Disorder of consciousness is a clinical condition due to severe brain damage. The impact of consciousness disorder on the family is characterized by a combination of biopsychosocial factors. The burden and suffering perceived by caregivers can cause psychological distress characterized by anxiety, depression, and physical illness. The aim of the study was to investigate the interaction between family dynamics and caregiver burden.
We enlisted 35 caregivers of subjects in a minimally conscious state. Two skilled psychologists administered the Olson's Adaptability and Family Cohesion Assessment Scale and the Novak's Burden Inventory Caregiver Scale to assess family function and family burden, respectively.
Disorder of consciousness is a clinical condition due to severe brain damage. The burden and suffering perceived by caregivers can cause psychological distress characterized by anxiety, depression and physical illness. The patient and his/her family should be followed by a multidisciplinary team including a neuropsychologist, who can facilitate the family dynamic structure and to safeguard the welfare of the patient.