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      Communication Intervention for Young Children with Severe Neurodevelopmental Disabilities Via Telehealth

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          Abstract

          Young children with neurodevelopmental disorders such as autism spectrum disorders (ASD) and Rett syndrome often experience severe communication impairments. This study examined the efficacy of parent-implemented communication assessment and intervention with remote coaching via telehealth on the acquisition of early communication skills of three young children with ASD (2) and Rett syndrome (1). Efficacy of the intervention was evaluated using single-case experimental designs. First, functional assessment was used to identify idiosyncratic/potentially communicative responses and contexts for each child. Next, parents implemented functional communication training (FCT). All of the children acquired the targeted communication responses. The findings support the efficacy of telehealth as a service delivery model to coach parents on intervention strategies for their children’s early communication skills.

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          Most cited references45

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          Management of children with autism spectrum disorders.

          Pediatricians have an important role not only in early recognition and evaluation of autism spectrum disorders but also in chronic management of these disorders. The primary goals of treatment are to maximize the child's ultimate functional independence and quality of life by minimizing the core autism spectrum disorder features, facilitating development and learning, promoting socialization, reducing maladaptive behaviors, and educating and supporting families. To assist pediatricians in educating families and guiding them toward empirically supported interventions for their children, this report reviews the educational strategies and associated therapies that are the primary treatments for children with autism spectrum disorders. Optimization of health care is likely to have a positive effect on habilitative progress, functional outcome, and quality of life; therefore, important issues, such as management of associated medical problems, pharmacologic and nonpharmacologic intervention for challenging behaviors or coexisting mental health conditions, and use of complementary and alternative medical treatments, are also addressed.
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            Preliminary findings of a telehealth approach to parent training in autism.

            Telehealth or online communication technologies may lessen the gap between intervention requirements for children with autism spectrum disorders (ASDs) and the available resources to provide these services. This study used a video conferencing and self-guided website to provide parent training in the homes of children with ASD. The first eight families to complete the 12-week online intervention and three-month follow up period served as pilot data. Parents' intervention skills and engagement with the website, as well as children's verbal language and joint attention skills were assessed. Preliminary research suggests telehealth may support parental learning and improve child behaviors for some families. This initial assessment of new technologies for making parent training resources available to families with ASD merits further, in-depth study.
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              Early intensive behavioral intervention: outcomes for children with autism and their parents after two years.

              An intervention group (n=23) of preschool children with autism was identified on the basis of parent preference for early intensive behavioral intervention and a comparison group (n=21) identified as receiving treatment as usual. Prospective assessment was undertaken before treatment, after 1 year of treatment, and again after 2 years. Groups did not differ on assessments at baseline but after 2 years, robust differences favoring intensive behavioral intervention were observed on measures of intelligence, language, daily living skills, positive social behavior, and a statistical measure of best outcome for individual children. Measures of parental well-being, obtained at the same three time points, produced no evidence that behavioral intervention created increased problems for either mothers or fathers of children receiving it.
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                Author and article information

                Journal
                7904301
                4537
                J Autism Dev Disord
                J Autism Dev Disord
                Journal of autism and developmental disorders
                0162-3257
                1573-3432
                6 December 2019
                March 2017
                16 December 2019
                : 47
                : 3
                : 744-767
                Affiliations
                [1 ]Department of Educational Psychology, University of Minnesota, 250 Education Sciences Building, 56 East River Road, Minneapolis, MN 55455, USA
                Author notes

                Author contributions JS participated in study conception, intervention delivery, data collection, analysis, and interpretation and manuscript preparation; AD participated in intervention delivery, data collection, analysis and interpretation, and manuscript preparation; JM participated in data analysis and interpretation and manuscript preparation.

                Jessica Simacek, sima0034@ 123456umn.edu
                Article
                PMC6913527 PMC6913527 6913527 nihpa1062055
                10.1007/s10803-016-3006-z
                6913527
                28093677
                5e1ccd08-3557-4582-aff7-cdaecd9c5cde
                History
                Categories
                Article

                Telehealth,Communication intervention,FCT,Idiosyncratic responses

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