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      Survivorship Care Planning and Unmet Information and Service Needs Among Adolescent and Young Adult Cancer Survivors

      Author(s): 1 , 2 , 3
      Publication date Created:
      Publication date (Print):
      Journal: Journal of Adolescent and Young Adult Oncology
      Publisher: Mary Ann Liebert Inc

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          Abstract

          To examine whether survivorship care planning (receipt of written treatment summary or instructions for follow-up care) is associated with unmet needs among adolescent and young adult (AYA) cancer survivors (aged 15-39 at diagnosis).

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          Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study.

          Theresa H M Keegan, Daphne Y Lichtensztajn, Ikuko Kato … (2012)
          We described unmet information and service needs of adolescent and young adult (AYA) cancer survivors (15-39 years of age) and identified sociodemographic and health-related factors associated with these unmet needs. We studied 523 AYAs recruited from seven population-based cancer registries, diagnosed with acute lymphocytic leukemia, Hodgkin's lymphoma, non-Hodgkin's lymphoma, germ cell cancer, or sarcoma in 2007-2008. Participants completed surveys a median of 11 months from diagnosis. Multivariable logistic regression analyses were used to estimate associations between unmet (information and service) needs and sociodemographic and health-related factors. More than half of AYAs had unmet information needs relating to their cancer returning and cancer treatments. AYAs needing services, but not receiving them, ranged from 29 % for in-home nursing to 75 % for a support group. The majority of AYAs who needed a pain management expert, physical/occupational therapist, mental health worker, or financial advice on paying for health care did not receive services. In multivariable analyses, older participants, men, participants of non-white race/ethnicity, and participants who reported less than excellent general health or fair/poor quality of care were more likely to report unmet information needs. Factors associated with both unmet service and information needs included physical health or emotional problems interfering with social activities or having ≥3 physical treatment-related symptoms. Recently diagnosed AYA cancer survivors have substantial unmet information needs varying by demographic and health-related factors. We identified subgroups of AYA cancer survivors with high unmet needs that can be targeted for interventions and referrals.
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            Survivorship care plans in cancer: a systematic review of care plan outcomes

            M Brennan, J Gormally, P Butow … (2014)
            Background: Eight years after the Institute of Medicine recommended survivorship care plans (SCPs) for all cancer survivors, this study systematically reviewed the evidence for their use. Methods: Studies evaluating outcomes after implementation of SCPs for cancer survivors were identified by searching databases (MEDLINE, EMBASE and Cochrane). Data were extracted and summarised. Results: Ten prospective studies (2286 survivors) met inclusion criteria (5 randomised controlled trials (RCTs)). Study populations included survivors of breast, gynaecological, colorectal and childhood cancer. Several models of SCP were evaluated (paper based/on-line, oncologist/nurse/primary-care physician-delivered and different templates). No significant effect of SCPs was found on survivor distress, satisfaction with care, cancer-care coordination or oncological outcomes in RCTs. Breast cancer survivors with SCPs were better able to correctly identify the clinician responsible for their follow-up care. One study suggested a positive impact on reducing unmet needs. Levels of survivor satisfaction with, and self-reported understanding of, their SCP were very high. Feasibility was raised by health professionals as a significant barrier, as SCPs took 1–4 h of their time to develop. Conclusions: Emerging evidence shows very few measurable benefits of SCPs. Survivors reported high levels of satisfaction with SCPs. Resource issues were identified as a significant barrier to implementation.
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              Cancer survivorship: a new challenge in delivering quality cancer care.

              Stephen Hewitt, P Ganz, Julia H. Rowland (2006)
              Article 0 comments Cited 56 times – based on 0 reviews     Review now
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                Author and article information

                Journal
                Title: Journal of Adolescent and Young Adult Oncology
                Abbreviated Title: Journal of Adolescent and Young Adult Oncology
                Publisher: Mary Ann Liebert Inc
                ISSN (Print): 2156-5333
                ISSN (Electronic): 2156-535X
                Publication date Created: June 2017
                Publication date (Print): June 2017
                Volume: 6
                Issue: 2
                Pages: 327-332
                Affiliations
                [1 ]School of Public Health, University of Texas Health Science Center Houston, San Antonio, Texas.
                [2 ]Department of Epidemiology and Biostatistics, University of Texas Health Science Center San Antonio, San Antonio, Texas.
                [3 ]School of Public Health, University of Texas Health Science Center Houston, Houston, Texas.
                Article
                DOI: 10.1089/jayao.2016.0053
                SO-VID: b1a335b9-fa1e-489e-9f5a-ae583c0c2a8e
                Copyright © © 2017
                License:

                http://www.liebertpub.com/nv/resources-tools/text-and-data-mining-policy/121/

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