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      An Exploration of the Goodness of Fit of Web-Based Tools for Māori: Qualitative Study Using Interviews and Focus Groups

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      , BSc, MSc, PGDip (Health Psychology), PGDipArtsDist (Psychology), PGDip (Clinical Psychology), PhD 1 , , 2 , , BSocSci (Hons), MSc 2 , , BA, MA, PGDipArts (Psychology), PGDip (Psychological Practice) 1 , , BPharm (Hons), PhD 2
      (Reviewer), (Reviewer), (Reviewer)
      JMIR Formative Research
      JMIR Publications
      Indigenous people, Māori, eHealth, mental health, web-based intervention, digital intervention

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          Abstract

          Background

          Indigenous communities often have poorer health outcomes and services under traditional models of care. In New Zealand, this holds true for Māori people who are tāngata whenua (the indigenous people). Several barriers exist that decrease the likelihood of indigenous communities often have poorer health outcomes and poor service fit under traditional models of care, including access issues, systemic and provider racism, and a lack of culturally safe and responsive services. Web-based interventions (WBIs) have been shown to be effective in supporting mental health and well-being and can overcome some of these barriers. Despite the large number of WBIs developed, more investigation is needed to know how well WBIs fit with an indigenous worldview and how they meet the needs of indigenous communities so that a digitally based future does not drive social and health inequities.

          Objective

          This study aims to explore the goodness-of-fit of WBIs of Māori individuals, the indigenous people of Aotearoa/New Zealand.

          Methods

          We used interviews (n=3) and focus groups (n=5) with 30 Māori participants to explore their views about WBIs. Interviews were analyzed using reflexive thematic analysis by members of the research team.

          Results

          Overall, there was a perception that the design of WBIs did not align with the Māori worldview, which centers around people, relationships, spirituality, and holistic views of well-being. A total of 4 key themes and several subthemes emerged, indicating that WBIs were generally considered a poor fit for Māori. Specifically, the themes were as follows: (1) WBIs are disconnected from the core values of te ao Māori (the Māori worldview), (2) WBIs could be helpful in the right context, (3) there are significant barriers that may make it harder for Māori to use WBIs than other groups, and (4) ways to improve WBIs to help engagement with Māori.

          Conclusions

          While WBIs are often considered a way to reduce barriers to care, they may not meet the needs of Māori when used as a stand-alone intervention. If WBIs are continued to be offered, developers and researchers need to consider how to develop WBIs that are responsive and engaging to the needs of indigenous communities rather than driving inequities. Ideally, WBIs should be developed by the people they are intended for to fit with those populations’ world views.

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          Most cited references47

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          Indigenous and tribal peoples' health (The Lancet-Lowitja Institute Global Collaboration): a population study.

          International studies of the health of Indigenous and tribal peoples provide important public health insights. Reliable data are required for the development of policy and health services. Previous studies document poorer outcomes for Indigenous peoples compared with benchmark populations, but have been restricted in their coverage of countries or the range of health indicators. Our objective is to describe the health and social status of Indigenous and tribal peoples relative to benchmark populations from a sample of countries.
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            A Systematic Review of the Impact of Adherence on the Effectiveness of e-Therapies

            Background As the popularity of e-therapies grows, so too has the body of literature supporting their effectiveness. However, these interventions are often plagued by high attrition rates and varying levels of user adherence. Understanding the role of adherence may be crucial to understanding how program usage influences the effectiveness of e-therapy interventions. Objective The aim of this study was to systematically review the e-therapy literature to (1) describe the methods used to assess adherence and (2) evaluate the association of adherence with outcome of these interventions. Methods A systematic review of e-therapy interventions was conducted across disease states and behavioral targets. Data were collected on adherence measures, outcomes, and analyses exploring the relationship between adherence measures and outcomes. Results Of 69 studies that reported an adherence measure, only 33 (48%) examined the relationship between adherence and outcomes. The number of logins was the most commonly reported measure of adherence, followed by the number of modules completed. The heterogeneity of adherence and outcome measures limited analysis. However, logins appeared to be the measure of adherence most consistently related to outcomes in physical health interventions, while module completion was found to be most related to outcomes in psychological health interventions. Conclusions There is large variation in the reporting of adherence and the association of adherence with outcomes. A lack of agreement about how best to measure adherence is likely to contribute to the variation in findings. Physical and psychological outcomes seem influenced by different types of adherence. A composite measure encompassing time online, activity completion, and active engagements with the intervention may be the best measure of adherence. Further research is required to establish a consensus for measuring adherence and to understand the role of adherence in influencing outcomes.
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              Indigenous health in Latin America and the Caribbean.

              This review is the second in a series on Indigenous health, covering different regions and issues. We look briefly at the current state of Indigenous health in Latin America and the Caribbean, a region with over 400 different indigenous groups and a total population of 45 to 48 million people. We describe the complex history and current reality of Indigenous peoples' situation within the American continent. We discuss the importance of Indigenous health systems and medicines, and look at changing political environments in the region. The paper concludes with a discussion of the changing political and legislative environment in Latin American countries.
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                Author and article information

                Contributors
                Journal
                JMIR Form Res
                JMIR Form Res
                JFR
                JMIR Formative Research
                JMIR Publications (Toronto, Canada )
                2561-326X
                2024
                2 May 2024
                : 8
                : e50385
                Affiliations
                [1 ] Department of Psychology and Neuroscience Auckland University of Technology Auckland New Zealand
                [2 ] School of Pharmacy The University of Auckland Auckland New Zealand
                Author notes
                Corresponding Author: Liesje Donkin liesje.donkin@ 123456aut.ac.nz
                Author information
                https://orcid.org/0000-0002-0457-8788
                https://orcid.org/0009-0009-9444-9303
                https://orcid.org/0000-0001-8701-3872
                https://orcid.org/0000-0003-3207-7494
                https://orcid.org/0000-0002-1291-3902
                Article
                v8i1e50385
                10.2196/50385
                11099811
                38696236
                3befba60-8eaa-466e-aed9-a33906febe77
                ©Liesje Donkin, Marie-Claire Bidois-Putt, Holly Wilson, Penelope Hayward, Amy Hai Yan Chan. Originally published in JMIR Formative Research (https://formative.jmir.org), 02.05.2024.

                This is an open-access article distributed under the terms of the Creative Commons Attribution License ( https://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR Formative Research, is properly cited. The complete bibliographic information, a link to the original publication on https://formative.jmir.org, as well as this copyright and license information must be included.

                History
                : 29 June 2023
                : 4 September 2023
                : 12 November 2023
                : 22 November 2023
                Categories
                Original Paper
                Original Paper

                indigenous people,māori,ehealth,mental health,web-based intervention,digital intervention

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