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      Kindness, Listening, and Connection: Patient and Clinician Key Requirements for Emotional Support in Chronic and Complex Care

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          Abstract

          Emotional support for patients is critical for achieving person-centered care. However, the literature evidences an ongoing challenge in embedding emotional support within current health services. This study aimed to investigate the strategies to embed emotional support from the perspectives of patients and clinicians. This is an exploratory qualitative study that collected data through focus group discussions (FGDs) and interviews from 11 patients, 2 carers, and 7 clinicians in the multi-disciplinary care teams in an outpatient complex and chronic care setting in New South Wales, Australia. The FGDs and interviews were recorded, transcribed, and thematically analyzed. Three main themes emerged from the experience of both the patients and clinicians: (1) warmth and kindness, (2) deep listening, and (3) social connection in the process of treatment. Clinicians’ and patients’ shared experience of these themes was key to embed emotional support in care. Practical strategies including promoting shared understanding of emotional support, enhancing provider's capability to deliver emotional support, and building patient's networking opportunities in treatment processes were discussed to facilitate emotional support in patient care and health services.

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          Using thematic analysis in psychology

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            Standards for reporting qualitative research: a synthesis of recommendations.

            Standards for reporting exist for many types of quantitative research, but currently none exist for the broad spectrum of qualitative research. The purpose of the present study was to formulate and define standards for reporting qualitative research while preserving the requisite flexibility to accommodate various paradigms, approaches, and methods.
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              Sample Size in Qualitative Interview Studies: Guided by Information Power

              Sample sizes must be ascertained in qualitative studies like in quantitative studies but not by the same means. The prevailing concept for sample size in qualitative studies is "saturation." Saturation is closely tied to a specific methodology, and the term is inconsistently applied. We propose the concept "information power" to guide adequate sample size for qualitative studies. Information power indicates that the more information the sample holds, relevant for the actual study, the lower amount of participants is needed. We suggest that the size of a sample with sufficient information power depends on (a) the aim of the study, (b) sample specificity, (c) use of established theory, (d) quality of dialogue, and (e) analysis strategy. We present a model where these elements of information and their relevant dimensions are related to information power. Application of this model in the planning and during data collection of a qualitative study is discussed.
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                Author and article information

                Journal
                J Patient Exp
                J Patient Exp
                JPX
                spjpx
                Journal of Patient Experience
                SAGE Publications (Sage CA: Los Angeles, CA )
                2374-3735
                2374-3743
                12 April 2022
                2022
                : 9
                : 23743735221092627
                Affiliations
                [1 ]Ringgold 3925, universityUniversity of Tasmania; , Health Service Management School of Business & Economics, Sydney, Australia
                [2 ]Be Pain Smart Service, Royal Rehab, Ryde, Australia
                [3 ]Ringgold 7800, universityUNSW Simpson Centre for Health Services Research; , Sydney, Australia
                [4 ]Ringgold 371529, universityUniversity of New South Wales Southwestern Sydney Clinical School; , Liverpool, Australia
                [5 ]Ringgold 223690, universityNepean Blue Mountains Local Health District; , Western Sydney, Australia
                [6 ]Nepean Clinical School, Ringgold 4334, universityUniversity of Sydney; , Sydney, Australia
                Author notes
                [*]Jane Bradshaw, Royal Rehab, 235, Morrison Road, Ryde. NSW 1680, Australia. Email: janebradshaw454@ 123456gmail.com
                Author information
                https://orcid.org/0000-0001-9657-0101
                Article
                10.1177_23743735221092627
                10.1177/23743735221092627
                9008851
                35434291
                251f941f-6bd0-467c-a6a2-478f5aed1777
                © The Author(s) 2022

                This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License ( https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page ( https://us.sagepub.com/en-us/nam/open-access-at-sage).

                History
                Categories
                Research Article
                Custom metadata
                ts19
                January-December 2022

                clinician–patient relationship,communication,organizational culture,patient/relationship centered skills,patient perspectives/narratives,patient satisfaction,trust

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