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      “Don't Promise Something You can't Deliver:” Caregivers' Advice for Improving Services to Adolescents and Young Adults with Autism

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          There is no author summary for this article yet. Authors can add summaries to their articles on ScienceOpen to make them more accessible to a non-specialist audience.

          Abstract

          Approximately 50,000 youths with autism spectrum disorders (ASD) exit U.S. high schools yearly to enter adult systems of care, many of whom remain dependent on family for day-to-day care and service system navigation. As part of a larger study, 174 family caregivers for adolescents or young adults with ASD were asked what advice they would give service providers about how to improve services for youth with ASD. Reflexive thematic analysis identified a framework of five directives: (1) provide a roadmap to services; (2) improve service access; (3) fill gaps to address unmet needs; (4) educate themselves, their families, and society about autism; and (5) operate from a relationship-building paradigm with families. Education, health, and social service providers, as well as policymakers, can use these directives to better assist youth with ASD and their families in the transition to adulthood.

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          Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups.

          A Tong, P SAINSBURY, J. Craig (2007)
          Qualitative research explores complex phenomena encountered by clinicians, health care providers, policy makers and consumers. Although partial checklists are available, no consolidated reporting framework exists for any type of qualitative design. To develop a checklist for explicit and comprehensive reporting of qualitative studies (in depth interviews and focus groups). We performed a comprehensive search in Cochrane and Campbell Protocols, Medline, CINAHL, systematic reviews of qualitative studies, author or reviewer guidelines of major medical journals and reference lists of relevant publications for existing checklists used to assess qualitative studies. Seventy-six items from 22 checklists were compiled into a comprehensive list. All items were grouped into three domains: (i) research team and reflexivity, (ii) study design and (iii) data analysis and reporting. Duplicate items and those that were ambiguous, too broadly defined and impractical to assess were removed. Items most frequently included in the checklists related to sampling method, setting for data collection, method of data collection, respondent validation of findings, method of recording data, description of the derivation of themes and inclusion of supporting quotations. We grouped all items into three domains: (i) research team and reflexivity, (ii) study design and (iii) data analysis and reporting. The criteria included in COREQ, a 32-item checklist, can help researchers to report important aspects of the research team, study methods, context of the study, findings, analysis and interpretations.
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            The Discovery of Grounded Theory

            Barney G. Glaser, Anselm L. Strauss (1967)
            <p>Most writing on sociological method has been concerned with how accurate facts can be obtained and how theory can thereby be more rigorously tested. In The Discovery of Grounded Theory, Barney Glaser and Anselm Strauss address the equally Important enterprise of how the discovery of theory from data--systematically obtained and analyzed in social research--can be furthered. The discovery of theory from data--grounded theory--is a major task confronting sociology, for such a theory fits empirical situations, and is understandable to sociologists and laymen alike. Most important, it provides relevant predictions, explanations, interpretations, and applications.</p><p>In Part I of the book, Generation Theory by Comparative Analysis, the authors present a strategy whereby sociologists can facilitate the discovery of grounded theory, both substantive and formal. This strategy involves the systematic choice and study of several comparison groups. In Part II, The Flexible Use of Data, the generation of theory from qualitative, especially documentary, and quantitative data Is considered. In Part III, Implications of Grounded Theory, Glaser and Strauss examine the credibility of grounded theory.</p><p>The Discovery of Grounded Theory is directed toward improving social scientists' capacity for generating theory that will be relevant to their research. While aimed primarily at sociologists, it will be useful to anyone Interested In studying social phenomena--political, educational, economic, industrial-- especially If their studies are based on qualitative data.</p></p>
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              Reflecting on reflexive thematic analysis

              Virginia Braun, Victoria Clarke (2020)
              Article 0 comments Cited 2163 times – based on 0 reviews     Review now
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                Author and article information

                Contributors
                Kristen A. Berg:
                ORCID: https://orcid.org/0000-0003-1561-6863
                Journal
                Journal ID (nlm-ta): Autism Res Treat
                Journal ID (iso-abbrev): Autism Res Treat
                Journal ID (publisher-id): AURT
                Title: Autism Research and Treatment
                Publisher: Hindawi
                ISSN (Print): 2090-1925
                ISSN (Electronic): 2090-1933
                Publication date Collection: 2023
                Publication date (Electronic): 21 March 2023
                Volume: 2023
                Electronic Location Identifier: 6597554
                Affiliations
                1Jack, Joseph and Morton Mandel School of Applied Social Sciences, Case Western Reserve University, 10900 Euclid Ave, Cleveland, OH 44106, USA
                2Center for Health Care Research and Policy, The MetroHealth System, 2500 MetroHealth Dr, Cleveland, OH 44109, USA
                3University Hospitals Cleveland Medical Center, 11100 Euclid Ave, Cleveland, OH 44106, USA
                4Cleveland State University, College of Health, 2121 Euclid Ave, Cleveland, OH 44115, USA
                5Frances Payne Bolton School of Nursing, Case Western Reserve University, 10900 Euclid Ave, Cleveland, OH 44106, USA
                Author notes

                Academic Editor: R. McKell Carter

                Author information
                https://orcid.org/0000-0003-1561-6863
                https://orcid.org/0000-0002-3278-5573
                https://orcid.org/0000-0002-1424-2540
                https://orcid.org/0000-0003-0860-6317
                https://orcid.org/0000-0003-0521-9952
                https://orcid.org/0000-0002-3350-9386
                https://orcid.org/0000-0002-5892-2134
                https://orcid.org/0000-0001-5012-8086
                Article
                DOI: 10.1155/2023/6597554
                PMC ID: 10049841
                SO-VID: 1e06e21b-b931-45ed-a7ba-752e7e518f4a
                Copyright © Copyright © 2023 Kristen A. Berg et al.
                License:

                This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

                History
                Date received : 14 March 2022
                Date revision received : 1 February 2023
                Date accepted : 14 February 2023
                Funding
                Funded by: Case Western Reserve University
                Categories
                Subject: Research Article

                ScienceOpen disciplines: Neurology
                Data availability:
                ScienceOpen disciplines: Neurology

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