making significant and emotive decisions during the pandemic, including decisions about end of life. We aimed to explore the challenges faced by family carers of people living with dementia during the first wave of the COVID-19 pandemic in England, as reported by charity telephone support line staff, who were able to objectively discuss a range of different experiences of many different carers who call the helpline. In particular, we focussed on key concerns and areas of decision making at the end of life.

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Journal

Journal ID (iso-abbrev): BMC Health Serv Res

Title: BMC health services research

Publisher: Springer Science and Business Media LLC

ISSN (Electronic): 1472-6963

ISSN (Print): 1472-6963

Publication date (Electronic): Sep 21 2021

Volume: 21

Issue: 1

Affiliations

[1 ] Centre for Ageing Population Studies, Research Department of Primary Care and Population Health, University College London, London, UK.

[2 ] Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, 6th Floor, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK.

[3 ] National Ageing Research Institute, Parkville, Victoria, Australia.

[4 ] Barnet, Enfield and Haringey Mental Health Liaison Service, North Middlesex University Hospital NHS Trust, London, UK.

[5 ] Marie Curie Palliative Care Research Department, Division of Psychiatry, University College London, 6th Floor, Maple House, 149 Tottenham Court Road, London, W1T 7NF, UK. n.kupeli@ucl.ac.uk.

Article

Publisher Item ID: 10.1186/s12913-021-07019-6

DOI: 10.1186/s12913-021-07019-6

PMC ID: 8454696

PubMed ID: 34548067

SO-VID: 4a0c3ccb-907c-4606-bc67-ca8a6680eaa8

History

Keywords: Coronavirus,Concerns,Charities,COVID-19,Telephone support,Place of care,Family carers,End of life,Dementia,Decision making

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Keywords: Coronavirus, Concerns, Charities, COVID-19, Telephone support, Place of care, Family carers, End of life, Dementia, Decision making

Challenges faced during the COVID-19 pandemic by family carers of people living with dementia towards the end of life.

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Abstract

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UCL: Covid-19 Research

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