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      Assessing the capture of sociodemographic information in electronic medical records to inform clinical decision making

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          Abstract

          There is a growing need to document sociodemographic factors in electronic medical records to produce representative cohorts for medical research and to perform focused research for potentially vulnerable populations. The objective of this work was to assess the content of family physicians’ electronic medical records and characterize the quality of the documentation of sociodemographic characteristics. Descriptive statistics were reported for each sociodemographic characteristic. The association between the completeness rates of the sociodemographic data and the various clinics, electronic medical record vendors, and physician characteristics was analyzed. Supervised machine learning models were used to determine the absence or presence of each characteristic for all adult patients over the age of 18 in the database. Documentation of marital status (51.0%) and occupation (47.2%) were significantly higher compared to the rest of the variables. Race (1.4%), sexual orientation (2.5%), and gender identity (0.8%) had the lowest documentation rates with a 97.5% missingness rate or higher. The correlation analysis for vendor type demonstrated that there was significant variation in the availability of marital and occupation information between vendors ( χ 2 > 6.0, P < 0.05). Variability in documentation between clinics indicated that the majority of characteristics exhibited high variation in completeness rates with the highest variation for occupation (median: 47.2, interquartile range: 60.6%) and marital status (median: 45.6, interquartile: 59.7%). Finally, physician sex, years since a physician graduated, and whether a physician was a foreign vs a Canadian medical graduate were significantly associated with documentation rates of place of birth, citizenship status, occupation, and education in the electronic medical records. Our findings suggest a crucial need to implement better documentation strategies for sociodemographic information in the healthcare setting. To improve completeness rates, healthcare systems should monitor, encourage, enforce, or incentivize sociodemographic data collection standards.

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          Most cited references54

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          Taking action on the social determinants of health in clinical practice: a framework for health professionals.

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            Review: electronic health records and the reliability and validity of quality measures: a review of the literature.

            Previous reviews of research on electronic health record (EHR) data quality have not focused on the needs of quality measurement. The authors reviewed empirical studies of EHR data quality, published from January 2004, with an emphasis on data attributes relevant to quality measurement. Many of the 35 studies reviewed examined multiple aspects of data quality. Sixty-six percent evaluated data accuracy, 57% data completeness, and 23% data comparability. The diversity in data element, study setting, population, health condition, and EHR system studied within this body of literature made drawing specific conclusions regarding EHR data quality challenging. Future research should focus on the quality of data from specific EHR components and important data attributes for quality measurement such as granularity, timeliness, and comparability. Finally, factors associated with poor or variability in data quality need to be better understood and effective interventions developed.
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              Association of Electronic Health Record Design and Use Factors With Clinician Stress and Burnout

              Key Points Question Which electronic health record (EHR) design and use factors are associated with clinician stress and burnout? Findings In this survey study of 282 clinicians, clinician stress and burnout were associated with 7 EHR design and use factors. These 7 plus 2 other design and use factors collectively accounted for a modest amount of the variance in stress (12.5%) and burnout (6.8%); models incorporating other work conditions (such as chaotic work atmosphere and workload control) accounted for considerably more of the variance in stress (58.1%) and burnout (36.2%). Meaning While EHR design and use factors may appropriately be targeted by health systems and EHR designers to address stress and burnout, other non-EHR issues, especially clinician work conditions, appear to play a substantial role in adverse clinician outcomes.
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                Author and article information

                Contributors
                Role: Data curationRole: Formal analysisRole: InvestigationRole: MethodologyRole: SoftwareRole: ValidationRole: VisualizationRole: Writing – original draftRole: Writing – review & editing
                Role: ConceptualizationRole: Funding acquisitionRole: Project administrationRole: ResourcesRole: SupervisionRole: ValidationRole: Writing – review & editing
                Role: InvestigationRole: ValidationRole: Writing – review & editing
                Role: InvestigationRole: ValidationRole: Writing – review & editing
                Role: ValidationRole: Writing – review & editing
                Role: ConceptualizationRole: Project administrationRole: SupervisionRole: Writing – review & editing
                Role: Editor
                Journal
                PLoS One
                PLoS One
                plos
                PLOS ONE
                Public Library of Science (San Francisco, CA USA )
                1932-6203
                2025
                17 January 2025
                : 20
                : 1
                : e0317599
                Affiliations
                [1 ] Department of Electrical and Computer Engineering, University of Toronto, Toronto, Ontario, Canada
                [2 ] Department of Family and Community Medicine, University of Toronto, Toronto, Ontario, Canada
                [3 ] North York General Hospital, Toronto, Ontario, Canada
                [4 ] Toronto Western Hospital Family Health Team, University Health Network, Toronto, Ontario, Canada
                [5 ] Department of Family and Community Medicine, Scarborough Health Network, Scarborough, Ontario, Canada
                [6 ] Department of Family Medicine, Queen’s University, Kingston, Ontario, Canada
                Ege University, Faculty of Medicine, TÜRKIYE
                Author notes

                Competing Interests: The authors have declared that no competing interests exist.

                Author information
                https://orcid.org/0009-0008-1179-4201
                Article
                PONE-D-24-13282
                10.1371/journal.pone.0317599
                11741650
                39823404
                0d291607-a4d1-4720-bf95-30f73391d90f
                © 2025 Abulibdeh et al

                This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.

                History
                : 4 April 2024
                : 1 January 2025
                Page count
                Figures: 4, Tables: 5, Pages: 20
                Funding
                Funded by: funder-id http://dx.doi.org/10.13039/501100000024, Canadian Institutes of Health Research;
                Award ID: 173094
                Award Recipient :
                Canadian Institutes of Health Research [grant number 173094].
                Categories
                Research Article
                Medicine and Health Sciences
                Health Care
                Health Information Technology
                Electronic Medical Records
                Computer and Information Sciences
                Information Technology
                Health Information Technology
                Electronic Medical Records
                Medicine and Health Sciences
                Health Care
                Health Care Providers
                Physicians
                People and Places
                Population Groupings
                Professions
                Medical Personnel
                Physicians
                Social Sciences
                Economics
                Commerce
                Vendors
                Biology and Life Sciences
                Psychology
                Gender Identity
                Social Sciences
                Psychology
                Gender Identity
                People and Places
                Population Groupings
                Professions
                Computer and Information Sciences
                Artificial Intelligence
                Machine Learning
                Medicine and Health Sciences
                Epidemiology
                Medical Risk Factors
                Medicine and Health Sciences
                Public and Occupational Health
                Behavioral and Social Aspects of Health
                Custom metadata
                The data used in this paper were individual level de-identified data. Policies, procedures and REB governing the source data are such that individual level data are never publicly available, only aggregate data are ever permitted to be released. The nature of the data used in this particular project is such that there is no way to aggregate the data for public release. Furthermore, at this time, we are unable to share the dataset. This de-identified dataset was derived from the University of Toronto’s Practice-based Research Network’s Data Safe Haven, a large primary care electronic medical record (EMR) database. This parent database has been archived and is not currently accessible. Access and release of datasets may become available upon request in the future once approved by the University of Toronto Health Sciences REB. For a point of contact please email ethics.review@ 123456utoronto.ca for general inquiries for the human research and ethics unit or Mariya Gancheva ( m.gancheva@ 123456utoronto.ca ) the research ethics coordinator - human research ethics at University of Toronto.

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